Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
This really sucks, you know? Well you all know. I am thankful I do not have pain every day especially since the fatigue is a handful anyway. I'm upset because I feel like I can't do anything without paying for it later.
For instance, I'm trying to get on a cleaning schedule. I'm a stay at home mom of 2 kids and one goes to school. Anyway, I read on Pinterest about a cleaning schedule: 15 minutes a day. So Monday I didn't do much but Tuesday I cleaned the kitchen floor and one of the bathroom floors and didn't do a whole lot the rest of the day. Then yesterday, I cleaned both of the bathrooms and vacuumed. I cooked dinners both days too. Now today, I'm exhausted. I have no energy to do anything and I'm counting down the minutes when I can put my son down and we can take a nap. I feel bad that I haven't been able to do anything. I mean, I used to be able to clean the house and do the laundry in one day. Now I can barely do all that in a week.
I'm trying to do things that I think will help with the fatigue such as taking a multivitamin (which I think is making me sick), eating breakfast (which I don't normally do) and the dreaded exercise (I walk up and down a hill 2 times a day, 5 days a week, to pick my daughter up from the bus stop. My hubby and I think it's about 1/2-1 mile total.) I know I could do a bit more such as cutting out the caffeine and I thought maybe more exercise but the walking is hard enough as it is. And there is a very skinny, almost non-existent line between not enough and too much.
Thanks for letting me vent. I know you guys all understand. I am anxiously waiting to go into the doctor so I can talk to her about everything! I don't have insurance so I am waiting for our tax money to come in to go. Hopefully in the next few weeks. Not sure what a doctor will do but I should go in for a check up anyway.
For instance, I'm trying to get on a cleaning schedule. I'm a stay at home mom of 2 kids and one goes to school. Anyway, I read on Pinterest about a cleaning schedule: 15 minutes a day. So Monday I didn't do much but Tuesday I cleaned the kitchen floor and one of the bathroom floors and didn't do a whole lot the rest of the day. Then yesterday, I cleaned both of the bathrooms and vacuumed. I cooked dinners both days too. Now today, I'm exhausted. I have no energy to do anything and I'm counting down the minutes when I can put my son down and we can take a nap. I feel bad that I haven't been able to do anything. I mean, I used to be able to clean the house and do the laundry in one day. Now I can barely do all that in a week.
I'm trying to do things that I think will help with the fatigue such as taking a multivitamin (which I think is making me sick), eating breakfast (which I don't normally do) and the dreaded exercise (I walk up and down a hill 2 times a day, 5 days a week, to pick my daughter up from the bus stop. My hubby and I think it's about 1/2-1 mile total.) I know I could do a bit more such as cutting out the caffeine and I thought maybe more exercise but the walking is hard enough as it is. And there is a very skinny, almost non-existent line between not enough and too much.
Thanks for letting me vent. I know you guys all understand. I am anxiously waiting to go into the doctor so I can talk to her about everything! I don't have insurance so I am waiting for our tax money to come in to go. Hopefully in the next few weeks. Not sure what a doctor will do but I should go in for a check up anyway.
I hope you have a nice nap and can enjoy your son later. Take care and be kind to yourself.
Good for you for using what ever tools you have at your disposal.
And please keep up your cycle of resting and then inching your way forward.
Fibro isn't supposed to be fun, but it is our life and we do our best to still find fulfillment in this life. How wonderful that you have a little one, even if it creates more work.
You are on the right track, just keep on... Have you also read stuff on organizing tasks so they don't take as much energy to perform? There have been several long posts here filled w/ hints about easier ways to complete things.
Thank you for posting, we are all entitled to our times of frustration.
PS: The exhaustion isn't always related to the activity we have performed, sometimes its just there.
May the Lord Lay his healing touch on you.
Christi
AKA: Ima Get Better!
Good luck with everything, I hope you find ways to manage. I struggle, too. And I'm still trying to find ways for those that live with me to pitch in and clean up.
letitbe3, when you said that exhaustion isn't always related to the activity we've done and sometimes it's just that way, that totally blew my mind. I guess I was hoping to, I don't know, make it go away or something. But it is is so true!
blueson, I don't have any family members that can help except of course my husband. But he works too and I don't ask him for help. The weird thing is I clean my parents' house every week in under 2 hours. It's hard for me sometimes but I push myself to do it. My dad is on disability from a back injury and he has RA and my mom works and has medical issues as well. I just feel that this is the least I can do for them after raising my sisters and I. One of my sisters works 50 hours plus and my other sister lives 8 hours away and is also dealing with RA.