Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Newly diagnosed with FMS..really need some info

Livloveslife
Livloveslife
I'm 33, and have been having problems since my teens. My mother, aunt, and grandmother all have RA/FMS. I've been in severe denial about having it and always ignored with massive Advil. In October I got so bad I couldn't walk/move. I was admitted to the hospital and they found I have RA and Fibromyalgia both and I had mono AND CMV as well from my immune system getting so bad. I also had a lot of low labs. Critical Vita D and things like that. I started with a Rhuematologist and have had 2 depo medrol shots since November and am now on prednisone. I just finished a round of Plaquinil for the RA as well. I know a lot about RA now because my mother has it really bad but I really don't know much about FMS. I'm starting to do research on it but hearing other people helps me understand what symptom is from what. I have painful lumps under my skin in my forearms and thighs. I'm not sure if this is the FMS or RA nodules. Any help, info, links, etc that anyone can offer is greatly appreciated. I have headaches a lot since this flare up and short term memory problems. I'm so tired and fatigued I just feel worthless sometimes because I'm "to sick" to do normal things after a work day. My muscles just hurt. Sometimes I barely make it through the day. I'm so confused about what problems goes with what. Thanks you for any help or advice you can give me. I just need to talk to people that know how this feels. I feel like no one understands what I'm going through. One of the main reasons I delt with it alone for years is because of how people respond when you say FMS. I'm in the medical field and have heard doctors/people say that its something "in peoples heads" I know for me, these lumps in my arms and legs are so painful. I'm getting so bad with this that I cant do it alone anymore.
God Bless~ Liv
deleted_user
deleted_user
I hear you. I am about sick of doctor's telling me I have a low pain tolerance and to go home and suck it up.

Nine doctors and I have a diagnosis,,,,,,,,but he's not willing to do anything.

sigh.

I totally hear you. But I am probably not any help to you,,,,,I was diagnosed this morning.
deleted_user
deleted_user
Hello,sorry that you are feeling so bad right now.I am a Nurse and understand the "eye roll" reaction,to the FMS diagnosis.I am ashamed to say, that I also used to think of Fibro as a psychological problem prior to my own diagnosis,I knew very little about Fibro.I can not remember it ever being mentioned during the four yearsof nursing training.I also have DDD and osteoarthritis,and like you I often do not know which is causing my pain.The good news is, that often the source of the pain is irrelevant.Many pain relieving measures are the same regardless.A warm soak in the tub,gentle massage,topical analgesics, etc, help all sources of pain.I am glad you have reached out for support.There are many here that really do understand.Take care.................Cheryl
CajunTiger
CajunTiger
Hi, and welcome to the group! Sorry about the double diagnosis....I can only imagine how hard it is to deal with both RA and FMS. I'm not able to speak to RA symptoms, but I can tell you that the fibro can lead to headaches, fatigue, memory problems, and muscle pain. Often we also have myofascial pain, and knots under the skin, which are very sore to the touch.

For me, the info provided by Dr. Jacob Tietelbaum in "From Fatigued to Fantastic" and on his website was very helpful....I also really like the "Fibromyalgia for Dummies" book!! No offense at all....its just a good, straightforward explanation!

Also, please check out the sub-group "The Fibro Puzzle"...Lots of us have told how our fibro started, our symptoms, what helps us, etc....Here's the link:
http://www.dailystrength.org/groups/the-fibro-puzzle

PLEASE know, it is NOT ALL IN YOUR HEAD!! Just check out all the names in this group....we all share this awful syndrome....you are NOT alone, and we are happy to help any way we can.

HUGS from down south :)