Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi All, I had to go back to the hospital last night because of the pain and nausea. The PA walked into the room like she was mad at me and I was a criminal. I still feel so depressed from the whole experience. I dont want to keep living if this is what my life is going to be like, we cant afford for me not to work and i enjoy it but I've been so sick and have had to go to the hospital more than I can count. Last night was so horrible being treated that way. I am lost for what to do... I dont know when I.can get in to see the specialist down at Jefferson because she's on maternity leave. I would happily free my poor husband and give this life up.
How have any of you handled situations like this? How do you get the care you need while being treated this way?
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... observed a solar eclipse.
For all you know, they may have been called into work when it was their weekend off. Sometimes it just helps to ask if the person is OK or having a tough time.
If you truly feel that this person was out of line, file a complaint with the head of ER/the hospital. They need to know so changes can be made. On the spot, you could have demanded to see a patient advocate and hashed it out then and there. But, who thinks straight when they are feeling lousy....
You’ve been sick so much lately. I feel your level of frustration and I’m there with you. Make complaint if necessary and let it go. You have a husband and family who love you. We are here for you too. Take a deep breath, a step back and try to get some rest. Hugs!
I'm sorry to hear you've been sick. I totally agree with Fantod above. A patient advocate would want to know. I've had many a bad experience on the night shift with needing pain medicine. Here in central Texas, they're so afraid of drug seeking individuals they treat the real people with pain like criminals. I've had to report one or two. I'm told the night shift aren't always the best, but who knows, like Fantod says, maybe they were having a bad day. Try not to take it personal. I find that writing it out helps me get rid of it and process it. I get really agitated when I'm in a lot of pain and everyone does, naturally. I don't always deal with it the best at times and have had to go back and apologize.
My therapist and I have worked on how to deal with situations like this and even just talking to her about it helps quite a bit.
Now, I've been blessed with a good pcp that directs me to which hospital to go to for whatever it is that is going on. I found out the one I had so much trouble with had many many complaints and realized I was just 1 of them. If you have a choice of hospitals and you can be guided as to which to go to, I find that helps greatly. My last couple experiences have been so good. I've had caring doctors. I went to the our new teaching hospital that had a whole team, lol and the practicing female intern was so sweet. She alone eased my pain.
I wish you healing, empathy, soft gentle hugs and a path to getting better. God Bless, JP
Also, where i am, I avoid the teaching hospital. They're better quality care, allegedly, but the human factor is nonexistent.
Hugs.... and healing hopes.
I was treated that way. About 10yrs ago. That was the last time I went to a doctor for my fibro stuff. I was so PO'd I just was done with it. I adopted a don't ask, don't tell policy when it came to my fibro. It was clear to me after chasing doctor after doctor (based on the previous doc sending me to the next and next and next), that no doctor either cared nor wanted to deal with fibro.
Enough was enough.
I tried it all anyways. So I have sat in pain and agony ever since.
I am now thoroughly guarded about who will touch me and whom I will discuss my fibro with.
And for a while I was saddened by it all, now I'm full of anger over it. It really ticks me off that I feel the way I do.
I like what the others have shared. And to be honest, it's the best we can do, for we are at the mercy of these hospitals.
But one thing I have figured out. Interviewing a doctor prior to them treating you is best. You know exactly what you are dealing with then. But I understand that when dealing with a hospital, you don't get that luxury.
Maybe one thing you can do, is type something out now, small and precise, explaining that you have fibro and that you are not a drug seeker? Maybe have your doctor sign it?
What gave me that idea is in the world of Autism, some parents carry around these little business cards that explain what a meltdown is as people instantly judge you and make horrible comments in the moment. They think that you are a terrible parent and that their judgement would do you and your child a bit of good.
These cards are something us parents keep in our pockets when you have to run out to the store with our ASD kiddos.
Do they help? Kinda. They shut down the judgment so you can focus on what needs to be done. Do they change that individuals opinions? Well, that I don't know.
But I've thought about creating a fibro card. Ones for when we're struggling, in stores and etc, and then one for doctors and medical staff if they need to understand.
Again, I'm so sorry this happened to you Maynard! I want to say let this roll off your back. I want to say, just let it go. But I know how deeply it hurts and for that I'm even more sorry.
May my prayers reach you and comfort you today!