Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello all,
I have been diagnosed with DDD, some areas of stenosis, spondi--something or other in my neck, osteoarthisis, and have fibro.
I get spasms, and twitches, pinches and electrical type zaps throughout me body. And I have terrible migraines at least 2 times a month. My neuro says he can't find anything wrong with my nervous system even through the MRI of my brain should may white spots. He told me to "Forget about the white spots."
Sometimes it feels like I have a hot poker running through the palms of my hands. I have been tested for carpal tunnel syndrome and it is not that. I was wondering if anyone with Fibro experiences this feeling? , More recently I have been getting joint pain in different places my feet, when at rest, and during walking, and various patches of my skin seems to contract for now reason. For instance, on one arm, or on one calf, ill get goose bumps. Also, the skin of my right palm has been constantly so sensitive that I can't bare to hold a paper towel even for a moment.
Anyways, do any of you have that hot sensations in the center of your hands, and/or the joint pains in your feet or any other of these feelings? Just wondering what I can attribute these to.
Thanks.
I have been diagnosed with DDD, some areas of stenosis, spondi--something or other in my neck, osteoarthisis, and have fibro.
I get spasms, and twitches, pinches and electrical type zaps throughout me body. And I have terrible migraines at least 2 times a month. My neuro says he can't find anything wrong with my nervous system even through the MRI of my brain should may white spots. He told me to "Forget about the white spots."
Sometimes it feels like I have a hot poker running through the palms of my hands. I have been tested for carpal tunnel syndrome and it is not that. I was wondering if anyone with Fibro experiences this feeling? , More recently I have been getting joint pain in different places my feet, when at rest, and during walking, and various patches of my skin seems to contract for now reason. For instance, on one arm, or on one calf, ill get goose bumps. Also, the skin of my right palm has been constantly so sensitive that I can't bare to hold a paper towel even for a moment.
Anyways, do any of you have that hot sensations in the center of your hands, and/or the joint pains in your feet or any other of these feelings? Just wondering what I can attribute these to.
Thanks.
It is interesting you mention the vitamin D level. I was check recently. I was at 15. I have been on Vitamin D therapy for the past 11 weeks. After this week I am supposed to schedule at test to see what level I am at now.
Has the vitamin D therapy helped decrease any of your symptoms? As for me, I am not sure. I have so many things going on I honestly can't tell where one thing begins and the other one ends.
Don't get me wrong--I'm not feeling sorry for myself. But I feel kind of stuck. I think finding answers as to what goes where will help. I seemed to have gotten sick suddenly in 2007, and since then, it seems like I have been diagnosed with one thing after another. It is hard for me to believe that it is not all connected to one disease. What the name if that disease is is not apparent. However, my doctors insist that I stop looking for a way to tie all my symptoms in to one cause. They believe I just have a multitude of health issues.
I just don't understand who a multitude of health issues can hit a person all at one time and not be related to one cause. Do you know what I mean?
Sometimes my Feet and Wrists will Literally Feel Broken..I Mean B R O K E N ~ where I can put NO Pressure at all on those areas...this can last for DAYS..
I am a Journal Keeper, and have had Great Success in Finding What Triggers What...but not with that Pain.
Sometimes I Get Really HOT Hands...Not Swollen, Not Red...just HOT. Figure THAT One out...will last for DAYS.
I also get Electric Shocks..Back and Side of my head..thru my left leg...I have NO Idea what Brings it on.
Odd Symptoms...I could Write a Damn Book on Odd Symptoms.
Hugs Girl !!
All the pains and weird symptoms we have - it's driving me nuts! Yeh I get the twitches and spasms u mention. I have quite sore, tight leg muscles now. And biceps. And neck. My massage therapist is amazed at my tight muscles. Tells me I should stretch - as if I don't!
It's a bit scary having weird neuro symptoms. My aunt died from ALS so having twitches and weakness in legs and arms is worrying.
I hope you get some relief soon!
I have pain in my hands and feet a lot with my fibro.
I hope you feel better soon.
I really feel for you as well.I was had similar symptoms as you describe when I first was diagnosed. Hang in there. Symptoms do change. And even though they do reoccur there will also be periods of relief from the severe symptoms you are experiencing now. I pray for you the strength to endure until real and lasting relief finds you.
Sincerely,
Rsimmons
If you can afford to, using a good massage therapist who does deep tissue massage could help with the pain.
Please keep in mind that this is a long-term condition, and that there will be changes over time -- hopefully most of the changes will be for the good.