Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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harrellstrong14 03/04/2017

This has been a tough week of pain...the weather is funky but I still got out today in order to shop and get a massage! I'm SO glad I did...sitting at home while in pain depresses me at times...besides...walking probably helped some. I am at the theater with my husband about to watch "Logan." I can't wait to see it! Problem is...I'm aching all over...that electric, achy, constant pain....my pain hasn't let up all day...pretty constant pain...so it's kinda jacking with my date night...trying to be positive but sometimes the pain just gets to you right? Ugh...I hope you guys are practicing some form of self care today...((hugs)) and love to you all!! ❤

sonyacon 03/05/2017

Yaaay, hurray for a nice day out, despite a bad pain week. I hear you on struggling with cinemas. I'm now only going about once a year, and even that one movie a year that I really want to see becomes a bit hard to sit through with the mounting discomfort.

Hope you had a great time!

harrellstrong14 03/05/2017

Thanks! I'm sure that has to be hard to not be able to get out much to enjoy a movie etc....sounds like fibromyalgia is really hard on you and maybe other health issues that are impacting you? Are the meds you take not working well to manage your pain?
I did end up enjoying the movie ! It helped me to refocus.

twinmomab 03/05/2017

I totally understand Harrell. I took my girls to the movies yesterday, and sometimes it's just hard to shut it off when the pain is throbbing, burning, and so constant. I hope you still had a good time and made the most of it. I'm trying hard to stop bringing up my pain. As my husband tells me, I already know you are in pain. It's just hard. Stay positive. hugs

harrellstrong14 03/05/2017

Yes...we definitely had a great time...it can just effect my mood if I'm hurting so much...I'm sure you can understand that. I try really hard not to share with my husband that I'm in pain but he can always tell...definitely hard to keep positive when you're hurting so much! People don't generally understand and that's not always their fault I guess..that's why I'm glad I found this support group...it's got to talk to people who truly get it. Hugs to you as well ❤

sonyacon 03/05/2017

I'm gearing up to getting a full and exhaustive second opinion done sometime this year. I would indeed like to know if there are other things at play that might be better managed.

Currently I'm not on any meds, accept for maybe 30 pills of tramadol every 3 or 4 months. I have some worries (some probably more founded than others) over starting heavy, life-long medication use in my 20s. And I live in the Netherlands, and not all medication that is commonly tried for fibro in the States are used here.

I am now trying some over the counter sleeping pills, but so far I can't say they're very useful. If at first you don't succeed and all that. :) Glad to hear you enjoyed the movie!

harrellstrong14 03/05/2017

Getting a second opinion never hurts!! I have been thinking the same thing. My gut is telling me there is more to this than just fibromyalgia...my blood results are weird so it's hard for them to grant me a full diagnosis. I just believe there is more to this...let's keep hanging in there and pushing towards more answers

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