Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I called the pain clinic yesterday about my spinal shot not helping and that my muscle relaxant stopped helping even before the shot. I was told by the nurse practitioner through the phone nurse that it could be addressed at my next appt - WHICH IS 3 WEEKS FROM NOW. So I said whatever and goodbye before I said something really bad because I was mad.
So I calmed down and called back and told the phone nurse that the Dr told me that if I had problems before my next appt to call and the NP or PA would help me and making me wait until my next appt with Dr is not helping me. SERIOUSLY!!!!!!!!!!!!!
So know I have an appt tomorrow with the PA. My expectations are extremely low since they have not done anything for me but stick needles in me twice and the shots have not helped. The first set of shots were into the muscles- toradol and lidocaine. I really believe I need an updated MRI of my back it has been over 3 yrs and that one was abnormal. I feel this pain clinic is not helping me and really does not seem to care about my high levels of pain in my lower back. I AM SICK OF IT!!!!!!!!!!!!!!!
In the meanwhile, I am trying to get a new medical Dr. He doesnt seem to get fibro and I lost my compassionate rheumy in September and no rheumys in my area will treat fibro anymore even though they are still on the lists. Aot of the Drs on the lists are psychiatrists- personally I find that offensive.
Sorry for the long rant. I HAVE HAD IT.!!!!!!!
So I calmed down and called back and told the phone nurse that the Dr told me that if I had problems before my next appt to call and the NP or PA would help me and making me wait until my next appt with Dr is not helping me. SERIOUSLY!!!!!!!!!!!!!
So know I have an appt tomorrow with the PA. My expectations are extremely low since they have not done anything for me but stick needles in me twice and the shots have not helped. The first set of shots were into the muscles- toradol and lidocaine. I really believe I need an updated MRI of my back it has been over 3 yrs and that one was abnormal. I feel this pain clinic is not helping me and really does not seem to care about my high levels of pain in my lower back. I AM SICK OF IT!!!!!!!!!!!!!!!
In the meanwhile, I am trying to get a new medical Dr. He doesnt seem to get fibro and I lost my compassionate rheumy in September and no rheumys in my area will treat fibro anymore even though they are still on the lists. Aot of the Drs on the lists are psychiatrists- personally I find that offensive.
Sorry for the long rant. I HAVE HAD IT.!!!!!!!
Maybe the PA will be better then both, hey you never no!
Hugs and good luck
Sue
Sooooo, two days later in Erlanger the Nuero finally comes to my room to update me. Now mind I am in there for micro stroke! He proceeds to tell me everything is ok now and I need to continue the heparin injections.
THEN, and I qoute, "As far as the fibromyalgia goes, it is a phsychriatic disorder. I know nothing about fibro and nor do I care to know. So get counseling when you get home!"
SERIOUSLY!!!!!!
Needless to say when the after care survey came, I had a lot to say!
What is wrong with people?!
Tonna
hugs to you
amy
It is so frustrating to work with these doctors and seems insurmountable to find a new one.
The Rhuemys in my area won't treat FM anymore either. We are kind of left out in the cold if our PCP's can't or won't help us.
4Solace, I'm very sorry to hear you had a stroke. Hope you are OK.
First of all (correct me if I'm wrong) but a pain clinic by definition is supposed to help people in pain. This totally boggles the mind. I am angry for you.
4solace: my question for that doctor is...if this is all in my head, why is the rest of my body in so much flippin pain?!!!!!!!!!!
I hope my PCP sticks around for a long, long time. I feel blessed to have her and her PAs.
Prayers are sent out for you. :)
Sorry no advice for you, as I have not yet developed my idiot ray gun and fine tuned it for fibro skeptics. I'll let you know as soon as I have it figured out....
Problem is there has been no other specialty trained to take up the slack. Should probably be neuros and pain specialists, but neither has really been trained properly in med school so it's falling between the cracks unless you have a PCP who is willing to treat it.
I'm grateful every day that I have both a PCP who is willing and a new fibro specialist who both treats my myofascial pain with injections and is on board with the rest of the treatment plan my PCP has been working with for years.
She would prescribe my meds if he wouldn't - but he will so for now we keep it where it is and she sees me and reviews things and injects any trigger points too stubborn to respond to less invasive therapy such as massage.
Great thread Milily!
YDLS- thanks, I am okay, a little slow to recover but no lasting effects.
Episeme-85? LOL! and I am a huge 80's fan, music wise. I can only hope he gets axed! I just happen to have an extra idiot ray gun lying around. Wanna borrow it?
Peace-it is amazing how quickly the shift from rheumys happened. I too am lucky that I have a great GP who backs me up, if I didn't, not sure I would still be here!
Tonna
I think I have pretty good luck when it comes to fibro. I had one GP who was silly headed when it came to fibro, and very young. Told him some fibro details he didn't know. Next time I came back he was 'teaching' me all kinds of stuff about fibro. Love it when GPs are willing to learn.
Milily - do you have any fibro support groups in your area? Perhaps you could get a good local GP referral from them? A lot of times you can call a local hospital info desk and they can hook you up with a phone # for the group, or someone who can help find it.