Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Morning everyone. Today is Patriot's Day, the 6th anniversary of the Boston marathon bombing, and the first year the race falls on the same date. I don't have any additional information on anything interesting today, sorry. My weekend ended up being crazy. I mentioned that I was going to hang the door I bought, but I realized that the hole fir the doorknob was way off from my current doors. My own fault for assuming they were a standard height and that the ones in my house conformed to that. I don't have the necessary equipment to drill new holes for it, and it wouldn't look good with a second hole for the latch in the trim. So I decided to just paint the existing doors and change the knobs and hinges. Got 2 doors painted on Saturday and yesterday tried to change the hinges on the door to the bathroom Nox stays in, and when I got it hung the door wouldn't close. I tried messing with it until my hands made it very clear I had to stop. Bf came over and also tried to mess with it, but he says we'll need to use some tools and probably sand down part of the trim that isn't level. So for this week I have to close it by tying a rope to the doorknob and clipping it around the cat tree so Nox can't get out. I was so frustrated because I was looking forward to getting that done and I just created more stress for myself. It's also raining this morning, so I'm in a lot of pain. So I'm going to end witb this adorable picture of Nox, he's kind of an oddball kitty, and he turns into a little train wreck when he cuddles. He also likes to groom himself while lying on his back, which doesn't seem like the easiest way but what do I know? So that's what he was doing here:
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Welcome to the Perseid meteor showers, the "biggies" usually every year. (The Leonids beat 'em one year IMHO).AND today much of the northern hemisphere will see 5 to 99% solar eclipse. How cool is that? Your best bet is to be in the UK or norhtern Spain, where totality is excellent before sundown. Me, I'll get a super duper tiny itty bitty slice of it, so little that it won't be noticeable. New...
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... observed a solar eclipse.
Sorry you're stressed; I know how that goes. And the weather too....it stormed last night, and now there's a bit of snow. These wild temperature changes just make the ouchies worse. Nox is adorable.
I'm still feeling like I'm completely burned out and I'm struggling with my depression. My husband is finally seeing a doctor this morning for his ankle; it's been bothering him for over a month now. Of course, because he's usually so healthy, he is on a high-deductible insurance plan, so I worry what it's going to cost. I also worry that it won't be something they can fix so he'll have to live with it and just adapt to it.
My pain levels have been ridiculous, and it feels like I'm running out of hope. There are so many things I want to do that I just can't, and then I feel like I'm just letting everyone down, especially my husband. This is all in my head, but that doesn't make it not real, you know?
Wish you all a restful day.
Nox is too cute to bear:-)
ZK, I am the same. I'm letting everyone down. *sigh* Hugs.
ZK, I totally understand the feeling of letting others down. You're right when you say it's really in our heads, but it's real. Hugs and hopes that you can let that go today.
Leo, so sorry you're feeling the pain! Is your surgery still tomorrow? Hopefully that will help.
I'm actually having a good day so far. My right buttock is still sore (don't have a clue why) but it's not as bad as it's been the past couple of days. I made it to the gym yesterday, but my back and calves cramped up before I could do my 15 minutes. I need to stretch better and see if that helps.
Hoping you all have a good day today!
Leo, I'm sure your arm is a mess with weather change. I'm praying for a complete recovery. How long will you have to do PT and expect to get full function of it back?
ZK, I really hope your hubby's bill is not so bad. I wish you could get a break and not feel so overwhelmed. I know how you feel though. It's hard handling this pain and working a full-time job. Hang in there. I am praying for you.
painedone, I hope your butt starts feeling better. Try more magnesium or an electrolyte mineral mix. I like Trace Minerals 40,000 Volts electrolyte mix. It helps my cramps.
Fantod, my mom throws fits too, it's exhausting. God help us!
blue, my husband works 7 days a week now. He isn't even off for Easter weekend, he won't dye eggs with them. And truly I don't want to miss out on that memory with them, it just sucks being a mother with pure exhaustion and weakness. I'm going to try and get more done this week after work so I can focus on my girls this weekend and just do food prep for surgery days.
One more full week of work and next Wednesday is my surgery. I am in hyper mode and racing with things that I need to do. This morning I washed all of my light colored button up shirts so they are ready for work after the surgery. Last weekend I washed my colored button up shirts. I asked my husband to do a parent teacher conferences this Thursday night because I'm overwhelmed, and he tried to guilt trip me, like I don't want to know what's going on them at school. You guys know I talk to their teacher through email, and I talk with the specials teacher and tutoring teachers all the freaking time. I have a meeting for Maddie's plan this Wednesday, those are separate from regular teacher conferences. I'm so sick of not having a supportive and helpful husband.
Rant over sorry. I hope everyone has a good day.
Miki, Nox is adorable. As for the door? All home projects start out as something "easy enough" to do. Then spirals into, well crap, now what will we do? moments. Doors are some of the most finicky projects. I have seen even the most skillful men take an entire day trying to hang or adjust them. It's kinda like a dash board. Once it gets pulled, it never quite snaps back together the same as before. Don't feel defeated.
Zombie, I think today is a good day to remind us all that we are often too hard ourselves. We think and create what our days are supposed to be like. And when we can't accomplish that, we feel like we are failing. But when we take a good hard look at ourselves through our spouses, friends, and families, eyes, we become more than enough.
I realized this a long time ago when our boys thought I was as old as dinosaurs. Now, I could look at it like, great, I must look ancient today, hair all a mess and bags under my eyes. But instead I ran with it. My boys treated me like a rock star for a week, and I finally broke the news that dinosaurs lived long before I graced this fine earth.
The point I'm trying to make is, others see us in a different light. They see us as someone special, someone they look up to or trust in. That is what we need to be. We don't need to be a "work schedule", a cook, a maid, a-fill-in-the-blank" to meet the demands we place on ourselves. We just need to be special, we need to be love, and trust and all of those other great adjectives people use to describe us.
I do hope that today brings you many joys.
Pained, I'm glad that you're getting on track to feeling better. That is always awesome. And yes, stretching is so important. Also increasing your electrolytes. I loose a lot of potassium for some reason and I cramp up often. I'm so much like my grams and mom that way. So I am always keeping on top of that even if I don't work out.
Twins, I know my hubs would also not know what's going on and try to get me to go instead of him to the conferences. But I'd also toss back in his face, that I'm not a single parent, so quit treating me like one. (aka, step up there dadio!)
I think it's a fine piece of work your hubs calling you out on something he clearly is doing! I'm sorry he pulled that on you. And I don't blame you one bit for being sick and tired of it all.
I hope you can get all that you need done before your surgery. I'm sure it feels like you're working against the clock. But it's also exciting that it's only that far away and the possibility of you feeling better has me so hopeful for you.
I have a full schedule this week. Today is carpet cleaning, and I run to pick up the eggs (I ordered them from a local farm, so they are all of those beautiful natural colors..we're not dying eggs this year, so I wanted something pretty to set out). And then I play beauty shop tonight also with my sister.
Tomorrow is dog training for Sargie. And the week finishes off with contractor work, and doctor appointments for the boys, and more birthdays, and Easter prep.
I'm off like a whirlwind.....Hugs to you all, and to all who follow too.
My body is waging war over IDK what. I think the flare is calming down but the IBS is ramping up and our weather is absolutely horrible with storms so I'm achy all the same. As of now I am stuck to eating very basics and even that sends me running for the restroom with pain shooting through my hips, lower back and stomach. I am doing my best to figure out exactly what I want my life to look like on a daily basis, to get back to my happy and find out what it means to be calm, or centered, or sure of myself, or any of those things along that line. I have literally started writing things down that come into my head.
Zombie please don't loose hope. And just because it is in your head does not make it any less valid, if anything it means you have more power to change it. Or so my therapies says.... honestly I'm still working on it myself. Just know you are loved and worth love and worth find your new happy now matter how you feel or what you are now capable of.
Leo, you are not letting everyone down, I am sure of it. You have a broken arm on top of fibromyalgia. Just like I told Zombie, you are loved and worth every ounce of it.
PainedOne I'm glad you are having a good day! I am going to the gym for the first time tonight. I have a meeting with a personal trainer, we're not sure if we'll actually start work tonight given how i've been but he is hopeful that strength training will help with the pain. And they have a hot tub and sauna!
Twin please don't apologize for the rant, that is what we are here for, support each other and let each other rant. As for hubby, he doesn't have a leg to stand on. It is he who needs to learn to be a supportive husband and father. Just do you and know that we are all here to support you.
Angela I am so sorry your Mom broke bones and then all of the stuff you guys went through to get her to the ER. It's no wonder your back hurts from the stress and trying to lift her! Please be gentle with yourself today and spend lots of quality time with your heat pack.
Wonder good luck with all that is on your plate this week! I love your comment to Zombie, I think I'll try to take that same advice. I hope that the carpet cleaning goes well. I love coming home or walking into a fresh clean room, it's so satisfying. Now if I could just get a maid! LOL Wishing you the best.
Sending hugs to Blue, Fantod, Bear and the rest of our wonderful gang.
More genealogy stuff today. I have to figure out what I'm printing and how best to organize it. I understand what I'm looking that but my audience may not. I will be doing that exclusively from now until dinner time.
Miki - I *love* that picture of Nox. I am sorry that your door stuff did not go as planned. I hate that when it happens. Try just to let it go for now. It will get straightened out. Hard to believe that its been six years since the Boston Marathon race that went down in infamy. I sure miss that part of the world. Last night my partner said we should take a trip out there. Just get in the car and go. I'd love that. I hope that your day turns out OK and that you can destress some how.
Zombie - I hope that Hubby's ankle is an easy and inexpensive fix. Sorry that you continue to struggle so much. I hope that you can find something that makes you smile today.
PainedOne - Good for you on going to the gym. I need to get out more and at least go for a walk or something. Pretty soon, I will be outside making mud pies in my garden but that is not enough. I hope that the rest of your day is decent.
Twin - Your Hubby is a jerk. These are his kids and he doesn't want to be bothered with a parent teacher conference??!! I'd have to brain him with a cast iron skillet or something. Does he not realize that the girls tune into the stuff that comes out of his mouth??? Boy, your surgery is coming up fast. It sounds like you are getting pretty organized whether you think so or not. Have faith that it is all going to come together. Lots of support and hugs. Stand by for receipt of the skillet... I'm including chocolate so you'll feel just fine after the massacre...
Leo - I bet that your arm really doesn't like any weather changes! I was glad to see that you have thumb pain. Not pleasant but a good sign. I hope that you can get some rest today and things are slowly improving.
Shout out to Bear, Maynard, Milily, Blue, AngelaJo and Autumn. I will check back later if I don't drown in genealogy paper work.
Maynard - I sure wish that things would settle down for you. It seems like one thing gets handled and something else goes haywire. Thinking of you today!
Last night as I was laying down for bed, I heard a banging sound in the distant outside, like near the road. It was loud and startled me. Then this morning my husband told me that some crazy lunatic stole the landlord's truck, on it was attached their fruit stand. Flipped the fruit stand over when trying to escape the driveway and in the process, banged my husband''s car. The fruit stand detached and they flipped the truck over down the road at or over a bridge (the cops said). I was so tired, I guess I slept through the commotion.
I have an appt with the ENT today for the results of my vertigo test.
ZK not feeling like we are enough or are letting people down is a theme we all go through. I try to not look at what I can't do but what I can. I can encourage, love, support and those things are special.
Leo I hope your day gets better. Pain is hard to ignore especially when it is in your face. I hope you find things you can enjoy.
Pained One I am glad you are having a better day. I hope your butt feels better as the day goes on.
Twins your hubby is an A$$. I am sorry you can't seem to get any help from him. Just tell yourself one thing at a time. Hopefully as time gets shorter for the day of your surgery he will figure it out.
Wonder wow you have a busy week I think just watching you would wear me out.
Maynard I am sorry your body is giving you such a hard time. I hope it settles down soon.
Fantod carpet cleaners seems to be a theme this week. I want my partner to run ours to freshen up the house. It is amazing how much dirt we drag in. We even change shoes when we come inside. Is there a way you could do the genealogy on disks?
It is sunny right now but rain is coming this afternoon. I am working on a quilt today as long as my arms will let me. I had coffee and lunch with my daughter yesterday and did groceries too. Today I am worn out and a touch me not. It is always a fun time with her but I pay so much for all the running she wants to do. She doesn't drive so she plans all her running around our times out. I just don't know what it will take for her to understand my limitations. By the time I dropped her off I was spent and still had shopping to do.
I hope you all have a good day. Waves at Blue and Ida.
ZK -- I am sorry you're struggling so much. Don't know much to say about hope, because I'm not a person of hope but a person of action. I look at each day as a chance to do "something" and some days that something is way more than others. The days I lose in bed, well, clearly I needed the rest :).
Leo -- So very sorry to hear about your arm! I don't know if your arm hurting takes away the pain from everything else or is just one more thing? I find that to be the case sometimes, when one thing gets so bad it eclipses the rest of it and it's sometimes OK.
(Only someone with fibro would get that one thing hurting like hades is better than everything hurting at once.)
Pained -- May your good day continue on and not be a pain in the butt -- LOL!
Twin -- So PuppyDad has asked me to ask him for help because he doesn't know when I feel like I am struggling because apparently he cannot read minds. So what I do is say, "These are the things that need to happen and I need your help: thing one; thing two; thing three. I know you are good at thing three and hate to do thing one. So if I do thing one can you help with three?" What usually happens is that he'll say, "Sure I will do thing three and I can help you accomplish thing 2 by doing this part of the task." Sometimes it's like we are hashing out a business deal, but it does get things done so whatever works! It also goes both ways, so when he is getting overwhelmed I will reciprocate by helping with a task that he needs to complete or I will do his laundry or make a sandwich or something that is helpful, because most of the things he does I don't have the technical skill to accomplish.
AngelaJo -- Rest! What a night you had.
Wonder -- I once told one of the kids from work that I used to ride a dinosaur to school. He believed me and thought it was super cool! Clearly the moisturizer isn't working as well as it should if I look a few million years old.
Maynard -- That's me to a T! The only way to calm the storm in my skull is to get that s&*t out on paper. Then I can make a plan of attack. I keep little journals around all the time for this reason.
Fantod - I got so tired of cleaning carpets that we put in pergo and tile through the whole house. I threw out my carpet cleaner. (It had sprung a leak and was spewing more H2O than it was actually getting in the carpet.) Then I realized I still have upholstered furniture!
Blue -- You were sleeping! And with everything else that is going on with that cottage, I don't blame you for not looking into the noise.
Autumn -- My mom knows that I don't drive much, so SHE wants to do all of this running around when she's here. She lives very rurally and doesn't really have close access to all of the shopping I have pretty near by. But she also doesn't use computers so she doesn't realize that I pretty much do all of my shopping online. I find I have to ask her to slow down.
I have been under the weather for the last 3 weeks. My husband and I took down 12 trees on our property over a weekend and I got into something that I was hugely allergic to. Maybe poison ivy maybe something else. The following Tuesday my boss had to send me home from work because I oozed through my clothing and then through the gym clothing that I put on to wear. I ended up at urgent care with the equivalent of 2nd degree chemical burns from my knees to my waist on both sides and then also on my hands/wrist. I even had some places on my face. Had to take prescription meds for several days and used a special soak. I was also out of work for 3 days because I could not put on clothing. Today is the first day that I can wear pants for any period of time. I wore skirts at work. So I've been trying to keep up with everything on here by checking my phone a few times a week. Contractors finally started work on the house, so of course it keeps raining and delaying the project. After 3 years of looking we finally found a living room set we both like and it was WAY on sale! And we almost purchased a 17 acre farm, but it was located in a too remote area for Hubby to find work so we decided against it (it was for sale for less than the price of a house; the person died and family wanted to unload the property.) Staying off here a lot because my eyes are giving me problems again.
Twins, your husband doesn't want to go with the girls so he is trying to guilt you into it. He deserves to sit in the time-out corner and write on the board 500 times "I will be a good dad to my daughters and take care of my family" !!
Puppy, holy cow! Did you ever figure out what came into contact with your skin? I hope you can identify it so it doesn't happen again. Poor thing you. I hope you heal up with this week. I would love to have 17 acres :). Yeah I'm so glad I WAS sleeping! It's about time! You're right about this place, there's so much dumb crap that happens here, we didn't bother going out there to check. Plus I was too exhausted.
Hugs to everyone else. I hope your day isn't too bad.
I gotta check this week's dishing out of homework and see what kind of craziness I gotta write or read before heading out to my appointment.
Yesterday my hip/leg pain was horrible from the moment I woke up and continued all day and night and today is not any better. I finally have an appt with the orthopedic Dr 3 weeks from today. I was hoping it would be quicker since he sees the non surgical patients and I have seen him before. WHATEVER, I will just continue to suffer.
Yesterday we had rain, hail, sleet , and snow. While I appreciate the sun and warmer temp today, it is at least 20 degrees warmer today and those yo yo temp changes are hard on me.
My happy highlight yesterday was the new and last season of Game of Thrones started last night. Yay.
My hip and leg is keeping me from doing things I need and want to do around the house and it is pissing me off. I am grumpy and frustrated.
Have a good evening.