Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
PLEASE HELP, I NEED ADVICE.
I read the "How do you deal with doctors?" post and I feel like everyone who posted is just like me.
I am crying now because I just went to a rheumatologist who knows I'm applying for SSDI but won't take the time to listen. IT HAPPENED TO BE ONE OF MY "GOOD" DAYS. He announced that I was "improved" because I didn't have pain at the moment I was there. He laughed at me when I tried to describe what I go through when I stand for awhile or sit for awhile.
I NEED ADVICE: SHOULD I FAKE IT WHEN I SEE THE DOCTOR?? SAY EVERYTHING IS TENDER EVEN IF IT ISN'T ON THAT PARTICULAR DAY?
I brought him a typed list, describing what I've been going through because my cognitive functioning these days is so bad I can't speak to him & he's always in a hurry.
I NEED HIM FOR SSDI. He initially made a good report, diagnosed me with fibro, and said my condition was "guarded".
My symptoms vary from day to day, and I've been resting more, so today I didn't have pain while I was in his office. So he said I was "improved" because of that, even though I told him I don't feel improved, I feel worse. I can't stand for more than a few minutes, and pain hits like a wall after sitting for a couple of hours.
He seemed to be laughing at me, as if I were exaggerating. I'M SO SCARED HE'S GOING TO TELL SOCIAL SECURITY I'M EXAGGERATING BECAUSE I WASN'T IN PAIN AT THAT MOMENT WHEN HE TOUCHED ME.
AM I SUPPOSED TO FAKE IT WHEN I SEE HIM?????
I DESPERATELY NEED SSDI, I HAVE NO INCOME. I try to work and then collapse, have been for 3 years and didn't accept I was disabled until recently.
Posted on 10/14/08, 06:10 pm
I read the "How do you deal with doctors?" post and I feel like everyone who posted is just like me.
I am crying now because I just went to a rheumatologist who knows I'm applying for SSDI but won't take the time to listen. IT HAPPENED TO BE ONE OF MY "GOOD" DAYS. He announced that I was "improved" because I didn't have pain at the moment I was there. He laughed at me when I tried to describe what I go through when I stand for awhile or sit for awhile.
I NEED ADVICE: SHOULD I FAKE IT WHEN I SEE THE DOCTOR?? SAY EVERYTHING IS TENDER EVEN IF IT ISN'T ON THAT PARTICULAR DAY?
I brought him a typed list, describing what I've been going through because my cognitive functioning these days is so bad I can't speak to him & he's always in a hurry.
I NEED HIM FOR SSDI. He initially made a good report, diagnosed me with fibro, and said my condition was "guarded".
My symptoms vary from day to day, and I've been resting more, so today I didn't have pain while I was in his office. So he said I was "improved" because of that, even though I told him I don't feel improved, I feel worse. I can't stand for more than a few minutes, and pain hits like a wall after sitting for a couple of hours.
He seemed to be laughing at me, as if I were exaggerating. I'M SO SCARED HE'S GOING TO TELL SOCIAL SECURITY I'M EXAGGERATING BECAUSE I WASN'T IN PAIN AT THAT MOMENT WHEN HE TOUCHED ME.
AM I SUPPOSED TO FAKE IT WHEN I SEE HIM?????
I DESPERATELY NEED SSDI, I HAVE NO INCOME. I try to work and then collapse, have been for 3 years and didn't accept I was disabled until recently.
Posted on 10/14/08, 06:10 pm
there was a time when Most of my days were good...then I hit the spot where it was becoming increasingly hard to work...then to the point where I became Completely Unreliable for an Employer...as My bad days started to out weigh my good days...I had a Great boss and it seemed Unfair, he was willing to Anything he could to help me Thru that point...but once it became clear I was not going to get to the other side...I put in my Notice...{He even Paid me for Time off} out of his own Pocket...I could Not, in Good Conscience Keep working for him...
Now I Never have a Day where One or More Symptoms are not present...usually Mild...but enuff to put me down for the day...my mild Symptoms are the "Healthy Persons" sicker moments...so when I say I am "Feeling Great"...it is the Equivalent of a healthy Persons "Bad Day"...this is Something your Dr. may be Missing...My Great Days are days I feel good enuff to walk out the Door...get a few things done BEFORE I Crash...but there is Always that Crash...in almost 1 year of doing Pool Therapy, Chiropractic care...4 years of having regular Massage...plus I Push myself...I am still Basically in the same Boat...just moving around in slightly Deeper water now...if I do very Much...{Really very little} I crash, and Crash HARD...How fair is that to an Employer ?? how Fair is it to Take a Job that you cannot do ??
create yourself a Chart...for one or 2 months...on that chart list Everything that goes On with you everyday...so perhaps he can see the BIG Picture...instead of a Moment...Chances are, it is going to take a year at best to get approved for SS anyway...get Real Proactive...do everything your Dr. says to do...keep records...and then put it all back in his lap...
I Do Work...but at the Expense of Everything else falling to shit...I cannot keep up with the house...all of deans financial records...Everything...while I am working...I am doing this short term while we are Extracting the Honey...it is hard, Physical work...and I am Proud of myself for getting myself to a Place where I can help him...but it has taken a Long time to get myself built back up...even this little bit...I doubt very much that I would be able to ever take on a Job where someone would have to rely on me...makes me sad to think of that...but it is a reality now...
If you Show him the BIG Picture...chances are good you would Not Feel the Need to "Fake It"...and he {if he is Any good} would Spot that in a Heart beat...
GL to you...a Prayer and a Hug...