There is a surgical option to fix Severe GERD, you might need to talk to your Dr. about it. It's called a Nissan Fundoplication and its very, very successful at curing GERD.

Unfortunately I am not a candidate as I have esophageal motility disorder also (I have trouble swallowing). But thanks so much for your comment. It is just nice knowing someone is out there.

Have you tried elevating your bed at the head by about 8 inches ? That has helped me a great deal... hope it helps alleviate some of your pain <3

Yes. I've really done all the stuff it is recommended to do...I eat a very bland diet, elevated bed, meds everything. The thing I'm doing now is trying to eat very small quantities of food all day...but that is only helping slightly. I'm under weight and probably only taking in about 500 calories a day...I don't know why I'm posting all this. Just helps to share. Sick of complaining to loved ones. Thanks for your response :).

Sorry you are going through this, I am feeling the same way. I try to keep up a good front for the sake of my children. Barley sleeping and eating and I have lost weight that I didn't need to. So far had barium swallow which was normal, I have a gastric emptying test Wednesday,a h pylori test 23 and an endoscopy 25th. I started to have feeling of something stuck in my throat in March,had bacterial pnemonia and was hospitalized in April, I had no cold or allergies..went to hospital with severe back/lung pain I feel there is a connection. Also the reflux has caused my asthma to flair up badly. I only have been prescribed zantac but it doesn't help been taking for 3 weeks..should I just stop taking it if it's not working anyway? Feeling so depressed.

I wish I had some advice for you. I'm down to 104 pounds too cause it is so hard to eat. I feel lucky I don't have kids as I can't imagine having to take care of someone else. It is weird that they haven't prescribed you with a PPI yet (like nexium - usually they prescribe those almost immediately) but maybe they are waiting for test results. Those pills help most people (not me unfortunately). Hang in there. Hopefully tests will reveal something that you can be treated more effectively for. I am assuming you are already doing all the stuff they recommend in the interim (i.e. raising bed, eating non acidic foods etc.)?

I'm really sorry you are going through this. I don't personally know what it's like but my husband suffers greatly from heartburn and acid reflux. He has been taking Omeprazole and rantidine daily and still has issues with it. He will wake up coughing and gagging and not able to breathe. Although he is working on a lifestyle change with healthy eating and trying to lose a few pounds, until he is o a good strict change he probably won't notice much change. He needs to see a GI doc especially since GI issues and cancers run in his family.

Hi I'm so happy right now that IV found a support group online. I have been feeling so alone in all over this. I'm suffering from the Sam thing. IV had relux all my life.. used to just cope on my own by belching to bring my wind up.. Only last year I got referred to the hospital as my throat was so saw.. started to read up on internet and panic over all sorts.. over 2 week ago now .. I stsrted to suffer from air bubbles coming up into my throat.. no matter how hard I tryed I cudnt get rid.. at one point I fought I was having heart attack.. they make the most wired sounds out my mouth.. has any ov you guys had this ???

I have a lot of stomach gas and belching and sometimes it feels like it is trapped in my throat and won't come out but doesn't make weird sounds. Lately I've been chewing a lot of gum...sounds dumb, but it seems to help a bit with with the moving the stomach gas along. Good luck :).

I have no advice for you. I am trying to solve the same puzzle you are. I can't believe how sick I have become in such a short time. It is nothing short of torture. But all I can say to you is what I say to myself. Power through it! Don't give up! Don't let this insidious ailment beat you.

this is just how I feel. The pain is constant. Like you, I'm doing everything I can to get some relief. Ihave a whole bunch of other health issues; just couldn't believe this is now on my "plate" too. It actually cheers me to hear that there are others who understand.

I know the feeling, I'm in constant pain and throwing up almost every day, and I've also been told there's nothing to be done. What gets me through gets me through is knowing that it's very common for symptoms to ebb and flow, and they will ease off in between flare ups. I hope you're doing ok, stay strong!

Have you looked into getting your gall bladder checked? The gall bladder can,if it's diseased, make the acid far worse. I had to have mine removed but before I did I,slowly but steadily, got to the point where the symptoms were so severe that(for 2 months)I was in severe pain 24/7,I was sleeping(not much though because I had stomach and chest pains and I'd,often, have trouble breathing) on a chair(that didn't recline), and I was having to eat baby food and drink ensure. Even with the baby food it was hard to feed me because almost all the brands preserved the food with lemon juice or citric acid if it hadn't of been for the ensure I would have become malnourished. Thankfully, at the end of those 2 months,I was able to get it removed. Point being it might be your gall bladder.

How are you doing now? Have you kept s journal off symptoms and food etc? I like to hear what the outcome is and if anything has worked.

I started one a couple months ago. I got reflux in August of 2016, for the first time. I guess it was reflux. Took tums, then Maalox, then Zantac, then finally had to get out on Prilosec. Worried for a little while, then got worse. Referral to aGI doc who put me on 40 Protonix. (Test after test after test). After a month I was feeling great, normal diet. Hated the lightheadedness and muscle cramping, due to low magnesium, potassium, and B12 so I weened myself off of all PPIs.

It was a wonderful feeling that lasted all of about 4 months. Then in this July it came back worse than before. Ended up back on Protonix, even had to double it to twice a day, because it was really bad. Stabbing Pain under my left rib. Stabbing pain under my right rib. Pain right in the center of the stomach. Bloating, cramping. Awful. Even started getting upper esophagus pain occasionally.

Here's what I did different this time.
1. Quit coffee. (ouch) I have a $600 espresso machine that is too die for, but I quit, cold turkey one month ago today

2.log every medicine, food, snack, drink and then note the symptoms I had during the day and when.

3 started juicing. Celery juice first thing in the morning. Sometimes juiced pears, apples, banana etc. I try to keep the acidity low and celery juice is key. And it's actually good, better than just a celery sick.

4. DGL tablets taste like crap. But they work. A little. But it is noticeable. Getting used to the taste.

5. Zinc Carnosine chewable

6. Aloe vera juice - cup a day

I don't always take the supplement, but I don't miss my medicine. Hopefully I can ween Myself off completey again, but for now I'm happy with Protonix. It's a 90% solution and I'll take that for now.

Hi wrs1974, I'm doing pretty much all you are except aloe vera (I was taking it for a while but found it was giving me some lower intestinal issues), I switched to slippery elm which I also had to stop as i found it was giving me stomach cramps. Anyway, my question for you is why the juicing? Is it just to get nutrients in or do you find a benefit? And why celery specifically?