Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Several years ago, I began having pelvic symptoms that were so very uncomfortable. Some days all I could do was cry. The only way I could describe it was that it felt like I had to urinate constantly and felt like a bladder infection (along with a constant ache). I was tested over and over and result was negative each time. My PCP finally referred me to a Urogynocologist who dx'd me with Interstitial Cystitis with Vulvodynia and Pelvic Floor Myalgia. I cannot tell you how nice it was to finally have someone listen to all my symptoms and know exactly what I was talking about! I have had vaginal pain for several yrs prior but had no idea why. He even explained how my low back problems were likely related.
Anyway...I have tried many things over the years and luckily have been w/o severe symptoms for a while. That was until a couple weeks ago. I am in the middle of a big flare so when I read your post, I took it as a sign that maybe I could help someone else!
Here is a website I have found helpful as well.
http://www.pelvicpainhelp.com/
As I said...I am not a Dr. and do not know if this is what may be causing your pelvic pain but I wanted to offer my help.
I have never had that pain but last year found a rough patch on my vulva and went in to have it checked only to find it pre-cancerous cells. I had to have a vulvectomy on Jan 31 and I still can't sit without pain.
It's a place you have to sit on and not being able to sit or walk because of the pain in my feet makes my life very limiting at the moment.
PeacN2you, I have my consultation with the GYN on Friday, but have decided that I am going to discuss what the GYN suggests with my Naturopath before I decide to do anything.
I am really afraid of the Biopsy because I am one of those women with a Cervix that does not dilate, and I never recover quickly from medical procedures. Ugh! I'm clenching up just thinking about it.
Promise I will update as things go along. Thanks so much for your support. It really means so much to me.
Sincerely,
rsimmons