People that write crap like that should have a mandtory sentence to walk in our shoes for 1 yr, and then see what kind of tune the will sing after that. Too bad there isn't a way to give them fibro too, just so that they can live it, feel it, loath ii every day just like we do.

I can't believe there is still a debate over whether fibromyalgia exists!! We all know for sure it does. I am sick and tired of the arrogance of people who dismiss it because they don't understand it. That's like saying there is no wind because no one has ever seen it...it may not be visible to the naked eye, but you can certainly see, feel and hear its effects.

I think this article makes us look like pyschos....some of the information is long...that it attacks middle age women...It could attack everyone...The bit about the dr is true...alot of drs feel it is all in our head...its like the article doesnt know what we are going through and there is no hope...I am going to copy the article and show my dr. The only good point was people were starting to acknowledge that there is a disease called fibromyalgia..

After giving this article more thought I was compelled to write the author. I told him of how my old vibrant self was taken away by the fibro and how I would give anything to be back to normal again. I asked him to write an article about fibro that by those of us that have it and live it everyday. I hope that he will do another story from our perspective.

ah...3 steps forward, 2 steps back. now i am grumpy on top of being in pain.

it appears this ALEX BERENSON did not do his research very well....most of the things he stated I have seen on the internet in articals from the early 90's I would encourage all of us to drop him a line and flood his e-mail box with our stories of REAL pain and the things this condition has taken from us. lets see if we can get him to write an atrical from the patients point of view.

I knew it!!! This commecial has made us look like we are not suffering at all. This Drug Company was only out for its self. Nothing more. And we are only to suffer more cause of it.. And I am finding this Doctors address, E-mail and write him what I think of him and hes belief.. OO I am so mad at this!!

Sis, my fibro is hereditary, not caused by stress, depression or trauma. No car accident or likewise. I was not on any drugs for Fibro until 2 years ago when he put me on Neurontin. I was on it for 3 months. I had brain fog before and have brain fog now. I've had FMS for 22 years. I think you should do your research a little more since it doesn't seem like your basing what you are saying on anything in particular.

if you go to this link you can send an e-mail
http://topics.nytimes.com/top/reference/timestopics/people/b/alex_berenson/index.html?inline=nyt-per

you can also call @
212-556-1234.

I was just about to go to bed and half asleep when I read the article. After rereading it this morning I had something else hit me.

I had a friend with fibro years ago and I didn't believe her. This was before I came down with it.

I thought to myself how could anyone feel that bad all the time? I took her to appointments and listened to her on the phone complain all the time. I had to give her up as a friend because she was abusing pain meds and slurring and stopped driving. She checked out of life.

Doctors may see us the same way I used to. The progression of fibro being blamed on us focusing on it too much is interesting. How can you not focus on pain when it is screaming? Saying we are hypochondiacs that overfocus on ourselves is one way. My mother told me people become their illnesses. She is a nurse so there may be some truth to that. I still think pain is something that is hard to ignore.

The article was just very negative and written by someone that thinks Fibro is a form of hypochondria. Med's don't work because they haven't found one yet that works for fibro.

I read several articles last night on what meds work for fibro. The answer I found was none do. Some heavy hitters may mask it but they have to be constantly increased and then leave you useless and in a stupor. I would rather have pain then be nodding off in a chair.

I doubt anyone could have convinced me that fibro was real before I got it. I wish their was a test or something scientific that would show our pain is real...

I agree with Keleee that I prefer not to be on drugs that only mask and not cure the problem. I want a clear head and I want to know that I am not going to get addicted to all the drugs. I have my opinions because I have dealt with this pain 50 yrs. It could also be hereditary. My mom mentioned once that my Grandmother always talked about her skin hurting. I know that feeling well. No one knows what this is and why but it is not a disease..it is a condition and none of us will die from it. People may die from the drugs however. I just choose not to take them. Of course everyone has to deal with it as they see fit.

HM so this goes back to agent orange and PTS that never did exist at all either. The pain isn't real, the lack of sleep isn't real, the lack of ability to do things is all in our heads. We should just stop taking pain meds and just hop right up and get running like a normal person.The hell that our bodies are going through right now being run down and the depression is all fake. This isjust like Chronic Fatigue you know that is just PMS does anyone have the giant bottle of Midol we can pass around and share. You knw us women we just imagine everything!!!NOW I AM PISSED OFF AND I ALREADY WAS UPSET ABOUT SOMETHING FROM YESTERDAY

I can't wait to let my hubby read this, he'll blow a gasket. Probably have to keep him from driving there, never mind an email!!

I was certainly ticked off enough that I sent an email attention to Dr. Wolfe at his Research site.....

Here's the contact: webquest@arthritis-research.org. I just put attention to Dr. Wolfe in the subject line.

I think we all owe it to ourselves to email both him and the NY Times.

Well...at least they are TALKING about FMS. , although not in a positive light.

I think they should have to do REAL reasearch with real people like us, before they print this kind of garbage.