I have never had that problem. What does her rheumy says or the specialist she saw about it? Has she been to a gastrologist?

I really don't know but I would take her to a specialist to find out because they do more testing then just a reg gp.

Speialists would help. Also, I know how bad pain can be---and I'm not being glib as any long-timers here will attest to what I went through re-learning to walk---but if shes' been bedridden mere muscle atrophy can be pretty effing painful. Been there, had that. We started with therapy in a warm water pool, and it really did help. Many here find that useful for gradual gentle rebuilding of strength in the muscles. It doesn't involve weight-bearing and you can just float for a nice "rest"

Good luck.

I have abdominal issues with fibro. More often than not my abdomen are tight as a fully inflated balloon due to fibro in combination with myofascial trigger points. It's all muscular and key is to keep moving despite the pain. Hunching is comforting, but adds to the overall problem. Can't win, right?

Hot Epsom salts baths or draping with hot, wet towels, followed by gentle massage and gentle stretching is very soothing.

It is human nature to stop moving when we are hurting, but we are actually hurting ourselves by not moving. Movement in moderation is important.

Hope your daughter finds some comfort in knowing that she is not alone in this.......Good luck

Thanks for the advice.
Magicpill, No specialists in this field that I know of in our little town. Unfortunately the budget does not allow for travel to somewhere bigger. I wish it did!
Leo, I think you may be onto something there as to the cause.
Lady, We tried what you suggested - success! thank you.

Glad to be able to help!

As a teenager one day I got home from school and had pain from the jaws down to the upper part of my Stomach. But she should get checked out. Hope she feels better.