Well, it'll shrivel up and die I guess, that's the purpose of RAI, kill the thyroid. But anyway,if he's just going by the tsh it's misleading.You are below range for FT3and 4 now right? How long were you on this dose at the time of these last labs?And what were the labs before this, did you have any in October? I surely wouldn't want him as an endo if you were to do RAI, he'd keep you hypo and sick, you don't want that. You would want levels more toward the middle of the range.See with me I'm the opposite 5 a day makes me way hypo, last year the tsh went up to6.88 with frees at the bottom,that's not good for us.Elaine Moore has said that when our levels of FT3and 4 are too low for our bodies needs then the gland over works trying to correct it and we end up with more tsi antibodies.Do you know what yours are?It also aggravated my Hashi antibodies, I seem to have both maybe, hasn't been confirmed yet.My GP hasn't a clue! Time for new endos for us!!

If I was in your situation, I would be dropping the Methimazole to 2.5mg one day and 5mg the next and see how you go.
I am not a Doctor but obviously the dosage you are on is making you Hypo.Or consult with your Doctor as to how you can get round this. The Endo doesnt give a damn if you havent seen him in a year! Get rid of him!

I have reduced the meds to 2.5 inthe past and Ft4 went to 30.9 in a month. The lastest labs are from oct 23 in sept theFT4 was21.9 so the higher dose was a good thing. The Crappy thing is there are only 2 places to go for endos, Calgary and Edmonton in my province. Mine is in edmonton . Calgary is a bit farther for me to go 2and a half hours. The endo says he doesnt need to do the TSI again because it is only used to comfirm graves. The more I think about him the more I hate him.

Malbers, if your endo got snippy with you...I would say this is an indication that you should find another Endo. GP's don't specialize in endocrine system ailments so if he/she is trying to pass you off like that then kick the jackass to the curb. Shame Shame for making light of your feelings like that. You have every right to investigate what treatment is best for you and your doctor owes you the shot at trying those options. Uuuugh.... smug doctors...they need to walk in our shoes for a month and see how it feels.

yes malbers, it's all about finding the right dose.If the straight 5 makes you hyper again then scrap that. Just make sure you take the 7.5 less in the week than you take the 5. Like 5 Monday,7.5 Tues.5 Wed,7.5 Thurs.5 Fri.7.5 Sat. 5 Sun. See if the FT4 comes up more you'll feel better. Milko, I think 2.5 then 5 won't be enough if straight 5 made her hyper again, right?

What I do is figure the milligrams you take in a week. Like I was doing 25 a week and it was too much for me. You took 20 and it wasn't enough,the 5, 7.5 is 42.5 a week, that is probably too much, Milko is right! If you took 5 then 3.75 it would be 30 mgs a week, maybe that would work.2.5 then 5 would be 25 mgs.Hope this helps.

Brans is right too. Taking 3.75mg then 5mg might be the go at the moment but I would sure be looking at finding another Endo. Maybe you could find one who will dose you this.You have come this far, dont give up now.
More and more Endos are doing the block and replace therapy and given a little 'shove' always works wonders.
Have your figures in front of you, your doses and your levels and calculate the 'right' dose or even better , ask him "What would you advise on the right dose?"
Many Endos feel intimidated knowing that their patient knows as much as them if not more but letting the Endo think he/she is coming up with the final answer is a classic way of doing it.
Be firm but be open to compromise.
Tell the Endo you will be taking the 3.75mg and 5mg and then ask "Would it be ok to call you if this dose doesnt work? Let the Endo know you are open to compromise but will not be trodden on either.
It takes a lot of courage to tackle an Endo but it can be done.
If the Endo wont agree to it then say, "What do I really have to lose? I either go hyper or hypo and if thats the case, then we will do it your way.
Most will agree to this.

Milko, Brans and gravely, Thank you all fo the input it really helps!! I am going to make an appointment with my gp to see if she can help me find a good endo. She is very kind and caring but only has one other patient wuth GD, who is in remission by the way. I asked if she could hook me up with that person but she said it would be unethical All of your replies have given me back the hope I once had. Milko your right I have come too far to give up now!! thanks (:

Hey Malbers...you say your thyroid has been very large since your diagnosis...is this what they call a goiter? If it is a goiter...do you have a toxic goiter? Im trying to learn as much as I can about these...so just curious. Are you getting a treatment specially for goiter or is it the same as treatment for graves? Have you been told why you have a goiter? Or why your thyroid is very large? Im wondering if it has to do with iodine shortage in your system. Years ago before they put iodine into the salt people often suffered from this.

Hey Dairy, no its not a goiter. I had an ultra sound last dec and they said it was just enlarged from being so hyper for so long. There were no hot nodules or anything odd except the size. Everyday its still getting smaller and my neck looks normal again.