Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
I had my appt with the endo today (first appt since the TT). I am on 112mg synthroid. We started high (I wanted to start high). So I kind of figured I'd have to reduce my dose, but I don't like what he said. Here are my labs
12/15/10
TSH less than .02 (0.465-4.88)
FT4 2.16 (0.78-2.19)
FT3 3.0 (2.0-3.5)
He said that I'm "obviously" on too high a dose because of my TSH being undetectable and my FT4 is at the high end of the range. I said "but the antibodies can still be there lowering the TSH" and he said "the antibodies aren't going to affect you anymore since you don't have a thyroid" What?? I guess I'm going to have to find some documentation and take it in with me next time. He lowered me to 100 (he said I can still take my 112 and just "skip" a dose on saturday, which I'm not sure I like).
So, now I'm really worried that I'm going to have to start battling for medication. Arghh!! I feel good except I'm really really cold and my skin is really dry. I guess its probably just form the extremely cold temps lately (and I hate/don't use lotion).
I guess on the bright side at least he isn't just looking at TSH. At least he is still ordering FT3 and Ft4. So, I lab in 4 weeks on the 100mg and see where I am.
12/15/10
TSH less than .02 (0.465-4.88)
FT4 2.16 (0.78-2.19)
FT3 3.0 (2.0-3.5)
He said that I'm "obviously" on too high a dose because of my TSH being undetectable and my FT4 is at the high end of the range. I said "but the antibodies can still be there lowering the TSH" and he said "the antibodies aren't going to affect you anymore since you don't have a thyroid" What?? I guess I'm going to have to find some documentation and take it in with me next time. He lowered me to 100 (he said I can still take my 112 and just "skip" a dose on saturday, which I'm not sure I like).
So, now I'm really worried that I'm going to have to start battling for medication. Arghh!! I feel good except I'm really really cold and my skin is really dry. I guess its probably just form the extremely cold temps lately (and I hate/don't use lotion).
I guess on the bright side at least he isn't just looking at TSH. At least he is still ordering FT3 and Ft4. So, I lab in 4 weeks on the 100mg and see where I am.
Hannah, yes thanks very much for all your posts. I read each and every one and you've got me looking at my diet for the first time in my life and actually making changes for the betterment of my health, so thank you!
Laura, your going to be alright. You're really ahead of the game with all that you know now. Knowledge really is power and you are being proactive and this endo looks good and should take an interest in the fact that you are looking for a partner in him with your health. If he listens to you and is willing to work with you and how your feeling and takes into consideration what your hopes and dreams are for the future, you've got a winner. I agree, don't let the decrease discourage you. Let us know how you make out, we're rooting for ya!
Ay yi yi, sorry...not feeling great at the moment. I'm feeling too hypO and the LDN is working too much overtime (may have to drop down to 3 mg and not take 3.5 mg). My Doc's office have not got in touch with me this week to give me lab order sheet (to test the Free Ts and TSH). Going to call Monday and request again. In the meantime, I had no choice, but to lower the MMI from 3.75 mg to 2.5 mg. Feeling so much better already with a bit less pain. Menstrual cycle of five days is heavier than I want it to be.
Will participate more later when feeling better.
{{{hugs}}} :-(