Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Okay, so most of you probably know I had my TT back in November. Everything went awesome and I am feeling good. The Synthroid starting dose for my body weight is about 95mcg. I started high on 112 per request. It was definitely too high and I went down to 100 after my first labs a month after the TT. They weren't hyper, but they (well, FT4) were near the upper end of the range. I was definitely feeling hyper.
So, I was on 100 for another month and felt AWESOME. The best ever. Had labs about a month later and [I thought] they looked good. FT4 was a on the higher end, but still well within the range. FT3 was right at midrange. TSH all along (even for close to a year before the TT) has been undetectable.
I was worried that he may be trying to dose by TSH already at the last appointment because he reduced me down to 88, even though my labs were in range. But, I went ahead and did it, basically just to appease him, thinking it would give me more leverage to have tried it if I wanted to go back up to 100.
So, I've been on 88 for the last 5 weeks. The last two weeks I've been restraining myself from going ahead and taking the 100mcg pills I have in the cabinet. But, I was a good girl and held off til my labs. I have had some muscle cramps lately and am cold, but it isn't too bad. I just know that I don't feel quite as great as I did on 100. So, as soon as I had my labs, I started my 100 the next day.
Well, I got my labs today. The TSH is still undetectable, the FT4 has dropped below midrange and the FT3 actually went up a tenth. Then, I get home today and I have a message from the endo's nurse saying he wants me to skip one synthroid pill (88) this week and he is going to reduce me down to the next lower pill when I come in next week!! WHAT??? F That!! I'm so angry! I was so afraid he was going to start doing this to me - trying to get my TSH up obviously. I'm tempted to just not even go back to him and see if I can get my regular md to give me the script for 100. I mean, my FT3 and FT4 are perfectly fine on 100, so why not? I am just appalled that he wants me to reduce down yet again! Even when my FT4 has already fallen below mid range.
Ughh! Why is this such a battle??
What do you think?
Here are my labs since the TT (nov 19):
2/25/11 - on Synthroid 88 for 5 weeks
TSH under 0.02 (0.465-4.88)
FT4 1.34 (0.78-2.19) midrange 1.485
FT3 2.9 (2.0-3.5) midrange 2.75
1/17/11 - on Synthroid 100 for almost 5 weeks
TSH under 0.02 (0.465-4.88)
FT4 1.73 (0.78-2.19) midrange 1.485
FT3 2.8 (2.0-3.5) midrange 2.75
12/15/10 - on Synthroid 112 for almost 5 weeks
TSH under 0.02 (0.465-4.88)
FT4 2.16 (0.78-2.19)
FT3 3.0 (2.0-3.5)
So, I was on 100 for another month and felt AWESOME. The best ever. Had labs about a month later and [I thought] they looked good. FT4 was a on the higher end, but still well within the range. FT3 was right at midrange. TSH all along (even for close to a year before the TT) has been undetectable.
I was worried that he may be trying to dose by TSH already at the last appointment because he reduced me down to 88, even though my labs were in range. But, I went ahead and did it, basically just to appease him, thinking it would give me more leverage to have tried it if I wanted to go back up to 100.
So, I've been on 88 for the last 5 weeks. The last two weeks I've been restraining myself from going ahead and taking the 100mcg pills I have in the cabinet. But, I was a good girl and held off til my labs. I have had some muscle cramps lately and am cold, but it isn't too bad. I just know that I don't feel quite as great as I did on 100. So, as soon as I had my labs, I started my 100 the next day.
Well, I got my labs today. The TSH is still undetectable, the FT4 has dropped below midrange and the FT3 actually went up a tenth. Then, I get home today and I have a message from the endo's nurse saying he wants me to skip one synthroid pill (88) this week and he is going to reduce me down to the next lower pill when I come in next week!! WHAT??? F That!! I'm so angry! I was so afraid he was going to start doing this to me - trying to get my TSH up obviously. I'm tempted to just not even go back to him and see if I can get my regular md to give me the script for 100. I mean, my FT3 and FT4 are perfectly fine on 100, so why not? I am just appalled that he wants me to reduce down yet again! Even when my FT4 has already fallen below mid range.
Ughh! Why is this such a battle??
What do you think?
Here are my labs since the TT (nov 19):
2/25/11 - on Synthroid 88 for 5 weeks
TSH under 0.02 (0.465-4.88)
FT4 1.34 (0.78-2.19) midrange 1.485
FT3 2.9 (2.0-3.5) midrange 2.75
1/17/11 - on Synthroid 100 for almost 5 weeks
TSH under 0.02 (0.465-4.88)
FT4 1.73 (0.78-2.19) midrange 1.485
FT3 2.8 (2.0-3.5) midrange 2.75
12/15/10 - on Synthroid 112 for almost 5 weeks
TSH under 0.02 (0.465-4.88)
FT4 2.16 (0.78-2.19)
FT3 3.0 (2.0-3.5)
I feel really lucky to have a good relationship with my OB and that she is open to and doesn't feel threatened by my knowledge. When I first went in about 6 months ago or so to talk to her about graves and pregnancy (before I had decided on the TT) she actually copied the whole chapter from the american OB practice book and said that is how they handle pregnancy with thyroid issues and she thought I'd probably like to have all the details. lol thats my kind of dr!!
((((Hugs)))))