Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
for a follow up since i got off cymbalta 1.5 moths ago.
we went over my medicine history: effexor gave me tachycardia, cymbalta put my colon to sleep (numbed it), amitryptaline & flexaril made me plain SICK, can't take savella due to it's listed side effects of tachycardia and constipation, Lyrica just plain SCARES me..... must i go on??
did i mention that i'm still having withdrawals from cymbalta?!!! i told them that! guess what the doc said? "well i think we should just go with the natural solutions, EXERCISE and PSYCHOLOGY." WTF? i told him i swim several times a week and i'm still in pain i can't sleep right. he said "well the psychologist teaches COPING skills, so we;ll go with that for now"
basically i just gotta "cope".... i'm stuck this way.
but i did tell them i'm following up with neurology soon and they want to start me on topamax (in junction w/ the gabapentin i'm on). oh i can't wait to see NEUROLOGY! i don't even know why fibro is still treated in the rheumatology dept. they are USELESS!!! at least the neurologist is motivated to help and treat me. they great me with open arms! and ask me how i'm coping and is there anything they can do to help me, etc. anyone else having issues with ignorant docs in the rheumy dept?
you know, there's more treatment than just meds out there that they could be tryin to get me! like water therapy!! i asked about it, and he just sat there and looked at me puzzled. i said i'm waiting to hear about it from my PCM and so far nothing yet! he COULD have said, "hey i'm gonna go check on that and make sure you get water therapy"... something's better than nothing!!!!
anyways.... i'm still having withdrawals, so if any of you want to try cymbalta be very careful. this stuff is one of the worst nightmare-ish meds i've ever been put thru. and if your doc is an ignorant dude/lady then go to another doc. in my case, i'm just gonna forget the whole department and let neurology handle it.
take care y'all and if you have any advice, i'm all ears!
we went over my medicine history: effexor gave me tachycardia, cymbalta put my colon to sleep (numbed it), amitryptaline & flexaril made me plain SICK, can't take savella due to it's listed side effects of tachycardia and constipation, Lyrica just plain SCARES me..... must i go on??
did i mention that i'm still having withdrawals from cymbalta?!!! i told them that! guess what the doc said? "well i think we should just go with the natural solutions, EXERCISE and PSYCHOLOGY." WTF? i told him i swim several times a week and i'm still in pain i can't sleep right. he said "well the psychologist teaches COPING skills, so we;ll go with that for now"
basically i just gotta "cope".... i'm stuck this way.
but i did tell them i'm following up with neurology soon and they want to start me on topamax (in junction w/ the gabapentin i'm on). oh i can't wait to see NEUROLOGY! i don't even know why fibro is still treated in the rheumatology dept. they are USELESS!!! at least the neurologist is motivated to help and treat me. they great me with open arms! and ask me how i'm coping and is there anything they can do to help me, etc. anyone else having issues with ignorant docs in the rheumy dept?
you know, there's more treatment than just meds out there that they could be tryin to get me! like water therapy!! i asked about it, and he just sat there and looked at me puzzled. i said i'm waiting to hear about it from my PCM and so far nothing yet! he COULD have said, "hey i'm gonna go check on that and make sure you get water therapy"... something's better than nothing!!!!
anyways.... i'm still having withdrawals, so if any of you want to try cymbalta be very careful. this stuff is one of the worst nightmare-ish meds i've ever been put thru. and if your doc is an ignorant dude/lady then go to another doc. in my case, i'm just gonna forget the whole department and let neurology handle it.
take care y'all and if you have any advice, i'm all ears!
Like I said...NOT impressed at all.
I'm thinking of going to a neurologist.
Wanted to see me every 4 months, I'd go, he'd have me raise my arms, bend over, touch the floor and say, OK see you in a few months, maybe we'll have something new to try.
I've investigated on my own, found MILD exercise helps, stretching helps a lot, and creatine a muscle building over the counter has helped the most.
Most of all, learned I can't sit or stand or be in one position more than 20 minutes. was hard to learn to pace myself.
Good luck
i hate brain zaps and hope and pray they go away soon. if you've had em, how long before they went away (in your experience)?
And God love the 90 year old rheumy I saw a few months ago! He was older than sin and completely ignorant of fibro! He didnt even mention the typical things you mentioned blue....which I already know of course. He put me on Lyrica and flexiril....I shouldve refused the Lyrica because Ive tried it before and it made me feel drunk, high, and mentally unstable all at once...but I was desperate! I was trying to stop taking Vicodin and do anything else.
Now Im back to square one. I think we have to keep trying. Easier said than done tho...
I hope you have better luck with your neurologist, and HUGS from down south :)
:)
I really hope you get some relief soon. Have you tried Boswellia?
I was having heel pain, he didn't look at my feet and told me I needed orthodics (sp) for my shoes. I asked him if it could be flare becuz they don't hurt all the time. he no you need orthos for you shoes and maybe invest in some ortho shoes. well my heel pain is gone now...I'm glad I didn't spend money on those expensive shoes!
wish there was a fibro guru! lol hugzzz
I took Cymbalta a while back and didn't have any problems with withdrawal but the doc started me immediately on Pristiq (anti-depressant). Possibly that is why.
I hope you are feeling better soon.
I had been bracing my self for a bit over a week. I have a rhume apt tomorrow. I havent seen a rhumi in years and then the last one I went to I only saw once because I was less then impressed. THing is I am having to jump through hoops to get my meds because Im pregnant and everyoe is scared to treat me. I found a pain doc that will prescrib my meds I have been on for a verylong time but I have to see a rhumi and they would like me in water therapy (which I am happy to do except I cant breath when I walk so how can I work out in a pool?)
SO I see the new doc tomorrow. I got the paper work in the mail and they actualy list fibro which is a bit encouraging, but we will see. I am truely worried that I will end up leaving in tears. At least I know that fixing my 'mental state' does nothing. I see a councilor AND a psyciatrist so they cant pull that card as a lets try this... They can run all the tests they wont minus anything with radioligy fr a couple months...
I truely hope my day doesnt end in tears. I forwarned my doc I might be a basket case so we shall see
and everyone else, thanks for being there for me, as always!