It's defeating to hear that the fibro pain is so non-urgent when it feels just the opposite to us. On one hand, there's no inflammation or tissue damage, only our discomfort, so our treatment is not a priority. But we are at the other end of the stick, stuck with waiting in pain with no help for such a long time. I'm sorry darling, we know how you feel. The pain puts everything in life on hold until relief comes...

So she apparently believes that just because there are a lot of people feeling that way, it's no big deal and we can wait?

I hope for her sake she never joins our ranks and is told "ohhh sooo many people..."

I know it sucks,When i say i feel like im dying.They will have my bloodwork back hopefully tommorow.I begged if i can come in after they get it.This is such a sucky disease.If i could pronounce all dx by DR. i would start saying i have all that, but nobody knows what we go through.I pray for all of us for help

Wow, that's horrible. My docs, thank God, never disregard pain as common or non-urgent--- but I spent a lot of years weeding out the idiots, alas.

There are too many of us with FM. Hugs, Laur and all others:-)

Trust me, I know what you mean about feeling like you are dying. My prayers are with you.

Before I got on the multitude of medication I am on now, I was taking D-Ribose 1500mg daily. It helped for a while. Helped with the pain and low energy.

So sorry you are feeling so bad i think all of us with FM suffer but in different degrees. Pain levels can be different for all of us. I truely hope that your pain starts to calm down soon.

I saw an article a few years back about what doctors and nurses really think about fibro patients and it was pretty much that we are all difficult to work with and whine too much. There is probably a lot of truth in that so it's probably not helpful to spout off to your doctor.

Hope you feel better soon laurjil

lauri,

I am so sorry that your Doctor is behaving this way. It is outrageous.
I wonder if your Doctor was in this much pain if she/he would "wait" until the blood work was back and suffer for days or weeks, I would think not. It is sickening the way this Doctor is acting and it might be time to think about finding a new Doctor.

Also not everything shows up in the blood so in my opinion a good Doctor would treat your symptoms and take the time to really listen to you. Why would a Doctor dismiss your feelings and your pain?
That is beyond me but I know that it happens and it is just so wrong.

Try a heating pad and if you can take something for the pain even if it helps a tiny bit that is better than nothing. Something over the counter.

Also you can always go to the Emergency Room. Just keep that in mind.

What is the matter with Doctors? It is so wrong to me.

Thx everyone.This is new DR. for me.First appt. he spent time with me.Unfortunately no DRs. in Florida will write pain meds anymore.I understand what the nurse said about getting bloodwork back but that will be tommorow.If i still feel like this i might just show up at office.Im paying out of pocket and spent alot with DR and bloodwork.I cannot wait 2 weeks.IDK does Er even believe in fibro or myofascail pain?

Hi laurjil. I'm so sorry for your pain and know how you are feeling. I too have felt as if I was dying. It's a very scary place to be.

In the meantime maybe you could try the following to see if it can give you some relief. Try taking an Epsom Salt Bath with hot water and soak. Also, if you have a heating pad try to see if it can help somewhat. I have 2 extra large heating pads I got from Walgreens and I also have a heated blanket. Maybe try getting some lidocaine in the meantime or some other rub on cream from the drug store.

Make sure your doctor tests your vitamin D as many of us with fibro have low vitamin D levels, and it can make your fibro fatigue and pain worse. Optimum levels are between 50-100; not the low lab value of 25 which is considered normal.

I pray you get relief soon!

Thx again everyone.There were like 10 different bloodwork tests.I've had fibro since 2004,but the myofascial pain is new.And DR. is new soo idont know what else he is looking for.But this state sucks.No pain meds anymore.Ambien hasnt even worked for sleep anymore.So now im still on cymbalta(lovely side effects-lol)doesnt do much but cant stop,now added low dose natrexone and so far nothing.I've been on everything else out there.Oh tramadol for pain-ha.ha doesnt touch it.