Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I have been taking 1.5 mg of naltrexone now for about three weeks and I am amazed at how much more energy I have. I don't feel wired or nervous. i simply can do so much more. yesterday I got up early, took a three hour flight, ran around the city to stores and restaurants on subways and busses for about 9 hours, and all the while dragging my carry-on suitcase! Today I chose to stay and relax in the morning before we set out this afternoon, but it's a choice, not a necessity, and nothing hurts.
Note, if you try naltrexone, start very small and take it in the morning. Doctor says you have to try it for 3 months to know if it will work. In my case, I noticed a difference right away. You get it at a compounding pharmacy
Note, if you try naltrexone, start very small and take it in the morning. Doctor says you have to try it for 3 months to know if it will work. In my case, I noticed a difference right away. You get it at a compounding pharmacy
Emf, I was very bad 2 years ago, before the cymbalta, vitamin cocktail and gluten, dairy, additive free diet. With those, I was doing very well, but still lacked energy and had to be very careful not to overdo the activity, else I would spend a couple of days in pain.
Here's some good info to know:
"Reports have been received from patients that their pharmacies have been supplying a slow-release form of naltrexone. Pharmacies should be instructed NOT to provide LDN in an "SR" or slow-release or timed-release form. Unless the low dose of naltrexone is in an unaltered form, which permits it to reach a prompt "spike" in the blood stream, its therapeutic effects may be inhibited.
Fillers. Capsules of LDN necessarily contain a substantial percentage of neutral inactive filler. Experiments by the compounding pharmacist, Dr. Skip Lenz, have demonstrated that the use of calcium carbonate as a filler will interfere with absorption of the LDN capsule. Therefore, it is suggested that calcium carbonate filler not be employed in compounding LDN capsules. He recommends either Avicel, lactose (if lactose intolerance is not a problem), or sucrose fillers as useful fast-release fillers. "
http://www.lowdosenaltrexone.org/
I'm happy to hear that LDN is working for you! My rheumy just gave me a script last Thursday to start taking 4.5mg naltrexone at bedtime. I have not gotten this filled yet because I have been skeptical and basically on the fence about. So I've been doing my research and can't decide what I want to do.
My concern is the fact that I am taking an opiate pain med, which is being prescribed by my PCP. I thought my new rheumy was aware of this, as I listed it as one of my current meds (Norco). From what I am reading, you cannot take naltrexone along with an opiate. It is an opiate antagonist and blocks opiates, so withdrawal will occur. I asked my pharmacist and she seemed to not be very educated on LDN, so she looked it up. My pharmacy does not do compounding, so this is a med she is not used to filling. She came back and told me that it is ok to take my pain med, but then wait about 4 hrs before taking the naltrexone. I don't know...sounds "iffy" and will be difficult to navigate my doses between pain med and naltrexone. I read that you need to wait several days after taking an opiate before starting naltrexone.
So....I am wondering....does anyone else take opiate pain meds AND naltrexone? I'm not thinking this will work.
Thanks! I hope you continue to feel good!
Belmar Pharmacy
12860 W. Cedar Drive, Suite 210
Lakewood, CO 80228
Ph#'s - 800-525-9473
Fax #'s - 866-415-2923
Contact email: Pharmacy@BelmarPharmacy.com
Website - www.belmarpharmacy.com
We compound the LDN in a fast acting tablet (LDN Redi-Tab) that is scored in half for easy dose titration. 90 tablets run $46.00 and we do not charge for shipping if the patient chooses USPS. Other shipping options are available for a charge.
You SHOULD NOT take it at night!!
Thoroughly research contraindications with opioids!
WE ARE EXOTIC ORCHIDS, GAEDENIAS, PRINCESSES-ever-aware of the pea. A bit of patience might pay off big time
My doctor and I are considering this treatment. I currently take up to 3 5mg tabs of Percocet per day plus 3x 10 mgOxyContin. I think the plan for me would be to drop the OxyContin and continue the Percocet. My only concern really is that the LDN hasn't been used for tmjd, which to me is more severe than my fibro, so I'm not sure if just the Percocet and LDN will give me enough pain relief.
Trix, if you take it at night it will probably keep you up
There's so much conflicting info here. I tried LDN a while back (maybe 2 years ago?) and it didn't help me. I was instructed to take it at night, as they say it has something to do with the endorphins being produced in the brain between 2 a.m. and 4 a.m. (I think that's the timeframe they listed). I started at 4.5 mg. I was on Tramadol at the time, so I was told I had to stop taking that 2 weeks before starting LDN. It was really difficult to wean from the Tramadol, but I was bound and determined to try something new that is actually beneficial to your body.
I've heard a lot of good things about LDN, so I think it's worth a shot, if people want to try it.
Oh yeah, I didn't have sleep disturbances myself. It actually made me sleep more soundly. But they do say that it's possible to have sleep disturbances for the first couple weeks.