Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Sprawling 03/09/2013

It seems that any med I take for the fibro pain only works when I'm laying down. They are totally useless when I'm up and about. The only exception to the rule is when I get those fibro headaches, meds will work for that when I'm upright.

Anyone else experience this? Meds used to help when being upright, but then again, fibro has it's own plan in it's own time.

MAGICpill 03/09/2013

Thats interesting, I wouldnt have a clue unless its because you more relaxed when laying down

PeaceN2You 03/09/2013

My meds are what allow me to be up and about. For me that's the whole point.

Hope you can figure it out.

fibrolizzy 03/10/2013

Maybe it's time for a med change? Have you ever tried something else? Just a thought.

deleted_user 03/10/2013

Sorry you are having this challenge. Wow, this is a new one to me. My main med makes me feel like being inactive, but...

Do you think it might be a dosage thing? Maybe your med level is just not strong enough to help you with the extra demands of activity.

I hope you can get this sorted out soon.

achyellie 03/10/2013

Hi, my fibro migraines are caused from tight muscles in my neck and shoulders and the migraines are better if I am up and moving around as the muscles are less tight so that makes sense to me. Not sure about the other meds, I agree and a very good way to put it fibro does have its own plan!

Sprawling 03/11/2013

I really don't think its a dosage thing. Daytime meds could be Taramadol which I recently got back on after weening off it for moths, over the counter, Robaxin, soma, klonopin, Hydro etc. Not all at th same time. I try to rotate meds as best as possible. It's probably a body thing. My system ran off adrenalin for years and still thinks it wants to. This must counter act the effects of medication. Sitting and standing feels the same to me. basically my body needs to be in a state of not moving for hours, pain gets worse, then the pain meds kick in.

It's not like can take meds before going out somewhere and they'll kick in and pain will be under control. It hasn't always been like this, yet moving in this direction for the past year. Meds might may make me tired being upright, yet little or no effect on pain.

I'm always tweaking my meds to find a combo that works. Nothing ever stay consistent. The consistency I have is that Gabapentin added to anything at night improves sleep.

My system has always been over active with sweaty hands and feet, always in a fight and flight response. At 54, I think my body is kind of burning out. I went from being very active t basically the opposite.

My attitude is positive since I've gone into remission before n my life, It may take years to get there, but I believe it will happen again.

Was just curious if anyone experienced pain med working when only in a laying down position.

deleted_user 03/11/2013

I agree with others that it sounds like you might need to be on something else.

Without my pain med, I would be unable to function. That is the whole point.

Hope you can find some help!

Sprawling 03/12/2013

I"m running out of options on what to try. Done tramadol, otc meds, Hydrocodone, Klonopin. Cymbalta lyrica doesn't work for me. My doc isn't gong to give me any thing that is a narcotic. I'm kind of limited being that I can't work and have no insurance.

Oh well! Just thought someone else might experience this.

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