Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
after all the past rheumys that have pissed me off and ... gee i'm so tired of going thru rheumys like changing socks! hopefully this guy is good and i get to keep him.
anyways.... this new guy has been a rheumatologist for like 20+ yrs. AND he's been thru the Dept Veterans Administration system so he's familiar with the NIGHTMARE that i've been put thru through those guys!!! ugh!
so i saw him today and he wants to start from scratch with me. everything from when "weird symptoms" started happening in 2002 in my medical records, he wants to see it ALL.
"now that's some serious thick records!" i told him. but he said he wants to go thru it all. LABS, Radiology, whatever tests, and anything else i can pull up. he wants to see everything that they have done for me, and NOT done. wow....this is gonna be a long process.
and based on the long talk we have had (the non-restorative sleep and the snoring), he also thinks i may have sleep apnea. i told him that i have requested a sleep study in the past but have been ignored by other docs. well, that request is being ignored no longer! yaaaaayyyy!
on another update.... i've finished 2 moths of aqua therapy in a heated pool. now, when i mean heated, heated to like 93 deg F! did therapy for 2x a week. i gotta say that was the best p/t i EVER had! and i havent' had a flare since. yeah, i'm sore the following day, and i mean, i feel like i came out of a car wreck, but the day after THAT, i'm back to normal life again. i gotta say. it was WORTH IT! and i recommend it to anyone willing to try it!
alright folks.... cross your fingers that this doc is the right guy for me and i get to keep him! also that he is GOOD and can help me! take care ya'll!
anyways.... this new guy has been a rheumatologist for like 20+ yrs. AND he's been thru the Dept Veterans Administration system so he's familiar with the NIGHTMARE that i've been put thru through those guys!!! ugh!
so i saw him today and he wants to start from scratch with me. everything from when "weird symptoms" started happening in 2002 in my medical records, he wants to see it ALL.
"now that's some serious thick records!" i told him. but he said he wants to go thru it all. LABS, Radiology, whatever tests, and anything else i can pull up. he wants to see everything that they have done for me, and NOT done. wow....this is gonna be a long process.
and based on the long talk we have had (the non-restorative sleep and the snoring), he also thinks i may have sleep apnea. i told him that i have requested a sleep study in the past but have been ignored by other docs. well, that request is being ignored no longer! yaaaaayyyy!
on another update.... i've finished 2 moths of aqua therapy in a heated pool. now, when i mean heated, heated to like 93 deg F! did therapy for 2x a week. i gotta say that was the best p/t i EVER had! and i havent' had a flare since. yeah, i'm sore the following day, and i mean, i feel like i came out of a car wreck, but the day after THAT, i'm back to normal life again. i gotta say. it was WORTH IT! and i recommend it to anyone willing to try it!
alright folks.... cross your fingers that this doc is the right guy for me and i get to keep him! also that he is GOOD and can help me! take care ya'll!
Hugs
Well he sure sounds like a good doctor... wishing you much luck with getting things taken care of with this new doc. Glad the aqua therapy is helping.
Have a great weekend everyone
take care gentle hugs
Hot pool therapy sounds great.
I don't know if I could do water therapy, but I'm hoping soaking in a hot bath will help. Hugs!
I really hope this Rheumy will prove to be a great doctor for you.
Sherry
I am just so happy for you about the doc. I found me a doc like that and then she (bless her heart) took a director position up in Alaska. I seriously considered moving =)
So I'm searching again.
But I can't agree with you more when it comes to the PT/ moving on a regular basis. I seem to be able to keep flares at bay when I'm active. The more I sit the worse I get. I didn't believe this 2yrs ago.
But I've have learned that no matter how bad I'm hurting...it's never damaging (except to my ego). So I push myself and I can regain some sort of life back.
Again Sweetie, I am just so excited for you. Finally! Finally someone is listening!
Big hugs!
Please keep us posted on the new doc! HUGS from down south :)
so believe me, i've had my share of let downs. it's sad that fibro is not very accepted or missunderstood by many docs. i'm hoping it will change soon.
the thing that i don't understand... i was diagnosed with this crap by 2 diff docs in Dec 2005 and ever since then have been thru the whole roller coaster of "who is willing to treat me, who won't" thing- you know what i'm talkin about. on and then off different types of meds, etc. BUT at least several docs have CONFIRMED to me that it IS fibro.
but then (a couple weeks ago) the VA denied my claim again for service connected disability on fibromyalgia! and even worse, tried to tell me that i don't even have fibro! dude, the VA is so ass-backwards and corrupt, i really don't understand how they came up with that. especially since my medical service records show i started getting the symptoms in 2002 and i didn't even get out till July 05. should be obvious, right?
anyways.....so the problem isn't whether it's the right diagnosis (in my case). it's just a matter of getting a good doc who is willing to find out how far back does this thing go and is there any other contributors to poor sleep? or other contributors to symptoms that are being masked? these are the questions that all of YOU need to be asking your docs, too.
i don't care if my previous docs are assholes / ignorant. i'll keep LOOKING for NEW ones and firing the useless old ones. i'm hoping that this doc can help me with problems in all those departments, maybe then i won't have to get rid of this one. i hope.
best of luck to the rest of you who are still searching..... i'll be rootin for yah! and please don't give up hope!