Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Godstrength 03/14/2017

Hi...haven't been here in a while...was wondering if anyone has tried the low dose naltrexone. Getting tired of the daily struggles. Read about this and was maybe ready to try something new. I have had 4 doctors in 2 years...they all move away and each new dr. has changed my meds. Frustrated..new dr. won't prescribe this wan't sure how much to fight for a try at this. Any successes? Thanks!

Ylime 03/15/2017

I find it extremely helpful! It increases my energy and it boosts my immune system so that I don't get as many bladder infections or colds. I started with 1.5 mg. for 3 months, increased to 3 mg. for 3 months, increased to 4.5 mgs for 3 months and then after 6 months or so went back to 3 mgs. because I didn't see a difference between 3 and 4.5 and happen to think that "less is more if it is just as good" It is VERY IMPORTANT to take it during the day. WITH lunch works best for me (no dizziness or nausea). If you take it at night, it will keep you up. NOTE I ALSO take 30 mg. of Cymbalta.

Godstrength 03/15/2017

Thank you dear!...I may try to get a referral to someone who will ok this. I appreciate your taking the time to respond.

sonyacon 03/16/2017

I haven't tried it myself, so I can't be any help there.

But I wanted to say that I hope the new meds will help you. Having your meds changed around all the time sounds very frustrating indeed. Especially if they take you off combinations that work for you.

Good luck with everything. If you're interested in sharing, I'd love to hear how it works out for you. All the best.

Shakota6 03/16/2017

On the American College of Rheumatology there is a mention about low-dose naltrexone that isn't very favorable. The study by Jared Younger had a very high placebo response. But heck, it's worth a try.

Cocoa1 03/18/2017

I have used low dose naltrexone in the past and have found it very helpful. You have to find a doctor educated about it's use or you will have to educate that doctor about it's benefits.

You will have to use a compounding pharmacy to make it for you. Compounding pharmacies have the ability to make prescriptions at low doses.

The only reason that I don't use the low dose naltrexone now is because I've found that I no longer need it as part of my regimen anymore. The current regimen that I have is working well enough. I always retweek my regimen yearly and I was able to remove it and still function well.

I would recommend anyone with fibromyalgia to try it for at least 6-8 months to see if it's beneficial. I would recommend it along with other changes. (Gentle movement, dietary changes, etc)

Best Wishes and you can talk to me anytime about it.

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