Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi all,
Just wondering if any of you experience greater pain at night, like in bed when your trying to relax and sleep? I also have some psychiatric issues that require at least 8 hours of sleep a night. I have never been able to reach that goal. A lot of it is due to insomnia that I have had since the age of ten. But a whole lot of it deals with horrific pain I deal with at night.
I like to read and play solitaire in my bed before I go to sleep. I need the quiet down time from my job, my teenage boys, and my husband. All is fine for awhile and then it comes creeping up on me. Usually just my feet, ankles, knees and hands. Sometimes my lower back, my hips and collarbone. It starts out slow then all of a sudden.........BAM!!!!It hits me all at once like a bomb!!! It is complete nerve pain in my feet and hands and muscle pain in lower back and knees. My mom gave me 600mg of Gabapentin cuz it doesn't work for her. My doc has me on 300mg twice daily. I am seeing him next week and hopefully will get a higher dose.
I have Been taking my moms 600mg every night but lately I am adding one of my 300mg or sometimes even an extra 600 mg. I don't feel like I'm getting addicted, but it most certainly eases the pain. I was basically wondering if any of you guys have experienced this same pattern? Is there anything else you do to ease the pain?? Mine is so severe that many times I just sit hunched over my toes crying real tears and trying to massage my toes and feet. Any ideas anyone?? Thank you sooo much!!!!
~~~IrishRooster
Just wondering if any of you experience greater pain at night, like in bed when your trying to relax and sleep? I also have some psychiatric issues that require at least 8 hours of sleep a night. I have never been able to reach that goal. A lot of it is due to insomnia that I have had since the age of ten. But a whole lot of it deals with horrific pain I deal with at night.
I like to read and play solitaire in my bed before I go to sleep. I need the quiet down time from my job, my teenage boys, and my husband. All is fine for awhile and then it comes creeping up on me. Usually just my feet, ankles, knees and hands. Sometimes my lower back, my hips and collarbone. It starts out slow then all of a sudden.........BAM!!!!It hits me all at once like a bomb!!! It is complete nerve pain in my feet and hands and muscle pain in lower back and knees. My mom gave me 600mg of Gabapentin cuz it doesn't work for her. My doc has me on 300mg twice daily. I am seeing him next week and hopefully will get a higher dose.
I have Been taking my moms 600mg every night but lately I am adding one of my 300mg or sometimes even an extra 600 mg. I don't feel like I'm getting addicted, but it most certainly eases the pain. I was basically wondering if any of you guys have experienced this same pattern? Is there anything else you do to ease the pain?? Mine is so severe that many times I just sit hunched over my toes crying real tears and trying to massage my toes and feet. Any ideas anyone?? Thank you sooo much!!!!
~~~IrishRooster
You are not alone. I have horrendous pain at night too. For some reason the pain seems to amp up at night time. Hang in there.
Talk to your Doctor for sure.
I wanted to thank y'all for reading this and taking the time to comment or advise. You guys have given me some good ideas and knowing that others suffer at night also doesn't exactly make me "feel good" but....I hope y'all know what I mean!! I guess I don't feel so alone. You know it's weird, but my mom supposedly has fibromyalgia but she only has it in her toes! I have never heard of that before! And her doctor gives her 600mg of Gabapentin 3x daily and he gives her some sort of pain pills on an as needed basis and he gives her Flexeril! I'm seeing my rheumatologist next Tuesday and I will probably have to beg him to give me Gabapentin 600mg twice daily!! Oh well, I think just about the whole world knows my mom has below zero pain tolerance :-)
Thanks again friends! I will hope for you the same thing I hope for me: more and better research, more compassion and empathy, and someday a cure. Sweet dreams!!