Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Just had an in person visit with my Endo today - first time since February.
My current labs are
Sept 17 2013
FT4 = 10.5
FT3 = 4.4
TSH - FINALLY COMING BACK! 0.75 as opposed to less than .03 that it has been for ever :)
Compared to:
June 17 2013
FT4 = 10.3 (9.0-23)
FT3 = 4.7 (3.5-6.5)
TSH less than 0.03 (0.20-4.00)
Apr 29 2013
FT4 is 15.3 (9.0-23.0)
FT3 is 7.6 (3.5-6.5)
TSH is still less than 0.03 (normal 0.20-4.00)
Mar 26 2013
FT4 = 15 (9.0-23.0)
FT3 = 6.4 (3.5-6.5)
TSH less than 0.03
Feb 28 2013
TSH less than 0.03, (0.20-4.00)
FT4 25.5, (9.0-23.0)
FT3 11.1 (3.5-6.5)
Feb 5 2013
TSH less than 0.03, (0.20-4.00)
FT4 79.1, (9.0-23.0)
FT3 - not on this lab
Jan 22 2013
TSH less than 0.03 (0.20-4.00)
FT4 69.4, Reference Range 9.0-23.0 (pmol/L)
FT3 - not on this lab
So I am pretty happy about that. He asked me what dose of PTU I am taking currently and I was truthful and told him I am taking around 50mg per day (split in two, 25mg around lunch, and 25mg at bedtime).... I think he was pretty surprised by that amount since he had prescribed me with 600mg a day earlier this year, and then in a follow up call told me to continue what I was taking... after I had long ago reduced it :)
He said that it seems to be working out for me and to continue on what is working until the end of the year and we will re-assess. He went over the options again, but said that I am clearly entering remission and could remain on the drugs until needed, and if needed, resume again.
This makes me very happy! Aside from the weight gain, I am feeling pretty good, feeling strong at the gym, and my hair and skin are happy again! Thanks ladies! So many of you have provided me with information and support that has helped me through. It's been only 8 months since I was diagnosed (and I was feeling pretty awful) and I know that I have a long way to go before I can truly consider myself to be in remission... but I know I am on my way!
My current labs are
Sept 17 2013
FT4 = 10.5
FT3 = 4.4
TSH - FINALLY COMING BACK! 0.75 as opposed to less than .03 that it has been for ever :)
Compared to:
June 17 2013
FT4 = 10.3 (9.0-23)
FT3 = 4.7 (3.5-6.5)
TSH less than 0.03 (0.20-4.00)
Apr 29 2013
FT4 is 15.3 (9.0-23.0)
FT3 is 7.6 (3.5-6.5)
TSH is still less than 0.03 (normal 0.20-4.00)
Mar 26 2013
FT4 = 15 (9.0-23.0)
FT3 = 6.4 (3.5-6.5)
TSH less than 0.03
Feb 28 2013
TSH less than 0.03, (0.20-4.00)
FT4 25.5, (9.0-23.0)
FT3 11.1 (3.5-6.5)
Feb 5 2013
TSH less than 0.03, (0.20-4.00)
FT4 79.1, (9.0-23.0)
FT3 - not on this lab
Jan 22 2013
TSH less than 0.03 (0.20-4.00)
FT4 69.4, Reference Range 9.0-23.0 (pmol/L)
FT3 - not on this lab
So I am pretty happy about that. He asked me what dose of PTU I am taking currently and I was truthful and told him I am taking around 50mg per day (split in two, 25mg around lunch, and 25mg at bedtime).... I think he was pretty surprised by that amount since he had prescribed me with 600mg a day earlier this year, and then in a follow up call told me to continue what I was taking... after I had long ago reduced it :)
He said that it seems to be working out for me and to continue on what is working until the end of the year and we will re-assess. He went over the options again, but said that I am clearly entering remission and could remain on the drugs until needed, and if needed, resume again.
This makes me very happy! Aside from the weight gain, I am feeling pretty good, feeling strong at the gym, and my hair and skin are happy again! Thanks ladies! So many of you have provided me with information and support that has helped me through. It's been only 8 months since I was diagnosed (and I was feeling pretty awful) and I know that I have a long way to go before I can truly consider myself to be in remission... but I know I am on my way!
May 24 ft4 85
Tsh .01
July 4 ft4 49
Tsh .1
Same lab range
Nxt appt to dr. Is on novemeber
But im into decreaing dosage also of mmi
Afraid of being hypo
So i read a lot here
Thank you for the inspiration
But how can i knw interval of five mos is so long
Can i get blood test if i feel better now?cause dr.appointment is november
Tnx a lot
Labs would need to be done every four to six while the MMI doses are being reduced. Please talk to the Endo about a standing lab order so this can be done every so often whether or not you have appts to see the doctor(s).
Also ask to have copies of your labs sent to you to keep in file so you know how your FT3 and FT4 progress are doing with the dose reductions being made.
{{{hugs}}}
Just to share the info I've just received from the doctors here - I am in the hospital now for pulse therapy re TED and took the chance to discuss also the issue re normal hormone levels/reduction of the thyreostatic /remission. :-)
In essence, the endo said that my TSH, FT4 and FT3 levels are in range and FT3 and FT4 even close to the down range for the past 4 months, (i've given them in my topic for TED) and i'm still on 1 pill of Propitsil daily - the minimum dose. To my question re stopping pills to test remission he said that it is important what is the level of the TRAb antibodies, as, if the latter as still present, this may lead to new relapse of Graves. In his opinion the treatment with the minimum dose of the thyrestatic should continue for a period of at least 1 year (preferably 1.5),
as otherwise even the slightest stress, infection, etc. May lead to relapse, especially if TRAb are still out of range.
Not sure if this is helpfull, just wanted to share the info he gave me today :-)