Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I have been dx'ed with fibro for two years. I am still not entirely convinced that it is fibro, although I am sure it could be fibro and something else.
I have a nice little cluster of symptoms that (while there are some in common with) very clearly point away from fibro and I have none of the classic tender points.
I was originally dx'ed by another dr (yay army) a couple of days before Christmas that year. My current doctor won't look at anything else. She has told me that my fibro is non-classical and presenting in a subclinical fashion. (insert wide eyes and surprised face here). The fact that my lungs have started to act up must only be allergies even though the allergy meds and the inhaler aren't doing a thing for me.
Anyway... I sprained my ankle very badly on Jan 6. I had a follow-up from the ER visit on Jan 23rd and I told her at the time (backed up with photos) that if something was broken as the xray said nothing was, then something had to be torn. She wanted to wait out the six weeks. So on Feb 16th, I see her again. Anke still isn't healing. We have the fibro discussion again and she tells me (1) I am overly sensitive to pain and (2) that she'll order an MRI as a baseline. It is obvious she doesn't think anything is majorly wrong with my ankle. So... in 36 hours I get a call back - SEVERAL abnormalities, a tear consistent with multiple ligament straings. The physical therapy referral was pulled and I am being sent to an orthopedist because of "options and prognosis". So I feel vindicated that I was right the whole time and now worried about what is coming down the pike wtih the ankle.
Meanwhile... I still hurt and I have NO medicines for pain or inflammation. I have two different allergy meds, something for my psoriasis on my scalp and the inhaler.
How can someone effectively find a good doctor when stuck in the US army medical Tricare prime hell? I refer to my current doctor as "she who is trying to kill me"
I have a nice little cluster of symptoms that (while there are some in common with) very clearly point away from fibro and I have none of the classic tender points.
I was originally dx'ed by another dr (yay army) a couple of days before Christmas that year. My current doctor won't look at anything else. She has told me that my fibro is non-classical and presenting in a subclinical fashion. (insert wide eyes and surprised face here). The fact that my lungs have started to act up must only be allergies even though the allergy meds and the inhaler aren't doing a thing for me.
Anyway... I sprained my ankle very badly on Jan 6. I had a follow-up from the ER visit on Jan 23rd and I told her at the time (backed up with photos) that if something was broken as the xray said nothing was, then something had to be torn. She wanted to wait out the six weeks. So on Feb 16th, I see her again. Anke still isn't healing. We have the fibro discussion again and she tells me (1) I am overly sensitive to pain and (2) that she'll order an MRI as a baseline. It is obvious she doesn't think anything is majorly wrong with my ankle. So... in 36 hours I get a call back - SEVERAL abnormalities, a tear consistent with multiple ligament straings. The physical therapy referral was pulled and I am being sent to an orthopedist because of "options and prognosis". So I feel vindicated that I was right the whole time and now worried about what is coming down the pike wtih the ankle.
Meanwhile... I still hurt and I have NO medicines for pain or inflammation. I have two different allergy meds, something for my psoriasis on my scalp and the inhaler.
How can someone effectively find a good doctor when stuck in the US army medical Tricare prime hell? I refer to my current doctor as "she who is trying to kill me"
Please know its not just your doctors who think that way....I've had some too. Just continue to do what you did....INSIST that something more is wrong. You know your body best!!
I hope the orthopedist is a great one, who takes excellent care of you. Baby that ankle, and let us know what he says!
HUGS from down south :)
In November I saw my 5th specialist who told me that he has no idea what is causing my symptoms, so he was going to say, for now, that it's fibromyalgia. He explained it as chronic pain for an undetermined reason. He said that it isn't a real diagnosis and that it's more of a category of unknowns. He is willing to treat me with medications starting next month but I still need to be constantly tested for other things, cancer being the big one that I'm checked for every time I see someone on my medical team. Even my physiotherapist checks my lymph nodes when I see him once a month.
So, maybe your army doctor just has no clue and that's why she is clinging to fibro. It's a category of exclusion and if she isn't willing to keep looking for something else I can see why she would just toss you in that category.