Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Your fibro story

CajunTiger
CajunTiger
OK, so I continue to be amazed by how many new folks join, having just been diagnosed, or thinking they have fibro.....Some ask our fibro story, how we became will, what led up to it, how many years, etc....I'm always happy to share, but can't always seem to type the whole thing out again.....

So, is there an organized place we can put these, so new folks can read more than one at a time? Those willing to share could type it one time, then direct folks to it? Or do we just use our profies and journals?

HUGS from down south :)
deleted_user
deleted_user
I don't know of a place but it sounds like a good idea
butterflybaby15
butterflybaby15
My story is this... I woke up one morming so exhausted and tired. This went on for a few weeks so I went to the doctor's office. He ran some tests and found out that I had the Epstein Barr Viris. Told me it would tae a while but I would feel better soon. Well a year later I was still in bed!!! I had seen him numerous, numerous times crying and crying because of how tired and exhausted and how much pain I was in. I was then diagnosed with the Fibro and the Chronic fatigue!!! This was back in 2001 and I have never been the same. I KNOW it was the Epstein Barr Viris that triggered my fibro and cfs!!!It'ds been a long hard road for me and my family. I have a great family and doctor who never ever gives up on me. Im glad you guys are here to support me and each other!!! Annalee
deleted_user
deleted_user
Cajun, I would think it would have to be each person's profile or a specific journal entry. Of course, the problem with that is we aren't all open to the public so to speak. Of course, if we were to type it up on a day that we were feeling especially energetic, say as a journal entry, there is always the copy and paste option. Just a thought.
Dolphin
CajunTiger
CajunTiger
Good thought, Dolphin! Sounds like a plan!

HUGS :)
mynameisD
mynameisD
My Cajun Belle,

This is a very good idea. I think that you should start a sub-group called something like share you story. Post the name you come up on the board for us to join and type out our stories/read etc.
deleted_user
deleted_user
Yep, you could do just that a sub group..Let people write their stories...It should have Fibromyalgia in the title so people will know "what" story is in three..Let us know OK?
deleted_user
deleted_user
I just knew you were a wise woman!
Loryn
Loryn
I think this is a great idea.
deleted_user
deleted_user
Sounds like a great idea!! Either that, or we contact the webmaster to add a category in our discussions here called our stories?? That way the new people that join can find it easily?? Just another idea...
Pollybizz
Pollybizz
what a great idea. The fibro hits us all so differently that it may help our the newbies.

I never connected my IBS, Migraines and tendonitis to fibro, figured they were all just individual things that I got hit with. After being on the boards for a while, nice to know I'm not alone and really not crazy!
CajunTiger
CajunTiger
Ok, guys, I did it!! I just posted a thread on this too.....I started the sub-group, called The Fibro Puzzle.....So if you'd like to share your story, and any info that has helped you, please visit it and post.....then we can direct newbies there!

http://www.dailystrength.org/groups/the-fibro-puzzle


HUGS from down south :)