Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Emily710 03/14/2013

I started taking one pill a day almost two weeks ago and I think this is a going to be a real winner for me. Now, I MUST take it in the morning, not at night, as I did by mistake on the first day. The pill clearly energizes me. I have been doing more and feeling a little more like my old self. I used to be an energizer bunny. Looking forward to taking it for three months which is when one is supposed to see the benefits.

Again, a very low dose in the morning.

deleted_user 03/15/2013

Emily what is naltrexone 1.5 mg, used for? Is it for the tiredness and energy issues of fibro? I would really like to know about this drug, because I am just so tired and weak lately, I have no energy, anything I do any more it feels like i ran a marathon and lost!!! I used to be so active and energetic like you and now theumph has got up and gone!!! Would like to try something to get my energy back.Thanks any ifo would be great and how it is working on you.

marsharebel 03/15/2013

Like Tamara, I wonder exactly what it does for you. I was told it could impact pain levels, but is it only a help for your fatigue? Can you describe for us what it is making you feel? Are you having any side effects at all?

Thanks for posting this.

emf6874 03/15/2013

Thanks for posting your new med. Here's a link I found about it. I'm actually going to show this to my boyfriend's Oncologist to see if he could try it for his Pancreatic Cancer.

http://www.lowdosenaltrexone.org/#What_is_low_dose_naltrexone

Emily710 03/15/2013

As I understand it, LDN temporarily blocks opioid receptors so the body thinks it has a deficiency of endorphins and creates more. With more endorphins, people feel more energetic and have improved immune system.

It is important to take it in the morning else it will interfere with sleep. It is also important to start with a low dose (I think also for sleep reasons) and the doctor told me that it would take three months to kick in fully, but I think she meant with regards to the immune system because the effect on energy is enough that I noticed it right away. Though iI DO NOT feel wired or anything like that.

The only side effect that has been documented (other than sleeplessness if you take too much or take it at night) is that people are more likely to remember their dreams. True, most mornings I have fleeting memories of dreams and a couple of times I have had vivid memories. The dreams have been nice. No nightmares.

Even if I get nothing else from this, the increased energy is worthwhile for me. I REALLY hope that it will stop my bladder infections so that I can go back to swimming and/or aqua therapy. It, if that works, it will take a couple more months.

OutsideSmile 03/15/2013

That's fantastic :o) I'm really happy to hear that it seems to be helping you . Unfortunately, it didn't work for me, but I have read a lot of good experiences people have had. Hope it continues to work for you!

Sprawling 03/16/2013

Are you sure you are taking 1.5mg? Looking it up the lowest dosage they make seems to be 50mg.

Emily710 03/16/2013

I am taking 1.5. It has to be compounded by a pharmacist. Don't know if the doctor will increase the dose when I see her in a couple of months

Outside smile, did you take it in the morning, and a very small dose?

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