I don't know why I have it. I would say about 99% of us don't know exactly why, since the medical profession doesn't know.

And, yes, it does frustrate me and make me somewhat angry, but I don't want to dwell on that. It doesn't do me any good to stay angry about it.

But as someone pointed out in another post, all diseases started out unknown and misunderstood at first, so I choose to hope that one day we'll all know.

Anger doesn't get me anywhere - as fibrolizzy says all diseases started out with cause unknown and many of them still are. My son has a genetic condition and there is still no cause known but they have identified genetic markers for what. like FM, was once denied as a "real" condition so that's progress.

I prefer to say "solution based" and work on ways to live the best life I can live rather than dwell on the "why" that's probably going to stay unknown for my lifetime. I participate in research studies when I have the opportunity in the hope that I can have a small part in identifying cause and cure - but it doesn't change what is and that's what I have to focus on.

They've only admitted it's not psychosomatic in the past few years - and some doctors still don't. Considering how far they've come in diagnosis, treatment, and understanding in just the last ten years, I imagine they will figure it out eventually. I read some interesting research on poor absorption of nutrients that made a lot of sense.

They have to start somewhere with all of them. And since ours technically isn't "life threatening", I guess the researchers figure out there is plenty of time. How do you figure out what causes something no one can see?

From what I read on Fibromyalgia there is something wrong in the central nervous system of the brain telling the nerves in the muscles to hurt. The article said lack of sleep makes it worse.
As far as the brain fog my doctor said when the body is in constant pain it depletes our serotonin levels, which in turn messes with our ability to think cognitively.
My doctor says they are working on a medication to interfere with the pain signals, but it might take another 10yrs.
So for now, we cope.

I had chronic fatigue that was caused by a heart medication. The dotor wouldn't listen to me when I told him how I was feeling. Everytime I went to see him I had a fever and I was getting worse and worse. I actually got to the point where I could barely walk. I was lucky that I got a book that listed meds that could cause CFS and my new med was on the list. I stopped taking it and felt better within 24 hours.

I have no idea if the way I feel now is still a result of that even though I stopped or unrelated.

I got mine from a virus, which attacked my brain.

This is a baffling disease and i like to call it a disease because a syndrome sounds way too intense. Sometimes I get terrified about this deisease because i have no real idea what it is and what to expect as well as no doctors able to give me positive direction. Then I listen to me and my inner strength of survival and courage. We have to keep sight of our own role in this disease. We know how we feel, we can determine what makes us better or worse. The cure is really in our own hands. I am currently very againgst prescription drugs, this is purely a bandaid effect and will never cure the real problem. I am determined to get well.. We are pretty strong, couragious people to put up with such pain and fear and criticism from others. This is a disease that our modern day society has definately contributed to so lets all combine to get better naturally. Less stress, good diet, and whatever else it takes????? I dont know what the answers are yet but if they are out there i will find them..... G xx

I know alot of people who have it and then their mothers and /or sisters also have it.

Al of my docs have said that it MAY have been caused in me when I had Lyme's disease really bad, but nobody knows for sure!

I like everybody else, HATE having FM, it takes me twice as long to heal from things then somebody without it, I hate the moving pain, the brain fog, the pain that is constant, probably even there when I sleep!, But I deal with it the best I can!

Isn't this true for most desease such as most cancers, lukemia, als, ms? They have no answers for a lot more then just fm as to what causes it. It's true that a lot of people diagniosed with fm do not actually have it b/c at this point fm is basicaly a group of symptoms until they figure out what it is. I do think however that most people that do not actually have it will find out over time when things progress. However, it is very important to push for the most acurate diagnoses as possible.

Yes that why I researched for ten years and found out I had been poisoned by gadolinium based contrasting agents. Millions of people have likely been injured and don't even know why they are sick.

It's the medical industrial complex, they make millions off obfusicating the causes of disease only to create drugs that don't work so they can make a profit off the suffering and dying. It's a Ponzi scheme and I for one will spend the rest of my life exposing their dirty tricks.

They definetely should know what caused it. I have always been a highly sensitive person so i can feel others emotions and so i feel others around me and when i feel my own emotions they seem more amplified. I had pain as a child and as i got older i was just really depressed. But a lot of horrible stressful things happened around 2007 and i had it all bottled up. Then the fatigue set in and the pain. To me i think this is some sort of autoimmune disease and has gotten worse through mental, emotional and physical stress. Or possibly a lot of factors go into it. The pain spread through my body much like cancer would. I was 100% healthy and able to run, do and eat wahtever i wanted 4 years ago. Since it started i can't eat a lot of things. I can barely walk. And i am beyond exhausted due to poor sleep from the pain and can't help but fall asleep for little bits of time due to the exhaustion from pain. I think it is something in the blood they aren't looking for speicfically or something in the blood that has never been identified before.

Yes very upset a lot.i once thought all the stress in my life from childhood to adulthood and a lot of hormonal changes might of had something to do with it,but other people have had it worse and they don't have fibro.

I found out I had FM after I had taken hormones for menopause . The hormones caused me to have the worst headache for 3 weeks straight(one of the side effects). I always had aches and pains, trouble sleeping and tired all the time, but thought it was just menopause.Put after taking hormones the pains got unbearable. Just took them for a month, put have never been the same since. Can't say the hormones gave me FM, put I sure know that it did something to me.
I believe that other medication can bring on FM attacks and make it worst. Something has to be the cause FM.............

During the 2009 flu pandemic, I contracted a horrible case of H1N1. I've got asthma, so my immune system is somewhat in the tank anyway. I didn't handle the flu well at all, and wound up having complications--bronchitis, pneumonia and an infection in my jaw that required oral surgery to clear out. In the end, it almost seems like I never really rebounded. I have often wondered if H1N1 actually triggered my case of fibromyalgia.

Mine crept up on me then hit me like a brick outhouse