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XMRV finding supported!

Narey
Narey
Have you seen?? http://www.prohealth.com/ea/EA082310/index.cfm?slvor=10435.1013346.0.1.0.381913&eid=n.arey@verizon.net

the NIH/ FDA study agrees with the finding of the MRV in CFS patients studied by WPI. Finally. Now, let's move forward!
Narey
Narey
there are now three different posts (at least) covering this news that came out today. Back when the WPI published the paper that said a retrovirus had been isolated in a large percentage of CFS patients, I thought they were finally onto something that could bethe first step on a road to a true treatment. But the NIH dragged their heels and pooh poohed it. WEll, today they published results of study that agrees.

This bears watching closely.
JOYHOLY
JOYHOLY
HELLO THANK YOU SO MUCH,I HAVE READ ALL THE INFO,AND I AM GOING TO CONTAC THE DOCTORS,I AM IN THE UK AND IF THEY WANT TO TEST ME ,THEY ARE WELCOME, I BELIEVE THE REPORT IS RIGHT, I HAVE SPENT A LOT OF MONEY IN A MACHINE THAT SHOULD HAVE MADE ME WELL,AND I AM STILL HERE SUFFERING,I GET BETTER AND THEN THE FLARE START, AND WHEN I STOP THE TRATMENT ,I START FEELING BAD ALL OVER,I HAVE TESTED IT AND I KNOW QUITE WELL,SOMETHING IS WRONG, AFTER 2 YEARS OF TREATMENT I SHOULD BE WELL, I AM NOT DEPRESSED ,AND HAVE NOTHING MENTAL TO STOP MY RECOVERY,I AM JUST ''ANGRY'' ,YOU ARE SO MUCH APPRECIATED,HUGS AND THANK YOU,LUCY..
Narey
Narey
Lucy, glad you found this info important. Good luck. I wasn't able to send you a message or a "hugback" because you are marked private.
deleted_user
deleted_user
What does all of this mean for us fibromites? I know the two syndromes intertwine...but should we hold our breath? I was planning on giving blood tomorrow at work for a blood drive, but what if Fibro is related to XMRV as well? I would hate to further contaminate blood supplies. Any thoughts??
deleted_user
deleted_user
we need to follow this closely! untill now i had doubts fibro and cfs was virus related, now i hope it is so maybe there may be a cure!
deleted_user
deleted_user
nicause - I haven't dared give blood since my dx because of a: no one knows (yet) where this comes from and I already have a hard enough with guilt and b: I take too many medications and it doesn's seem right donating blood full of rxs. What's everybody else do when it comes to this?
deleted_user
deleted_user
do we have a test here in the US to detect this virus? i'm aware canada dose
deleted_user
deleted_user
I feel guilty either way because there is a shortage, but I don't think I will donate just to be safe.
deleted_user
deleted_user
Finally! Hopefully clinical trials will start soon and help us already infected feel better and prevent others from catching this monster!
Narey
Narey
I actually did read somewhere a few months ago that CFS and FM patients were asked to refrain from donating blood until more is known.

There IS a blood test developed. it costs about $600 and insurance does not cover it yet. The institute who first published developed the test.
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