Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...

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ted

deleted_user
deleted_user
I have heard the wonderful stories of remission from ted. I have ted and I think it is settling somewhat. When it first started, I had to go to have my cornea scraped about everyday for a month or 2, then 2 to3 times a week, then to weekly, monthly and now I have graduated to yearly. yay.... I no longer have that problem, and my eyes have almost went back to normal but I still have the redness and burning at times. I can go days without it then wham, they start again. Those of you that have went through all this and now in remission, can you give me some advice and did you have same symptoms? Do you have any problems now? I use lotemax up to 3 times a day, restasis 2 times a day, genteal gel at night, and systane drops throughout the day for dryness. I also sleep with head elevated. I am just so ready for this to be over with. April will be 3 years.
mmztcass
mmztcass
Do you take any Flaxseed oil or Salmon oil to help with this? How about taking the dry form vitamin A, with Vitamin E? Milk Thistle? FloraGlo with Bilberries and Lutein?

I do not use the eye drops once I began with the supplements little by little two and a half years ago.

I just have dry and gritty eyes at times. Much improved since adding the supplements...

{{{hugs}}} :-)
deleted_user
deleted_user
would it be okay for me to take those since I had my thyroid removed? I am on synthroid now. Will it interfere with it? I have got to have something help cause it is driving me nutty. My right eye this morning is bright red, and I can feel the vessels bursting its terrible. thank you very much hun
mmztcass
mmztcass
I would do the experiment and see if I could have this. I can't have too much Salmon oil. I take just a wee bit and then I am fine. If I took the regular amounts, I will find myself with a lot of energy.

Since you are on Synthroid, I would look into keeping any vitamins/supplements away from it by a few hours just to be safe.

{{{hugs}}}
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