Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
PAIN!To try to get out of bed when everything hurts.What a sucky way to try to start the day.And its like the movie "Groundhog Day"No mattter what u do or dont or eat or anything there it is pain.Over and over again.I pray for a miracle for all of us.Why isnt more research being done.I feel like i have to justify myself with all my other disabilities that ppl are more familiar with.
My Rheumy said that they don't RX Vicodin because it is not effective for Fibro, but the major ingredient in Vicodin is a large dose of Tylenol and a small dose of hydrocodone. So, since I can not take NSAIDs I am told to take Tylenol...now I have a hard time believing that Vicodin, a larger dose of Tylenol with a wee bit of Hydrocodone would not reduce my pain level, since the main ingredient is...TYLENOL!
Geesh!
XOXO
I am new to the discussion board. I was diagnosed several weeks ago. I know it sounds ridiculous but it is "nice" to have a name to call all these weird symptoms. I was so busy with life that I didn't really sit down and try to connect the dots with what was going on with my body. Last year, I started having migraines with dizziness but I have a history of migraines so I didn't think anything about it. Then about 4 months ago, I started having come and go joint pain esp. my elbow. I also have degenerative disc disease and scoliosis (just found out about that). It seemed like when I got really tired my body would ache (just like I was getting the flu), I would take my temperature but everything was fine. I just thought I was really tired (which of course I am because I have issues sleeping). I am a nurse so I didn't want to "google" my symptoms, but hey I needed some answers. Of course, I met the criteria for fibromyalgia. I think that the symptoms that worried me the most (besides the pain) was the "fibro fog" I can remember sitting in a meeting with my supervisor and she kept trying to explain something to me and I just sat there and stared at her because I couldn't "connect the dots" to understand what she was trying to explain to me. I finally went to the doctor and he put me on Cymbalta 30 (I am now taking 60 mg once a day) It has helped with the body aches but I am soooo fatigued at times. It scares me because I am concerned about continuing to work (yes, the fatigue is that bad at times). I have never responded to an online post but I don't feel that I can talk to my family. They are used to me being the "strong one." I am seriously thinking about cutting back my hours at work (my doctor said he would give me a note) but I feel like i should be able to work through this. Thoughts? Your experiences? MomeRN
Someday, maybe they will take this disease seriously and do some real research for it.
Welcome to the newbie of the group. This is a great group as we can laugh & cry together & just when u think u r all alone u realize you r not.
Lisa