I took neurontin for 3 years. I'm currently off all meds for now, but it helped reduce the sensitivity of my skin so that I could actually let people touch me once in awhile. Hoping to be back on it soon.

I have been on neurontin,for 5years to treat the parasthesia (pins n needles).At first it made me feel very ill,i thought i was dying,but slowly i did improve,yes i have put weight on,but it has helped the parasthesia.I dread to think what i would be like without it,probably bedbound.I take 600mg am,600mg lunch time,and 1200mg at bedtime.Obviously this dose is very high,and it was increased over time.I think i started with 25mg.I was warned it would make me feel very ill,but that it would improve,as i have already said.I hope this has helped you.

what scares me reading these posts is that alot of you guys are already taking like over 1000 miligrams of this drug and the docs keep saying to increase it, increase it. That cannot be good for the system. I only take one 300 mil tab in the AM.. it doesnt really work alot and i prob need to increase too, buts its scary..Im afraid of what its doing to the brain...EEEK!

I havent used it yet wondering if any one of you have used these 2 meds? Just hear about them tonite!Requipt or Mirapix? thanks alot, Dianne from Canada

I don't think I could handle the pain without it. I have been on it for a couple of years and my pain management Dr. said to take 3600mg per day. I usually only take around 3200. The rheumy said it was a really safe drug and could go up to 10000mg per day, but I don't think I will take any more than I do now. It was have been an extreme case he was talking about. Anyway, I don't handle the pain meds very well, they seem to increase my depression, so as long as it works for me, I stick with it. I am sleeping about 6.5 to 7 hours per night without waking up.

*snort*
I had to look to make sure I hadn't replied to this. Fog sucks tonight.

Neurontin - the first time I took it, my Rheumy put me on it and he put me on 300mg three times a day.
I was a zombie. Did it help the pain? Yes.
As my husband put it - six weeks of this and I ought to be able to chew my own arm off and not feel it.
I had to quit it - originally. B/c honestly? I was really really out there. I mean beyond space.

Well, my Internist started me back on it - at bed time. It seems to be helping. Now. In conjunction with my other meds. I think it's the combination.
But, I'm supposed to have doubled my dose at bed time. The last to nights? GREAT. Slept better, definately more comfortable. But, unfortunately... I'm seeing some of those zombie like things coming back. I feel like I'm drunk or stoned in the morning.
Very clueless in the morning - until my Provigil kicks in.
We'll see.

Yes. It does seem to help the pain though.

Taking it at bedtime though - that helps alot.

I have been on neurontin for about 6 months maybe? fog is a wonderful thing. lol
I have had no side affects from it.
I take 300 mg at bedtime. It basically takes the edge off. Neurontin does not work for me when im having a flare.
When I first started taking neuro I could only take 1 at bedtime.I was tired in the mornings until my body got used to the neuro. I am now up to 3 at bedtime. With no side affects at all.

it's been the first thing that's worked for without the huge gamut of unpleasant side effects (i don't mind the slight drowsiness).

HOWEVER.

i find myself needing larger and larger doses for the same effect. what is the largest safe dose one can take? i think my doc is stopping at 300 x 3; i've been past that for ages.

i just started taking 300mg at bed time it really helps me to sleep, if someone wouldn't wake me up i would probably sleep 12-14 hour straight. i can only remember getting up once last night. and i dont wake when rolling over like i used to before.

Neurontin is my miracle drug for nerve pain. Before I started on it, I had constant, severe sciatica, down both legs. I'm now 98% pain free from the sciatica. Nothing else I tried helped. I started w/a very low dose at night, and it really knocked me out at first. But I stuck w/it. My docs titrated the dosage gradually, increasing it in very small increments. I think this is the reason I avoided most of the side effects. I now take 1,300mg. 3x a day w/no ill effects. At first, while I was still on a very low dose, I didn't think it was helping. But when I was at the 900mg. 3x a day, I suddenly realized I was sitting & wasn't in agony.
A very important thing to remember while on Neurontin: avoid anything high in magnesium or fiber for two hours before taking it & 2 hours after taking it, as both will block its effectiveness.
One last thing; it hasn't helped with my other pain, but the other pain I can deal with--the sciatica was hell on earth, & I'm so grateful to have found relief.

When I was taking meds, neurontin was one of the few that helped some... but it was also the med that made me stop taking meds. I don't remember how much I was taking (it was over two years ago), but it helped me with my sharp stabbing pain, not my duller achier pain. I took it on an as need basis. My rheumatologist said it wasn't good to take it this way because it needed to build up in my system. I tried it for a little bit but hated doing it. I was also told that it was an anticonvulsant and that I was taking it because it had a side effect of pain relief. I despised taking a med for its side effects, so I started looking for other alternatives and have now been medication free for two years.

bump

Thank you, Kelee, for the bump. Lots of good information.

I've never heard of any of these drugs. I take 200mg of Lyrica morning/night and have really felt a decrease in the overall ache of my fibro.

Thanks for posting, I wrote down all the meds and will do some research. Every little bit of info helps us!