For those that dont know me well enough to know about my issues i just say things like im ok how bout you. But 9 times out of ten im just honest and sarcastic at the same time, something like "oh I want to rip off my legs, go fetch a new back and crawl into a hole, how bout you''? IAnyone who knows me just starts lmao 'n when i say stuff like that cause thats just me. u ask me a question ur gonna get the truth, i dont sugar coat nothin. I tend to wear myself on my sleeve and some people dont like that, but my true friends all love that about me, i say whats on my mind all the time.

That is why DS is such a great place to vent ... I use the same responses I'm Ok or surviving are most common for me to use ... hanging in there.. having a rough day sometimes comes out but then I leave it at that ... not to bad.....



take care gentle hugs

I always say that " I'm OK." Husband and close friends can always tell by my facial expressions and also my coloring. I turn very pale and ashen colored and loose my voice when I've having my " weak spells". I've found that most people certainly don't want to know unless they are experiencing the pain themselves. Always say that they would have to " walk in my shoes" . Fortunate for them that they don't. Interesting that when they have something that causes them great pain, they want to talk about it in great detail, and I just usually sit and politely listen. I just have to think that after the way they complain over the least amount of pain that they could not tolerate days with the unrelenting pain. I just try to have a positive attitude which is sometimes very hard to accomplish. I try not to even tell my husband the extent of my pain because I know after all these years that he has to be tired of hearing it. He can even tell over the telephone how I'm doing however.

excellent question I have often wondered that myself but never had anyone to ask.

I always say "I'm wonderful" and smile really big. There's a lady at my church..every time someone ask how she is, she gives a long list of how bad she feels and all the pain she's in. Everyne avoids her like the plague. I dont want to be like that. If I were to be totally honest I'd say I'm dying and in constant pain. It doesnt make me feel any better for others to know that I'm in pain ..so why bother telling them?

TWGarrett, normally i say im ok or hanging in there. sometimes i say do you want the truth or do you want me to lie. they get the message
that i dont feel good.
lita

I'm okay, is what I normally say. However to my husband and kids.

They went through a stage where they were hounding me with....I don't think so's or why do you say that, etc. I got frustrated one day and told them that I feel like crap on a stick 24/7. If I feel better I will tell you about it. Unless I say I fell great today, just assume that I feel crappy, but I am pushing through.

That seemed to answer their question.

These are the responses I have for my hubby.

"I'm doing okay" = Don't make me do too much today.

"I'm Fine" = Leave me alone

"It hurts" = Get the car ready, I may need ER today

"I'm feeling kinda good" = I think I can accomplish something today

"I slept last night" = Finally!

"I'm feeling a little horny" = I need 20 minutes of pain relief..I've got 1 more load of laundry to do!


Everyone else gets this...I'm doing fine or I'm okay.

I have found that most people just ask the question to be polite or have something to say, they don't really want an honest answer.

My hubby will usually ask " what do feel up to doing today?" instead of how are you and it works well because then he gets the truth and knows how to plan his day (or at least the parts that may involve me)

My mom doesn't have to ask she just comments "you look like you hurt" or "you seem to be moving a little better today" and I just go with whatever she says unless she is WAY off base

As for the rest of the family and the rest of the world I just give them the answer they are looking for like "doing good" , avoid further conversation on the topic and keep on going

I love what lilolejen says, only I really would throw people off saying that because I am a twin! HA! Hope she doesn't inherit this nightmare.

Hey Ali0203, I have never taken Savella before but I have read that alot people have very bad mood swings, stay in bad moods, and sweat alot while they are on this medication, and most of them have to stop taking it because these side effects are so bad.
Just thought I would pass some info along to you!!
debks

they ask me at gym, and i always say: "if I'm here, i'm ok."

My usual response is I am hanging in there.

I haven't had a pain free or fatigue free day in about 5 yrs now.

My husband can usually tell how I feel by the way I look and physically respond. When I've overdone myself, my face gets really splotchy red and hot (anyone else get that?). He says I show frustration in my face, too. I haven't learned to stop pushing myself yet, so I probably look constipated when I do things. Ha ha. Also, I can tell I get testy when I don't feel well and that has to stop.