Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
A lot of rheumatologists still treat it because they always have, but other rheumatologists have decided to stop treating it because technically it isn't in their field - unless your Fibro is comorbid with something like rheumatoid arthritis, which it often is. Either way, the rheumy is still only an expert in that particular portion of the diagnosis, and doesn't have any special training in the neurological aspects of the syndrome.
Neurologists haven't exactly picked up the slack yet, either. I finally found someone locally who is a physiatrist (I had never heard of that before, but someone here recommended I find one) and a neurologist and specializes in fibromyalgia.
I haven't seen her yet (appointment on the 19th), but I did see a neurologist back in 2000- long before the fibro started really acting up- due to migraines, and he changed my life! He immediately took me seriously, and recommended a few life style changes that made it possible for me to get my life back. He was pretty sure the issue was migraines from the onset, but he still did some other testing (MRI) because my symptoms were serious enough he needed to rule out more serious issues. I wish he hadn't retired before I was diagnosed with Fibro - he would have been my first call.
My rheumy is the opposite--he doesn't treat fibro which is why I'm pursuing the neurologist as my fibro diagnoser/treater.
All tests came back negative for a nerve disease or MS.
He (and I) came to the conclusion it is Fibro. He gave me Tramadol (which I hadn't tried before). Tramadol works on the burning pain. But Xanax seems to help my muscle tension the best.