Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Muscles & Bones
/ Fibromyalgia Support Group

so lucky to have a local support group

Narey
Narey
Tonight was our monthly meeting. We come from a wide area and it's kind of hard to get there, a long drive in the dark, in the evening when we're pretty tired, but six of us were there tonight. Lots of talk about docs and diagnoses and treatments, meds, etc. I just feel really lucky to be able to sit down for a couple of hours and talk and share with others who "get it".
deleted_user
deleted_user
I wish there was a local one here in Orlando...but the only one I can find is out it Altamonte...which if I had a car, wouldn't be that bad, maybe a 15 to 20 minute car ride. That's nothing considering back in NY, you had to drive 45 minutes to do ANYTHING.

But I don't have a car. I used to say that I didn't go to that group just because of the time involved. Probably close to 3 hours on the bus round trip. Now? I'm scared to be on the bus for more than 10 minutes because I don't know if I'm going to get bus-sick and how bad that might be.

*sighs*

I'm glad you have a "real life" support system!
deleted_user
deleted_user
You don't know how lucky you are. Haven't been able to locate one. That sounds like a wonderful experience. Well worth the drive. I find that most of friends are healthy and just don't " get it". They haven't educated themselves and see the commericals on TV and think you can get a " normal" life back after taking Lyrica. Duh........
deleted_user
deleted_user
I wish there was one in my area too. Most people I know still have no idea what is the matter with me.
Narey
Narey
I DO know how lucky I am. But you can try to start one.... doesn't have to be a lot of people, and if you start it you can kind of control the direction. When i was much younger and had moved 1/2 way across the country with my little girl and dh, I walked around the neighborhood knocking on doors that had children's toys in the yards... a year or two later, up in New England, I put an ad in the paper to start a play group and got about 6 women and their children... about 13 or 15 years ago, I started a women's group, which grew to over 30 women. I am lucky that the woman who started ours did, but if she hadn't, I might have done it myself...

Put a post on Craigslist, or in the paper, or in one of those local newsletter/papers. Get in phone contact, maybe meet at a local diner or something at first, so you feel safe...

ugh, mary80, I hear ya on bus~sick. I can't do it!! no bus trips for me, even when I want to go!