OMG Stimpy... I would have lasted maybe a week not nine years. I would have offed myself. You are one tough lady. Four days after surgery my regular BM's came back and are still going strong. Good luck I hope you get relieve soon.

Hi, Stimpy - I'm sorry Tums hasn't been the miracle for you that was for me.

Hopefully, no one here gets upset at you for telling your story. You are right, your experience isn't what happens to most people - but it is still your story. My hope is that you find nothing but support here (and maybe even find some things that improve your ongoing digestive issues).

I understand your natural desire to use food to feel normal. When we are miserable, food can feel like a comfort. And, when people are suffering from debilitating physical issues, eating can become the only joy they experience in a given day.

What you wrote yesterday makes me wonder if the food you are eating may be contributing to your digestive issues. "Dumping" (which happens to some of us when we eat something too high in carbs or fat) can also involve explosive diarrhea. On the other hand, a diet high in dense protein (like chicken, shredded beef, tuna, etc) is usually correlated with constipation. I know you said that eating protein doesn't make a difference - but is that just adding protein, or sticking almost exclusively to protein? You've probably already done an elimination diet to see if specific foods (like dairy or carbs) are triggering your "crappy" issues... but if you haven't - you could try going back to a diet that is primarily dense protein, eliminating all white foods (bread, rice, pasta, sugar, etc) for a couple weeks. Personally, I dump on high carb stuff that most people think of as healthy, like yogurt and fruit.

I know you've resigned yourself to having explosive diarrhea for the rest of your life and aren't necessarily asking for "cures" - so please feel free to ignore me... I'm an eternal optimist and believe you deserve better!! I'm still hoping that someone here can offer you something that improves your current condition.

Much respect for your continuing to hang in there!!

JJ

imjjshort: You know, your probably RIGHT! I DO eat a lot of bread, basically I eat whatever I want, soooooooo.......it is probably me. I think I have kinda just go on to live life on my terms, if I am to be completely honest. My problem is, I am not a Meat eater. I am sensitive to animals, I know, I know, I am weird, I have all kinds of animals, I have goats, I got them to make goats milk soap and such, and they ended up being "meat goats"!!!! OMG!!!! Well, needless to say, they have turned into my "pets" I mean I look into their eyes and they have souls and we actually communicate. Sooooooooooo now, I have such a hard time gagging down meat, we have chickens, and I guess I could eat chicken and turkey, but NO WAY fish, I have never even eaten fish. I get tired of drinking protein drinks, and other than that, what is there to eat? I DO believe that the bad "explosive" diarrhea could be from high carbs. But honest to God, I have never ever had a normal BM, even the first two years out where I was STRICT STRICT STRICT with everything I ate. But yes, I am NOT THE NORMAL WITH THIS SURGERY. So I don't want to get people freaked out. I also have another disorder, and it COULD be caused from that. Who knows. I am glad I lost the weight, because, I ride my horses, I go to the gym, and I am physically active, versus being FAT, where I could do NOTHING. Soooooo......the Tums have seemed to help. I am also going to start drinking goats milk, it might have some enzymes in it. OKAY everybody THANKS! Going riding now!!!! Which I couldn't do when I was FAT!!

Are you taking a fiber supplement daily? I have found that I need to do that, so I use Benefiber every morning in my coffee. I had a problem with diarrhea prior to surgery when I was on the liquid diet. I suspect that a food sensitivity is causing you problem. Perhaps if you work with a nutritionist (nut) who can help you identify food allergies, you may find a solution. I have found that I have developed a number of allergies or sensitivities since having GBS. Good luck.

Do you think it's possible you have a food allergy? I'm guessing you've already tried this but maybe it's something your allergic to- soy, gluten, wheat, dairy, whey?

Who the heck knows? I have tried EVERYTHING. I have NOT had a solid BM since I gotta out of surgery. I am not kidding. I have been strict with the diet program. I have essentially given up. The last 5 days have been bad, and that means explosive diarrhea 4 times in the middle of the night. Sometimes not making it to the toilet, constantly cleaning with bleach. I have to use baby wipes so I don't get diaper rash from nothing but watery diarrhea. It sucks. I am not asking for any sympathy, I don't want to burst anyones bubble, again, this has been FOR ME. I have painful gas, painful diarrhea constantly. Who knows, maybe it has nothing to do with the surgery, the thing is I NEVER had it BEFORE the surgery. I've had colonscopys, NOTHING, done the gluten free diet. So far nothing works. I take Immodium AD, Gas-X probiotics, doesn't phase it. And A Fiber Supplement, NO WAY!!! I would really be in big trouble. Okay, well that's the way it goes for me. Glad everyone has had an exceptional outcome.