Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Early last June I posted that I was taking care of my Grandma while she was having some procedures done on her back. The procedures didn't work and she was still in a lot of pain. Also found out that she had multiple tumors on her spine. She broke a rib in early May and they found that the cancer had spread to her ribs. When we got back to my moms house I tired to take care of her but it got to be too much.
Grandma and I talked about it and we agreed that she needed to go into a nursing home. So I got her settled and came back to Seattle for doc appointments but got a call to come back to North Dakota after two weeks. My mom couldn't handle all the stress. Grandma went into the hospital the second week of July. They thought she had a bowel obstruction but found that it was more cancer. In three months she had gone from a vibrant 91 year old to a woman that had to be on a morphine drip. I sat by her bedside at the hospital and watched her wither. I was the only one that she would let touch her. Hospice finally took over and let me take care of her. I learned how to give shots and change IV bags. Grandma finally went into a coma the middle of August. She would wake and be coherent for short periods of time but she was in so much pain. She finally passed away on August 27 at 2:20 in the morning. I was there by her bedside with my mom, she woke up looked at us and we told her it was ok to go. She went back to sleep and took 4 breaths made a sound took two more breaths and then she was gone. My beautiful butterfly grandmother was gone.
So now I am home and trying to work through the grief. My wonderfull husband said to take my time, grieve as much and as long as I needed to. All of the nights sleeping in a chair, and taking care of my grandma and my mom have taken a physical toll on me too. I went to my doc when I got back and she took one look at me and said we are back not to square one but to negative 5. Pain is terrible, I need the hugs but it hurts. I can't sleep in my bed have migrated to the couch. My hubby can't sleep in the bed if I am not there so he joined me on the couch. We have a big sectional so we both fit. I am seeing a Rhumy next week, cause my PC doc said I am too far gone for her care. Also have a appointment with a gyno to get the refferal for the Hysto. So I totter along and try and not cry every day. (Doc upped my Prozac too) But winter is coming and I really don't want to start it off like this.
Sorry this is so long, trying to talk a bit too to see if it helps. I have missed all of you here.
Grandma and I talked about it and we agreed that she needed to go into a nursing home. So I got her settled and came back to Seattle for doc appointments but got a call to come back to North Dakota after two weeks. My mom couldn't handle all the stress. Grandma went into the hospital the second week of July. They thought she had a bowel obstruction but found that it was more cancer. In three months she had gone from a vibrant 91 year old to a woman that had to be on a morphine drip. I sat by her bedside at the hospital and watched her wither. I was the only one that she would let touch her. Hospice finally took over and let me take care of her. I learned how to give shots and change IV bags. Grandma finally went into a coma the middle of August. She would wake and be coherent for short periods of time but she was in so much pain. She finally passed away on August 27 at 2:20 in the morning. I was there by her bedside with my mom, she woke up looked at us and we told her it was ok to go. She went back to sleep and took 4 breaths made a sound took two more breaths and then she was gone. My beautiful butterfly grandmother was gone.
So now I am home and trying to work through the grief. My wonderfull husband said to take my time, grieve as much and as long as I needed to. All of the nights sleeping in a chair, and taking care of my grandma and my mom have taken a physical toll on me too. I went to my doc when I got back and she took one look at me and said we are back not to square one but to negative 5. Pain is terrible, I need the hugs but it hurts. I can't sleep in my bed have migrated to the couch. My hubby can't sleep in the bed if I am not there so he joined me on the couch. We have a big sectional so we both fit. I am seeing a Rhumy next week, cause my PC doc said I am too far gone for her care. Also have a appointment with a gyno to get the refferal for the Hysto. So I totter along and try and not cry every day. (Doc upped my Prozac too) But winter is coming and I really don't want to start it off like this.
Sorry this is so long, trying to talk a bit too to see if it helps. I have missed all of you here.
You will always have your grandma's love with you. There will always be things that will remind you of her. And you'll remember things she said, or did, or wore. Just remember all these good things, this good part of your life. Things will get better, believe me.....it doesn't seem like it now, but it will.
Gentle Hugs, Kudzu