My primary actually told me today that I spend too much time on my health.

I cried most of the way home.
I can't give up, I want some energy back.

im sorry you are going thru so much. my doctor said its just fibro get use to it. after 5 years. they finanlly tested me for rhematiod arthritis. and it was positive. now im doing a little better.

you know your body. there could be some underlying issue, that they haven't checked

hang in there!

try another doctor if you can! even a specialist.. I kept going to my PCP and he couldnt figure it out and sent me to a rheumatologist, who diagnosed fibro my first visit... now my PCP treats me for it... keep trying, its hard, but you will find a doctor that helps.

I just switched primary Drs because my former one always made me feel bad and even though he said he understood fibro - I really dont think he did.

I have only had one appt with my new Dr - so we will see how it goes. At least I didnt leave her office feeling bad. I purposely picked a female dr - hoping to find more compassion .

SpaceGirl, you just need to keep listening to your own body and your instincts. The doctors don't live in our bodies or in our homes. If you feel that doing the juicing and other holistic things helps, then do it! If a med stops working or have never worked, don't take them.

There are NO meds that will cure this, not many that make us feel better and precious few that do more good than harm. I've been navigating this illness better without the benefit of doctors. I wish I had health insurance now because I need to have some lab work done, but otherwise, I feel so much better since I said "no" to the meds.

Many doctors blame the patient because they have no idea how treat fibro and many autoimmune diseases. They play roulette with our care and then when they can do no more....well....they become contentious with us.

Go with your gut and as others have said, perhaps find a new doctor. You might be better off with a osteopathic doctor than a specialist. Specialists have tunnel vision and won't treat you if it's not within their realm of expertise. Osteopaths tend to take in the bigger picture, and thus, may find something that the others missed. That doctor can always refer you to a specialist later.

One other suggestion..... have you had a hormone panel done? Hypothyroidism and weak adrenals are a huge contributor to fatigue. I poo-pooed the idea until one evening there was a lump in my lower throat and it wasn't my glands or tonsils, it was my thyroid. I found a wealth of info on this site:

http://www.stopthethyroidmadness.com/

They're not selling anything and it has great info even if you want to find out how to support the adrenal glands (which most chronically ill people have issues with). They even have letter suggestions to take to your doctor and also lists the specific blood panel to be done by a lab. Most docs only test the TSH and nothing else as it pertains to the thyroid.

You'd be surprised how many symptoms overlap between fibro and hypothyroidism. Since I've treated myself for the hypothyroidism my fatigue is almost non existent. I was pretty surprised myself and was a nay sayer for a few years.

Only you know if you're on the right track. A good doctor can help.

Thank you all for your support.
TheShari I read thru part of the website, I will definately go back to read the rest... Thanks so much.

I get soo tired when I go into see the dr, that by the time I see them I'm already worn out. Maybe I should write them a letter before I go, then it wont matter how tired I am when they finally see me...

I will keep trusting myself, and my dr has agreed to work with me to find someway to help the fatigue.

Thanks again all

Did you ever follow up with the neurologist? If not, maybe you might benefit by going because maybe your situation is more like mine? Oddly enough, I found the treatment and recommendations from my rheumatologist to be completely worthless. I wound up seeing a neurologist by recommendation of another physician. My neurologist's recommendations and treatments have been spot on so far and I am getting some relief or the first time ever. I'm not cured for sure, but any help is welcome and we are on the right track!! Maybe your issues are like mine, and they are neuro in origin?

I am sick to death of doctors ignorance. They should have a pill for that!

I think I'm spending too much time on my health as well. So, Dear Dr., find us a *&*%$ cure so we can get on with our lives! Or a least a treatment that WORKS. I would love nothing more than to STOP spending so much time on my health! Unfortunately, it's that or just go to bed for the rest of my life.

I love that Karen, I think the Dr's can use some nice pills.

I have an appt with the neurologist on Feb 14, 2012 - that was the earliest they could get me in. I don't even know if I should hope they can help. But I need to at least explore this avenue of treatment.

Thanks for the support Toni. When I get really tired, my hubby asks me if I'm going to crawl under a rock and die.

Is hard, Cuz When ya Do Not Feel Well, When Your In pain ALL The Damn Time, And You Have NO Idea as to The "Whys" of Any Of IT...It is Hard NOT To Get Consumed by It All..

We All Understand..

Hugs..We are All Either where You are with it...Or Have Been there...I Know I have to be sure.

"Too much time spent on your health?" I have never heard of such a thing.....I am utterly speechless!