Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Yesterday I went over to a nice friend's house to watch a movie in the early afternoon. Even this is too much for me. I am so fatigued today that I won't be leaving the house.
Instead she would have lent me the video and we could have chatted for 30 minutes. My resolutions for the new year were to have more of a social life.
I signed up to be a reader for a bunch of online manuscripts due in a week. Who am I kidding? Canceled that.
Tried to arrange rides into the city for a literary event in early evening. Impossible scenario.
Support group first meeting coming up. Book club first meeting tomorrow. Dunno if I'll be able or even want to do these things. Takes so much out of me. Not worth the effort to drive there and back.
It's just hard to accept that I want to do things that I cannot do. Have too much fatigue/pain.
What I want is to be realistic about my limits most of the time, and make my plans accordingly. Nothing worse than to be flattened by fatigue for the next day or 2 or 3. It's about acceptance, I guess.
What about you?
Instead she would have lent me the video and we could have chatted for 30 minutes. My resolutions for the new year were to have more of a social life.
I signed up to be a reader for a bunch of online manuscripts due in a week. Who am I kidding? Canceled that.
Tried to arrange rides into the city for a literary event in early evening. Impossible scenario.
Support group first meeting coming up. Book club first meeting tomorrow. Dunno if I'll be able or even want to do these things. Takes so much out of me. Not worth the effort to drive there and back.
It's just hard to accept that I want to do things that I cannot do. Have too much fatigue/pain.
What I want is to be realistic about my limits most of the time, and make my plans accordingly. Nothing worse than to be flattened by fatigue for the next day or 2 or 3. It's about acceptance, I guess.
What about you?
I love this Shakota! We should all make signs saying this and put them up someplace to remind us. No one has the right to tell us what we should be doing unless they live with high pain levels everyday, unrelenting fatigue, brain fog, and all the other lovely day to day realities we face. It is one thing to have a really bad cold or the flu yet one gets over those and goes back to normal living. For those that have all these great ideas for how we should cope or live our lives I say this: How would you feel if your day to day reality was like having a bad case of the flu yet ramp up all the symptoms about five or more times....? Such people I will tell my reality to once and after that they are out of my circle it is that simple. It is so easy to judge yet I wish some people could walk in our shoes for a month much less all the years we endure it all. Enuf' said.
I was diagnosed with fibro in 2008 and I am just starting not to beat myself up when I can't do the things I want to do. I know it gets maddening not to even be able to have half the life you used to before fibro. We have to be happy with simpler ways of living. I have four kitties to keep me company because I can't socialize as I'd like to. I am lucky to have a few friends that are still in my inner circle that understand what I go through. Nevertheless, I don't know when I can go out and do things with them. So the kitties help satisfy that as they are so loving and entertaining. I have tried to make my house as fibro friendly as I can since I spend so much time here. I can't imagine what having fibro would be like without the internet and being able to come here and share as well as vent. Its like learning to be grateful for what you do have or can do, however small that is. For me it is an attitude I have to practice and remind myself of very often. Take care and God bless!
I try to tell the people that I schedule things with that I have Fibro and I may or may not be able to keep my appt with them. I find it very depressing to plan a day around an appt when I use to could fill my day with appts after working all day. I have no answers in how to do a better job at this, but accepting that fibro limits me helps some.
I hear you. I'm pretty much in the same boat. I've had this evil fibro for 17 years. It's gotten much worse in the past 4 years. I feel guilty for not doing things. I know that guilt is a useless emotion. I know that I must let go of the life I had, and accept what is. It's difficult. I've missed out on so much. I just have to take it one day at a time. It's difficult to plan anything because I never know how bad I'll feel. I'm trying to just take it one day (hour/minute/second) at a time. It sucks. You are not alone in your feelings.
Revi