Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Fibro has taken from us what we envisioned our lives to be. I can't imagine having this at your young age....I was in my 50's when it hit me hard. You have it extra hard, I think.
You've lost not only a healthy body, but a relationship with another that apparantly you were very close to. You have 2 things to grieve over. And that's what we do with fibro....we go through the grieving process. Just know that you will come through that process, and things will get better than they are now.
If this person left you b/c of your illness (or for whatever reason), then it's really good that you found out now rather than when you were deeper in. It just shows what is truly in his heart, and you wouldn't want someone like that anyway.
There's someone out there who will love and care for you even with your fibro. I believe there's someone wonderful for you, and God will bring him into your life at the right time.
Meantime, I'd take this waiting time as a time to learn how you can help yourself some with this illness. Read and learn much about it. Develop friendships here or if you go to church, that would be a great place to meet great people.
I know it's easier said than done, but I know with God's strength, you can do it. There are people your age here on DS, maybe you could connect with them, if you haven't already. I'm always here to listen and maybe give some "old folks advice" if you ever would like me to. Plus there are so many others that care about you here and are so good at encouraging.
Take care, and know that I'm saying a prayer for you.
Hugs,
Elizabeth
I've had my life, my kids, my loves, (wrong order). enjoyed being healthy and since my 40's, have had to deal with this. Wish I could say it made me a better person at least. Just not true. I hate it, always have.
You need to focus on what you can do for yourself, not the neagative.
I lost a 20 + year marriage because my spouse didn't want a sick wife, my (now adult kids) live 3 time zones away, and my LTR partner moved on SO QUICK my head is still spinning from it. I have no local support group of family. My friends are still full on into their careers and activities. I am too ill to pursue nearly all the activities I had considered ongoing fixtures in my life.
There are days when I feel condemned and days when I do not. I know that getting ill was not my fault, and that on good days, when I pace myself, I can still find meaning and joy in my existence. I try and view this as a challenge, as a puzzle to slowly try and solve.
One of the things that has really helped me is to start receiving professional help for my psychological struggles about this. I go to cognitive behavioral therapy every week, and I take an anti-anxiety med.
We at DS can be your supporters. We all come here to give and get that.
But professional help can help us find our peace and acceptance as well. Consider seeking this.
I just want to add that these are the very issues counseling can be helpful for. We've all been through the stages of mourning for the life we had, or the life we should have had. Many of us have cycled through some or all of the stages more than once.
A good counselor can help you to see things more clearly and find the possibilities rather than just focusing on the losses.
I quite literally owe my life to the three remarkable women who have been my counselor at different times over the years.
When I made the appointment, I was in a big crisis that was caused by a side effect of a medication I was taking. I was terribly depressed and seriously felt like killing myself (that's the side effect, suicidal thinking).
As usual in these cases with me, the delay has somewhat taken care of things, but I am still depressed at all I have lost and my brain just wants to 'go there'. I don't. This is the one situation where I think a little denial goes a long way. Probably others here and psychologists would say no, but I have found that simply ignoring my situation is somehow the thing that helps the most. I think of it as sort of a placebo effect. If I pretend that I'm not as sick as I am, I can handle it better. I'll see what my new psych thinks of my technique. So far, it's the only thing that has helped me tolerate my situation.
I combine that with an attempt to focus on the things I can still do. I sometimes tell myself that it could be much worse. God, I could be blind or something, or paralyzed from the neck down. Some folks, again, will say that this isn't a good idea, that you should never compare yourself to anyone else, but in this case, it's what helps me. Everyone has they own personal, weird techniques for dealing with the enormous changes in our lives.
Like Fibrolizzy I was in my early 50's when this hit me hard. It had been coming on for many years, but it was so subtle that I wasn't aware of it, just learned (or tried to learn) some new coping skills. Things were so vague, I didn't even mention it to the doctor. I had lost a baby to stillbirth and I kept thinking that I would get better over time. It turned out that the loss of my child, combined with several big stresses, was the precipitating event in the onset of the worst of the FMS/ME. I tell you all that to let you know that I can only relate to you up to a point. I am not in my 20's. I'm old and it's a different situation.
That said, I do understand the loss of a relationship. My husband left me about 13 years ago. We still see each other and he tries to help me out, but sometimes, I think it's worse to continue to see him. It just makes me think of what I don't have any longer and will never have again. When he tells me about his antics, and there are lots of them - he's really healthy, it again makes me think of the enormous losses I've had. So I get that feeling you have and I keep having it over and over again. I don't have any good advice for you on that. It's something I intend to take up with the psychologist this week. Maybe he'll have some advice that will hit me in the head and I'll just get it. But he's only a human being, after all.
In the meantime, I just take one day at a time, and hope for something to be developed that will help us all.
I totally understand your sadness, as you can see.
Thanks again
Luna x