Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
LDN, or Low dose naltrexone is a treatment that poses no harm, and holds great promise. It's not a miracle drug, but the science behind it makes very much sense and the anecdotal evidence is astounding!
here's a copy/paste from the website, http://www.lowdosenaltrexone.org/
Naltrexone itself was approved by the FDA in 1984 in a 50mg dose for the purpose of helping heroin or opium addicts, by blocking the effect of such drugs. By blocking opioid receptors, naltrexone also blocks the reception of the opioid hormones that our brain and adrenal glands produce: beta-endorphin and metenkephalin. Many body tissues have receptors for these endorphins and enkephalins, including virtually every cell of the body's immune system.
In 1985, Bernard Bihari, MD, a physician with a clinical practice in New York City, discovered the effects of a much smaller dose of naltrexone (approximately 3mg once a day) on the body's immune system. He found that this low dose, taken at bedtime, was able to enhance a patient's response to infection by HIV, the virus that causes AIDS. [Note: Subsequently, the optimal adult dosage of LDN has been found to be 4.5mg.]
In the mid-1990's, Dr. Bihari found that patients in his practice with cancer (such as lymphoma or pancreatic cancer) could benefit, in some cases dramatically, from LDN. In addition, people who had an autoimmune disease (such as lupus) often showed prompt control of disease activity while taking LDN.
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Subsequently, LDN has been put into clinical trials a few times. There's been one in Stanford for FIbromyalgia. It showed promise in the initial trial, and there's a larger study going on or just finished by not yet published.
The more I read, the more intrigued I was, so I got the book called Up the Creek With a Paddle, by a woman named Mary Boyle Bradley, who wrote it after her husband with MS had fantastic results. http://www.amazon.com/Creek-Paddle-Autoimmune-Disorders-Naltrexone/dp/1432711504
A few people have posted on here that they take it... I am on an elist of folks who take it who are very informative and knowledgable.
here's a copy/paste from the website, http://www.lowdosenaltrexone.org/
Naltrexone itself was approved by the FDA in 1984 in a 50mg dose for the purpose of helping heroin or opium addicts, by blocking the effect of such drugs. By blocking opioid receptors, naltrexone also blocks the reception of the opioid hormones that our brain and adrenal glands produce: beta-endorphin and metenkephalin. Many body tissues have receptors for these endorphins and enkephalins, including virtually every cell of the body's immune system.
In 1985, Bernard Bihari, MD, a physician with a clinical practice in New York City, discovered the effects of a much smaller dose of naltrexone (approximately 3mg once a day) on the body's immune system. He found that this low dose, taken at bedtime, was able to enhance a patient's response to infection by HIV, the virus that causes AIDS. [Note: Subsequently, the optimal adult dosage of LDN has been found to be 4.5mg.]
In the mid-1990's, Dr. Bihari found that patients in his practice with cancer (such as lymphoma or pancreatic cancer) could benefit, in some cases dramatically, from LDN. In addition, people who had an autoimmune disease (such as lupus) often showed prompt control of disease activity while taking LDN.
*********
Subsequently, LDN has been put into clinical trials a few times. There's been one in Stanford for FIbromyalgia. It showed promise in the initial trial, and there's a larger study going on or just finished by not yet published.
The more I read, the more intrigued I was, so I got the book called Up the Creek With a Paddle, by a woman named Mary Boyle Bradley, who wrote it after her husband with MS had fantastic results. http://www.amazon.com/Creek-Paddle-Autoimmune-Disorders-Naltrexone/dp/1432711504
A few people have posted on here that they take it... I am on an elist of folks who take it who are very informative and knowledgable.
Work is bugging me to get the flu shot. I'm refusing as my formaldehyde sensitivity has got worse since taking the H1N1 last year. I was sucked in to taking it and I've been paying the price all year. Maybe the Naltrexone will zap this out of me!
i really want to try this but finding a doc to rx it is next to impossible where i live without going to the suboxen clinic.
Thanks for posting.