Amen, that would be a very welcome miracle for sure!


Take Care, Dawn

I know what you mean! I think this practically every morning.

I have the occasional rare morning when, just briefly after I wake up, nothing hurts.

Those times are so rare and precious that I literally don't want to move until I have to, because once I move, the pain free bubble bursts and its back to Groundhog Day.

Yes, it would be wonderful to have just one morning pain free! I can't even remember the last time that happened.

Never thought of comparing it to "Groundhog Day", but you hit the nail on the head. Everyday is just another pain day. Thank God some of my days I have less pain then on other days. I don't think I can remember what it felt like to get up and have no pain. We all just have to hang in there and do the best we can each day. Gentle Hugs, Bobbi

I with you on all that. I wake up and just lay in bed and say to myself please let it be different today. But i get up and my body feels like a truck ran over it. I try to make it down stairs to have coffee and thats just a big event getting down the stairs hoping i dont fall so yes i wish more would be done too.

I'm with you!!

My poor hubby watches me take those first few steps like the tin man and I always make sounds of pain... ugh.

Oh yeah. Before fibro, I was one of those morning people that irritated others with my energy and bubbly attitude. Now I'm a Grinch in the morning, grunting and moaning with every step. I miss my old self so much.

My first hour is usually accompanied with moaning and such. I can't remember a pain free day either.
Sometimes at night I say things like "anytime now, it's ok with me if I am healed overnight. Please, please...'

WOW! It would be heavenly to not be in pain in the morning and actually be able to get out of bed without thinking about it and wondering how to move or not move so I can get out of bed.
That would be amazing. I cannot remember the last time I actually got out of bed in the morning or actually anytime without being in pain.
***sighs***

You are so right! It would be awesome to jump out of bed like I used to instead of slowly rolling over and sitting up and having to stretch a little before I stand up so my legs don't give out under me due to pain and muscle weakness!

I have learned to stop justifying myself with other illnesses-yes, there are people out there who are definitely worse off than I am, and I am grateful that Fibro is not life threatening, but these things do not change the fact that I experience daily, debilitating pain that interferes with my day to day life.

I want to add that even though it may not make the newspapers, there is quite a lot of research being done on Fibro...Fibro is not static, there is no "cookie cutter" case which makes research hard, but people are studying, publishing and performing clinical trials.

Here is a link to the National Fibromyalgia & Chronic Pain Association. There is tons of info about what people are doing right now to raise money and awareness for Fibro...the site also mentions some of the more recent scientific research, and depending on where you live, there may be opportunities for you to get involved hands on.

http://www.fmcpaware.org/

There is also PubMed which is a pretty technical site, but if you just type in the word "Fibromyalgia" thousands of studies will pop pertaining to all different aspects of Fibro, so while we have no cure, at least be assured, that there are people trying to raise awareness and find the root cause of this Disease.

http://www.ncbi.nlm.nih.gov/pubmed

I hope knowing that research is being done, makes you feel a little more hopeful, and less like we are a forgotten population.

Best, LuLU

Thx LuLU.Part of my frustration is that i know i could be getting some releif with narcotics.I know ts not a cure,but when i was on them i was not home bound almost alwasy and the pain level was down.The government took that away(here in FL)and i've been on evrything out there(currenty cymbalta and other meds)I go to new doc in couple weeks and hopefuuly will get low dose naltrexone and have it work.I also have alot of other conditions going.Have you found meds that give u relief?I hope so>i wish us all pain free(or atleat less pain)

I agree and wonder why there isnt more drs out there just for this condition? I feel the same way honey and feel its not fair too. But if i get to deep into thinking about it i get depressed and feel bad for myself. I will not do that there are people worse than me i try to think that everyday.

laurjil,

I was living in TX and it was no big deal to be on narcotic pain meds-I had to move to the East Coast and I asked for my RX of Vicodin, and you'd think I just asked for Heroin...I can only imagine the note went in my file. I'm sure I'm black-listed now!

Like you, I have some other Chronic Diseases, so I have some other meds that may help Fibro,,,not sure if that by reducing the pain of other illnesses just makes me think Fibro feels better though? The only thing I am on specifically for Fibro is Skelaxin, but I take Plaquenil, which is not a Fibro med, but greatly reduces a lot of joint pain, Prednisone 4 days a month which eliminates all pain and I wish I could be on it every day, and then a bunch of benzos, that I think just relax me enough to feel less anxious.

So, I have no actual pain mgmt plan, and am not likely to get one where I live. I take between 11 - 13 meds at any given time.

When I was allowed to use Vicodin PRN I was on 7...that's a big jump, Effective pain mgmt, reduces the number of other meds you need to relieve even a fraction of the pain a narco can.

What sucks the most, is that this whole thing about not RXing Narcotic Pain Meds pretty much stemmed from a Dateline TV special...1 bad apple took away necessary treatment for so many people.

Best, LuLu

LuLu, I totally agree. I have prescriptions for 2 narcotic pain meds that I use very conservatively for my daily migraine and they seem to help with the fibro pain as well. I hate taking them so try to tough it out. Here in Oregon they changed the formula for Vicodin by taking some of the acetaminophen out of it and calling it Norco. It does nothing for me. When I complained the doc told me to take Tylenol with it - go figure!

I was taking Gabapentin (Neurontin), an anti-seizure medication daily as a migraine preventative, but have had to start weaning off because of side effects. But the best side effect was that it reduced my fibro pain, and I've read that others use it for their fibro. So every day - back to crawling out of bed and taking stock of my daily pain issues before I take that first step.