I'm so sorry jp,
Sending you support, hopes & prayers.
Gentle hugs <3

Thanks Blue, Nettie and Wonderbaby. As soon as I can get my blood results, I am going to see about what I can do to remedy it. My understanding is you need to find what is causing the anemia first, whether it is iron deficiency or pernicious anemia with vitamin b12 loss or what not.

I have stabilized my symptoms at least; although I do feel like I am dying inside....you got that one right WB. It's not a fatigue that is like fibromyalgia or post exertional malaise, it's feeling flat....we've all been there so I know you get it. It's just that I usually used to only feel this exhausted after overdoing it. Now it's just all the time and no amount of sleep helps. Although I have been working less and that has helped with my stress level.

Something else that has come up that I may write on another topic, I am feeling overwhelmingly depressed. It has been building, I've been ignoring it, which makes it worse when i am not distracted with work or other stressors like taxes, finances, health, gee, what else do we all deal with ugh. I think the thing I am hanging onto is that I am hoping and praying I get approved for part time disability pay through work. My case manager has been so nice that she hasn't asked me for a thing but the financials. She got everything herself through the disability people and doctors. I am hoping she is actually going to approve it as that would allow me to have enough money every month since I lost a huge income source early in the year. So, say a prayer it gets approved and quickly so I can have some birthday money. I am really struggling right now. I don't even have money to uber to the doctor and there are no ride services giving rides to someone below age 65 or that doesn't have cancer. My patient advocate gave me every available resource and I have called them all, so I am feeling reall really down right now. Thanks all xoxo JP

Prayers for God's healing touch!

The biggest most gentlest hugs to you
((((( jp )))))) <3

Awe thanks for the rehug girls. I was just having a really down day so I am so very grateful for the timing! You just made my next 2 weeks!!

O may have mentioned how disconnected I have been feeling. Though amitrypitiline is helping still, no diagnosis, that hopeless feeling lingers. I am also withput health insuranxe right now until i can take care of some things. Luckily i have fpund some short term fixes for medication but it prolongs me finding a new gastro doc. None of them take the state only hmo so I am searching for a solution. Any ideas, I'm open. Well that's it for now, just wanted to say thanks a bunch.

J I hate that you are going through so much. I too am anemic and understand that bone tired exhaustion it causes. I think Fantod may be on to something. I would ask the doctor about it. I know it is scary but you have to hang on and you will eventually get the answer that will help you heal. Many warm hugs and prayers.

It sound like your stomach is very inflammed. Have they done a biopsy of the lining of the stomach? It is very scary bleeding from the rectum and not know why. Colitis can also cause bleeding and low hgb. They will watch it to make sure you don't need a transfusion . Keep after them. Your in my thoughts and prayers

Yea, the idiot gastro doc did a biopsy but all he did was test for h.pyliri, that was it. I need to find a new gastro doc and get a whole new colonoscopy and endoscopy. So far they've only ruled things out like celiac and lactose intolerance and h. Pylori but no looking for what it actually is. Yea, fantod and other gal who went to mayo may be on to something. I was also tested for crohns and colitis, albeit no intestinal biopsy. That was the 2nd gastro doc late last year. We did the pill camera and said it looked good, however, I did it after I had an i.v. steroid shot and there is some question as to whether the camera made it all the way down or got stuck.

The good news, I suppose, through trial and error, is that by cutting out dairy and gluten and adding very high dose live probiotics, I am getting better some to the point at least no black stuff coming out. Sorry girls, it's gross, I know. Tomorrow I am going to try the prednisone taper that my new family doc had prescribed. I'll see if that helps. If it doesn't, I know I'm really screwed! And then back to find new doc. I still strongly believe I have some kind of inflammatory disease because I am bla b27 positive and at one time had horrific plaque psoriasis. I believe there is a link between my symptoms whether it be this ulcer thing or whatnot. I've had problems my whole life, it's just that it has gotten way worse these last couple years.

Thanks again. Feel free to p.m. me with any ideas. Much live and appreciation for y'all!!!! Xoxo Jp