Leo: Thanks for the trivia. Dealing with strict water rationing growing up doesn't sound fun, but I suppose nature will be ver grateful for your sparing habits. Good luck with the cleaning today. Horror movies for 24 hours? Lovely. *joins your husband on the couch*

Kel: Better safe than sorry indeed. One side of my family had loads of cases of skin cancer. I have to be very careful as well. Hope the day did improve from the keep on keeping on.

Bobbii: Sorry that you're having such a busy day on little sleep. It can be hard to get help for the things that are made difficult by fibro. Good luck, mean mom! I hope you'll get some rest after chores and bringing down the hammer.

Fantod: Break the deck down? I have no mental picture what this means. Just to winter-proof and put things away? I hope you had a good time a the retirement party and that you won't feel too poorly because of it today!

Idajoy: Sorry to hear about the poor sleep and multiple pains going on. I hope your errands didn't ruing your dinner plans to much. An enjoyable, painful night is better than an aggravating and painful night, I suppose? Hope it went as well as can be expected. Take care!

AngelaJo: Cheers for the pharmacist that is paying attention to the things that ER doctors didn't bother to check! How incredibly frustrating. Rudeness like that woman's in the waiting room would also not have gotten a polite response from me. She has no right to talk about your health while being ignorant about the details.

Bluesky: Daily headaches for two weeks? Commisserations. Headaches are very taxing on quality of life. And long shopping? Yeah, no. Not for me. Even when I was doing a lot beter health-wise, I had no patience for that. Great that you've already decided for yourself not to overstretch for the SIL visit that was planned without your consent. Very commendable to want to stand up for you health. I know I dont' always do it enough.

Milly: Fortunately I'm not having chronic nausea problems, but all my life, nausea and vomiting have been very present for me. I cringed in sympathy when you mentioned the warm tire store while queasy. Ugh. The other day I was making breakfast for my partner while fighting back nausea, when I dropped eggs in the skillet to scramble, I also had to scramble out of the room and to the toilet. The scent didn't agree with me. Hope your weekend is going okay. I really wish showers weren't such an energy drain. Take care!

Patty: How terrible that your county is so bad about granting disability to chronically ill. Like the flu, they say? Funnily enough, if they have a bout of flu, and you force them to keep working without taking any form of medication (flu meds suppress symptoms, most fibro meds don't) they would call it impossible and inhumane, even if they only have to keep that up for a week or two while sick. Suddenly they complain about how awful it is and how pushing through it makes things worse. Gee, you'd almost think that's what the chronically ill are telling you. Nice to see you in the check-in! Don't feel bad about not replying to all. Fellow fibromites should understand that we can't do more than we feel capable of.

I broke something today that was already a re-purchase from when I broke it a few months ago. I'm so mad. I can get so furious at myself over stupidity. Throw money that we don't have in the trash, why don't you? I'd punch myself in the face if it wasn't so unwieldy to do...

Have a good Sunday, everyone.

Hey, all, Sunday morning! I can recommend "The Conjuring 2", btw, which was creepy but not gory, and then I went to bed...
I seriously feel rotten. I realized I have gone 2 months without my daily long walk. Too hit and miss. Not good. I need that for keeping my leg working. Halloween resolution instead of New Year's?
Soft day to all.

Sonya, I hope you have a good day. I hate when I break something out of stupidity too. Sorry

Leo, Good Sunday morning, I'm so sorry you still have fleas.

Kel, I'm glad you got he moles removed. I need to schedule that appointment. I've never been checked and I have many that should be.

Bobbii, I hate that feeling of being on my mine with the chores and things. After being on my feet all day yesterday, who was still up getting dinner ready, bathing the girls, scrubbing chocolate out of clothes, and then getting my girls ready for bed and reading with them. It's exhausting. I hope you get some rest today and yesterday wasn't too bad on you.

Fantod, I hope you enjoyed the retirement party last night. My mom has a dolly like that, and we use it sometimes. I need one.

ida, I'm sorry you were out running errands when you should have been home resting. I hope you enjoyed the dinner with church friends. It sounds like a fun and painful time, :-). I second your comment on the fleas. LOL.

angela, I'm so sorry you had to talk to that crazy lady. I hope today is by far better than the last week. I'm sorry for all of your pain and dizziness you experienced.

blue, I'm sorry you are still being haunted by migraines. Your Costco trip sounds painfully long. I'm sorry you were late to your appointment too while waiting on your husband. It sounds like you have been busy. I would hate having my family or my husbands family come stay with me. I need my space and time to handle and deal with my pain. It's no fun doing that with other people in the house. Plus it will take more out of you when it comes to cleaning and hosting family. I hope your husband plans on helping a lot.

milily, I hope you get on today. I was glad to see you on yesterday. I can't believe you are still sick and having so much nausea. Are you taking anything for nausea? You should try to get a prescription, there are many medications that help with nausea, if you haven't already. I hope it gets better.

patty, I remember you. It is rough working fulltime, I work too, but I am lucky enough to sit most of my day. I can't imagine teaching like you and Bobbii. I hope you catch a break somehow.

We went to the Orr Family Farm yesterday with my girls, all of their cousins came from my side of the family, and my sister and her husband, and my mom. It was the longest 5 hrs. but it was fun. The girls had such a good time. I had a few rough patches of feeling like I was going to collapse, or that my left foot was broken and I wouldn't make it another step. Otherwise, it went well, haha. Today we are getting ready for church and then have grocery shopping.

I hope everyone has a good day!

A big hello to milily, patty, sonya, and twinmom. Hope you all have a wonderful day, along with the rest of the crew.

I had so much fun at our dinner outing with church friends. Despite fibro, arm, and knee pain, I was actually joking around like my old self, and enjoying my evening. God gave me a good evening, and I'm grateful for it.

My knee is getting worse by the minute. I went to church and was in pain the whole time. Hubby and I drove separately, as there was a big church meeting after the service. Those take forever, and I there was no way I could sit through all of that.

Tomorrow I'm going to my son's to babysit Tuesday and Wednesday. It is too late for them to find someone else, so I will be driving 3 hours with my bad knee....and then trying to chase after a 10 month old who has decided he knows how to scoot all over. When I come home Thursday morning, I'm going to be calling my orthopedic surgeon to get in to see him sooner than the 10th. Something is super haywire with my knee. Hurts like heck.

Football and packing for me today. Hubby has been doing all the laundry because it's in the basement and I can't do stairs.

Take care, everybody. We are in this together.

Hi everyone, sorry i am not around much or responding that much to anyone right now. My dizziness and vision are starting to get better (well vision to my new normal) still quite dizzy though! The antivert they gave me, which i TOLD them it wasn't vertigo iv'e had it before, makes me dizzier! Pharmacist said do NOT take it then. Also the nurse at the ER told me i was probably just having one of my panic attacks and that's why i was (am) so dizzy, ummmmmm iv'e gotten panic attacks as young as 4 that i remember, they never felt that way before and i wasn't anxious plus had my ativan in me! He said well you should go home and take half an ativan (Dr did NOT say to the nurse recommended it, he KNEW i had had my 1 mg already and that is all i can have in a day and i had already told him i can NOT have it after 5 pm due to my oxygen at night) with my trazadone and ill be fine and feel normal again. GRRRRRRR HE is NOT a doctor for one thing! Plus how could the hospital in good conscious send me home when i could hardly stand without passing out? They had to wheel me to the car and help me get in! I am SOOOO frustrated! And i was treated like i should not be at the ER, ummmm it wasn't my choice the ACU rushed me there and didn't even have me wait brought me right back and the Dr was waiting in the room for me! The Dr claims i had no rash BUT then why did TWO ACU nurses see it just starting on my arms, chest and my face was BRIGHT red???!!! I don't get it! Tomorrow at 8:15 am i see my neurologist after i see her nurse, then i see my Internal med Dr, and somewhere in there need to call my Urologist (best around BTW thankfully!) (plus BTW? Hes one hot looking Dr and around my age :P LOL and is familiar with PTSD) and tell him how they stopped the iv antibiotics and how i can NOT tolerate the oxybuytin? now sure i spelled it right, its for over active bladder, but SHOULD also of helped the pain etc when i pee and have to go. He had said that if it didn't work out he'd switch it just might take a few days to get it approved, i guess that one is about 8 dollars and the next cheapest is a few hundred a month, YEESH i can not take cheap drugs other than my trazadone and Zyrtec! My diabetes alone? Costs my medicaid about 2 grand a month, and i am on counting my supplements now 33 meds, the supplements are 9 of them and i pay those outta pocket, (cinnamon and cranberry are NOT that cheap BTW or a few other ones) and the low dose aspirin i pay but that's only about 4 dollars for 300 days worth at Walmart! The pharmacy said my total meds not counting the ones i pay, are OVER 5 grand a month, i feel so guilty that medicaid has to pay that for me :( I also have to talk to my Dr about, i missed a few days of my simvistatin not knowing it wasn't in my med box (oops) and in those days? I had a LOT LESS leg pain! I want to go off it asap! On something else, without it my cholesterol is over 500 (hereditary not diet, i don't even us any oil unless its olive oil not even in baking) with it its over all normal, but my bad cholesterol is Still high and good cholesterol way too low almost zero...... I have to call my cardiologist too because the palpation's are getting worse instead of better! Sorry i am rambling on i am just so frustrated and if i tell mom how i feel she just gets upset and so stressed and mood, i know she worries but she shows it in the wrong ways. The past week my migraines are back as well, i am wondering if i am dehydrated again...... That or the stress of the tests that cause PTSD could be doing it. I have to talk to my shrink, i see him Tuesday morning, first i see my case manager, then the new psych nurse, then the shrink, then rush to PT YEESH! Going to be a very busy week. i get weds off though! My depression is BAD, i want to cut so bad but haven't in months, not sure exactly how long anymore, i just wont let the demons win. I am better than that! He said if i wanted to after a month off the rexulti, if i still wasn't doing well i could go back on abilify or triliptel, i haven't taken trilleptal since 2008? or 2007? not sure which was abilify almost all the time since. Off the abilify (we did NOT know this was the cause its so so rare) my hair was falling out in hand fulls and very thin, well, since i been off it, its growing very fast and healthy, and i have always had baby fine hair, but its thicker than its been in about 10 years now, i do NOT want to go back on abilify unless its the only option now. My hair is finally growing too, i had it cut chin length on new years eve 2015, no one has cut it since (no split ends either) i do not dye it never have in my life, i do not blow dry or put any heat on it other than a hot shower, i haven't permed it since 2011, and its past my shoulders now, last few months alone, its grown 6-7 inches! in about 3 months! before that would barely grow! i can finally LET it get long again, before i was keeping it short for 2 reasons, My late abusive as heck husband beat me when i cut it without asking his permission, and 2 it looked thicker short, didn't look as bad and wasn't as shocked when it would fall out, plus no snarls to pull more hair out when i brushed it. Oh another trick, i mostly use herbal essence shampoo (but just tried a sample for a garnier frutis natural line that just came out i think i am switching to next month) but i do NOT use conditioner but about once or twice a week at most, figured out that was the cause of my hair being so oily, i just use it maybe once or twice a week if i wash it at night and i am finally till the next time i use it, also every few days i will use baby shampoo instead of my normal shampoo, it softens your hair naturally, but do not use the generic it doesn't work as well, i use Johnson's lavender baby shampoo, my hair smells amazing and is so soft, i used to only use baby shampoo which i am considering going back too actually, it just costs more is why i haven't yet. Cheap shampoo like Walmart brand or suave makes my hair oily like i haven't even washed it, i only can use a few brands. I know i am rambling, i hardly talk to anyone though and no one understands me like you guys. I have to wash my hair every morning because other wise by noon it look very oily. So for frequent hair washes baby shampoo is best even my hair dresser says that. I guess i should go eat, its almost noon and haven't had break fast, Went to sleep about 1030 last night woke up at least 6 times, at 4 am i was up till 7 then went back to sleep till 930. I am just so depressed i need someone to talk to so bad, i cancelled the new therapist i hadn't even gone to her and already knew i did not want too ill explain later.. BTW if you have one single spelling error on here it makes you find it before you can post i noticed, and my eyes are so bad it takes forever!

Happy Sunday!

Aloha, Milily and Patty! I was so happy to see you in the check in! I hope you keep coming back :)

Leo, I know what you mean about the daily walk. I hope you can get back into it. I haven't been walking around the block 4x / week since we moved. One lap in the pool yesterday and my muscles burned. :(

Sonya, I hate throwing money down the trash too when something gets broken. A couple days ago I glued a sauce bowl back together. It's probably junk, though... I haven't tested it yet for leaks or if it can hold food w/o breaking again. Thank you for the encouragement, btw. I do feel like I got railroaded for the Holidays. Not that I dislike his relatives, quite the opposite but... I just wanted some space after the busy year we've had (still having).

Twin, 5 hours of fun?? After 1 hour it wouldn't be so fun anymore, more like torture. I'm glad you got through it and the girls had fun. Being around their cousins and your sister sounds like good times. The giant chairs looked really silly. Good luck with grocery shopping. About Christmas... it's making me anxious because I'll still be getting my mom settled in and plugged into her programs and new whatevers... so I know it'll be mentally and physically tiring. The last thing I'll want to deal with is a house full of guests. And you're right about being tired and in pain... you want your space, not want to deal with people crowding you.

Ida, I'm sorry about your knee. I would definitely encourage them to find someone else. PLease don't force yourself to drive out there. When's the next time you se your doctor? Glad your hubby's been taking over laundry. What a nice man.

Went to the farmer's market yesterday and lost my husband in the crowd. I really hate that. He's so much faster than me, I turn around and "poof" gone. It happens quite often when we shop. So I tried walking around to look for him, then I just wanted out of there. I needed a couple of items I couldn't find at the store for making borscht. Anyway, this happened last time, too, the crowd gave me a panic attack and he was the one holding the car key. I *have* to have a car key next time. This can't keep repeating. My headache didn't help me feel any better.

We played around with the oldest form of photography called cyanotype where you "paint" a couple of chemicals onto a sheet of paper in a dark room. And then whatever object you lay on top of it, the sun will turn the chemical blue around the object. That's where the term "blue print" originated from. So, I did my 1st test sheet, only testing grades of 1 coat, 2 coats, and 3 coats of the chemical (obviously labeled) and areas where it the sun exposure was 1 min, 2 mins, and 3 mins. That way I could tell how light or dark of a shade of blue I want to use for my play-around art project. I might try my 1st one today. I'll try taking a "picture" of a fern using this technology and see what happens.

Then went to the pool and swam some laps together. I think that's the 1st time we actually swam together. Usually if he goes to the pool with me, he just sits in the shade with a book and waits till I'm done.

Church today. And then hopefully the rest of the day I'll just be focusing on art related things. I have oral surgery this week. Next week I have a follow up with my rheumatologist and get my blood work results for all those autoimmune related things. We still need to get mom a bed.

Angela, sorry for the bad time at the ER. Don't feel bad about your medical bills. It is the way it is. You have to take care of yourself. I take Oxybutinin for my overactive bladder. I have not have problems with it, and it has helped me a lot. Wish it would work for you.

Well, I contacted my son concerning my knee. He said they have options of people at church to watch the kids. They don't want me to fall when trying to carry the baby. I know I can't handle babysitting right now. They were fine about me not coming. My hubby found my cane, so I'm using that. That is how unstable I have gotten. I'll call my doctor tomorrow.

Angela, I'm glad you are coming here for support, I'm trying to rely more and more on you guys myself. I see that my husband simply doesn't like talking about my every day struggle. He may ask how my day went, but he really doesn't want to know. It sucks. I need a better shampoo, my hair keeps falling out. I keep thinking it will stop soon, since I haven't been on chemo for a few weeks. I'm sorry about your high bad cholesterol, medication cost, needing someone to talk too, (what happened to your neighbor friend?), and wanting to cut. Please stay strong and don't let those demons win. I am praying for you friend!

ida, I'm so glad your son is going to find someone else. I was with Blue on asking them to please find someone else. There is no way you should even attempt that drive, let alone tempt watching a 10 month old. I really hope your pain gets better.

Blue, I'm praying your surgery goes great this week. You are going to be so busy with moving your mom in, I think November and December are going to be so overwhelming for you. I'm praying your hubby helps, and that moving your mom goes so smooth. I'm glad you had a good swim with your hubby. I wish your husbands family could stay somewhere instead of with you. I don't mind doing family stuff, but I need to go home and have my own space afterwards too, so I feel bad for you.

Well I just ate some chocolate chips and now I need to get some stuff done. I really have a lot to do. I hate it all. :-)

Twin i been with mom and dad for a week now, so haven't seen barb in almost 2 weeks now :( My head is pounding bad right now, so going to rest a bit, but they HAVE to do something for my pain and migraine tomorrow, i been in horrible pain for 8 days with my back not counting my daily fibro etc! Plus my heads been hurting 99 percent of the time since Thursday, and it will not let up and right now its really bad. It is so hard when the person you are married to, does not even TRY to get it, trust me i know :( I supposedly made up my pain for attention? Ya, right, and i suffered for 19 months after his accident waiting on him hand and foot, he would want ME to do it not the CNAs that we were paying to be there and do it, he wanted MY cooking, ME to get him everything, ME to go shopping, as soon as id sit down (getting up is one of the hardest things for me pain wise) he would think of SOMETHING normally minor he wanted ME to do for him. I wonder if he did this on purpose......... He never had to do a single thing, even sitting on the couch he refused to help me fold laundry (woman's work) he refused to help me decorated the cookies he wanted me to make, he wouldn't help prepare meals which i only wanted him to do sitting stuff etc etc etc, and the therapists told him to do this stuff, no he wanted ME to do it all....... ARRRRRRRRRRRRRRRGGGGGGGG!!!! I just want to cut so bad today and mom does NOT understand that stuff.

Angela, sorry I didn't mean to skip you earlier. We must have typed at the same time. And when I came back to read yours, my husband and I got into an argument (been drama all day) so I've been off the computer since then. Anyway, I was going to tell you my hair gets oily too. Yes, Garnier fructis for normal hair works good or the baby shampoos. Also, if you find any shampoo with peppermint oil like Avon organics, that works well too.

Ida, I'm glad they found someone to baby sit.

Twin, I get that too about him not wanting to talk about it. Yesterday I mentioned how these headaches are such a pain lately and I hope when they do the surgery it will go away and he changed the subject to: "Hey, did you know it's a full moon out?" It's not like I was going on and on, just made a side comment. But I guess I complain too much?? Ugh.

My good mood is completely ruined today. It's been drama with the husband all day.

Blue, I hope your evening is going better. Sounds like you have had a tough time today. Keep us posted on when your oral surgery is.