Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
I have been dealing with most of the symptoms of thyroid problems for close to 7 years now. I was told my thyroid was fine and treated like it was all in my head. I have been hospitalized 3 times. Taken more pills that any one should ever take. I have had to quit working cause it was too much and I couldn't take the pain and stress. I finally, after my heart started having problems got diagnosed with Graves disease. I have had a really bad 4 years. I have lost my teeth to bone lose, I have osteoporosis, Gi problems, eye, skin and muscle problems. I have really long hot flashes. And since my last crash heart problems. I had been feeling so useless and a borden on everyone around me. When I was told I have Graves, I was relieved. Now I am waiting to find out what will happen next, I have all kinds of thoughts going on and was hoping to get a little help with it all.
I am sorry you went through a lot. I would wonder if your doctor(s) had tested you properly with the correct thyroid labs such as the Free T3 and the Free T4, especially.
I didn't know at first either, but after a couple of years of being sick and not getting tested as often, I researched online the labs to get. After my hospitalization I saw a new doctor who is holistic; I asked for certain labs to be included.
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I just got a whole lot of blood tests this morning and a bone scan cause I have osteoporosis too. The doctor I saw yesterday says he thinks I Hashitoxicosis. And that I am back and forth hyper and hypo. I don't think I have any symptoms of Hashimoto, other than the ones that over lap Hyper. I am awaiting patiently for the results. I will only see him in a month. It was hard coping when I had no answers, but it is just as hard knowing. It is more the waiting that is hard.
Hopefully the correct thyroid labs have been ordered.
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Thank you, I will post the results when I get them, And I think he did order the right ones. On the back for the form for the blood work, he added more that I did not see until the nurse pointed it out to me.
I am somewhat stable and waiting for my treatments to begin. My walk yesterday was not so good, my legs get all cramped up and my hips burn. So I have decided to just stick to my bed till I get going. I am taking atenolol for my racing heart. My pains are ever present, so are the hot flashes. But I am so much more positive now that I know. I was pretty messed up for a while. I have been doing all kinds of research since I cant sleep or do much. I have found ways to relax, writings on how to feel better about myself. and I even downloaded an app for my phone of different sounds to help me tune out. I am writing in a journal here and I want to start to set up goals for myself. Since I don't have money I am going to find on the web. Some kind of yoga classes or exercise to do so I can get some muscles back. but like I said earlier I will wait until I start treatment. I want to get my life back and I am going to make it even better than it was before.
Do you have a date for your treatment yet?
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Www.doyogawithme.com
I rotate with these and DVD's.
Did you have your Free T4 tested? It goes with the Tapazole taken as the Tapazole works with the Free T4.
What about the antibodies tests such as the TSI and the TRAb to check for Graves' Disease and the TPOab and the TgAb to check for the Hashimoto's Thyroiditis?
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My TPO is 10 range 1-34
Thyroglobulin 22 range 1.4-78.0
Anti thyroglobulin is 20 range 1-115
that is all he did for endocrinology,but my calcium is high, phosphate is high and so is my RF. My spine is at a high risk of fracture.