Have you tried trigger point therapy? Or seeing a Kinesiologist? I started seeing one about 3 weeks ago..the change has been dramatic. I too suffered from extreme muscle weekness and truly am amazed at the changes. I know not all therapies for for all ppl, but it's worth checking out.

I do have extreme muscle weakness in my arms and occasionally in my legs also. I can't hardly lift anything without having pain in my arms. A 2 liter bottle of soda causes me pain when lifted. Anything heavier than that and I am in agony. I have had tendonitis in the past and lots of steroid shots in my elbows and shoulders for that pain. And I get really heavy leg feelings if I walk too far or up the stairs occasionally. It sucks to feel so weak when I used to be so strong and could lift and work like a man. I hate feeling like this and it's so unfair to be crippled by this pain and lack of strength in my muscles.

as far as I know, the fibro should not be causing that extreme weakness. It sounds like it could be some other problem. Have you discussed this with your dr?

no, but I did see my doc yesterday and she told me to read up on lupus cuz based on my kidney scans, she suspects I may have it. She said I will start getting tested for it. After reading it, I noticed it talked about muscle weakness and it caught my attn. There's other things that caught my attn as well, but the muscle weakness is pretty aggravating!

From what I understand the symptoms and levels of pain can be different in different people. I too have the muscle weakness in my arms and legs that you describe. I've always had problems articulating that feeling to my doctor. They do the strength test and I pass so to them it means nothing. It is very frustrating. Especially the heavy leg feeling. My husband has recently been asking me why do you walk that way does it hurt to walk? Its not that it hurts as much as it is just difficult to walk because of the feeling in my legs.

At least i'm not the only one... whew...
I feel a bit better... I was just a bit nervous

oh yes i have very bad muscle weakness .. will be walking and all of a sudden i cant go an farther my legs stop working..

at night i have to use a cane cause i can not walk without help. my arms are heavy and i am not able to lift em like use to ..

alot of the time i feel like i am a lump that cant seem to function. awful...

I just drove 2 blocks down the street for like 5 bags of groceries and i am so spent! gosh, I have to lay down now...no energy left

Yes I have muscle weakness. Sometimes it is very hard to use a can opener. On Sunday, I tried to plug the blowdryer into the outlet and had to use all my might. My elbow was hurting and cracking and popping. I was so pissed! It shouldn't be difficult to plug something in!

"Yep we have several TRP's on the head, face,including mouth area, I read that this is why we bite the inside or our mouths more than others..
One of my doctors have me with a mouth guard at night, and a couple hours in day if bad. not only for the TMJ, but also for TRP's many are saying this helps out in this area and extends into neck and head pain..

Your doctor should run a battery of test to rule out everything from, lupus, lime, thyroid and whatever else they look for.

Many of Fybro patients have lots of other conditions factoring in. this is a problem, we seem to keep getting more aliments that seem to arise with the longer or more pain we are in.
I was working and still active in every aspect of my life "with only a small can live with breakout".for years, and know can't seem to cope most of the time.

If Fybro is what you have listen to what others are experiencing, and you'll see that
many have different ailments, pain levels, and restrictions. sometimes ya think your lucky your butt does not hurt and POOF a week later ya can get the symptom.
.
2 books if you dont already know about Fibromyalgia & Chronic Myofascial Pain and The Fibromyalgia Advocate. TRP workbooks.
sorry for the long wind

Today the weirdest thing happened to me with my muscles where my hand just quit working it was really scary. I was actually cleaning the bathroom and using my right hand and it just quit working period. My legs do get something like that once in awhile but mostly just the pain in my legs though. Maybe there should be cause for comcern 4 u?? It defintly wouldn't hurt to look into. Good Luck

This is something that is also getting worse for me too. Especially in my arms, hands, and feet. It's getting to the point that I can't hardly open even the simplest of things. I've had to have my pharmacists to start using "old people" bottle lids that just pop open. I also have what I used to think was "carpel-tunnel syndrome" in my right wrist. Sometimes is like my right hand "just falls off my arm" b/c whatever I'm holding just drops to the ground. I get this in my ankles sometimes too.

I also tend to trip over my own feet OFTEN!! My clumsiness with hands/feet is getting downright ridiculous. I could get a clown act in a circus with no training! I'm also thinking "other" illness besides just Fibro. Not MS...so far! (testing has presently ruled it out)
~Tonya

I get that sooooo much! Tis a big reason why a 30yr. old walks with a cane sadly!

I call it..."moving through lead-jello!"

As far as it overlapping...well, I would have them check for MS, sorry to say! I wonder myself about this because it happens so much along with other things like randomly dropping crap, so don't feel alone there!

Take care,
Stay sane!

I sure hope it's not something bad. I've developed very bad muscle weakness over the past months. I feel it has put me over into the CFS category. (Not diagnosed.) I began to combat it with very high sugar intake. Then started sublingual B12. That helped. Then I started the D-ribose regieme. That helped a whole bunch. I'm still not happy with where I am, but at least I can work all day. So maybe check that out as well.

i have intense muscle weakness. i have had to almost completely give up dancing because of it. that and the fatigue.

my husband has noticed that i seem to get weaker by the day. it certainly feels true.