Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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countingmyblessings 09/26/2016

It feels and smells like all of California is on fire! have to shut the house up and run the a/c. Hope they get them out soon! Poor Hubby has to drive AROUND imposing wildfire tonight, adding another hour to his 2 hour commute home. I've been thinking: No matter what "they" say, people who grow up with sick parents/relatives are different than those who don't. That statement in itself brings to mind an incredible thesis, (which I probably won't write). Like children of alcoholics, we see ourselves mostly as 1) broken, sick or wounded, 2) caregivers of same, or 3) destined to burn both ends of the candle cause life is short and ugly and maybe not worth living. Reading your stories, I wonder how much research, if any, is being applied to Fibro., especially where it comes to our collective similarities? I would love to be alive when the cure for Fibro is found. I would love to be the one to find it. I'm 55, and I wish I KNEW I had another 50 years left to live. This, today, is all I have. I guess what I'm trying to say is this: we can only do the best we can with what we have. We (and others, hopefully) will have to accept that in us and in themselves. On a positive note - my doubled Lyrica at bedtime has given me some blessed 5-6 hour nightly sleep. Amazed at how incredible that feels and how long it's been since I had that. I hope you all have sweet sleep and dreams. Peace.

twinmomab 09/27/2016

I worry about how my kids will grow up with a sick mom. Someone that is always hurting and has to turn them down constantly, and for young children, even if it's not all the time, in their eyes it is.

countingmyblessings 09/27/2016

I feel you. I grew up taking care of my mom, (she was 40 when she had me and got emphysema at 50). I worked when my kids were young but I always had debilitating migraines. I guess I would have to say it did the most psychological damage to my eldest. She was very good to me in my sickness, as were they all. I can see them now, closing the curtains in my room, bringing the soggy cold washrag for my head. Putting our stuffed Snoopy in my arms, then all 4 of them, sitting on the bed praying the 23rd Psalm with me (The Lord Is My Shepherd - the only one I've memorized by heart.) Because she became a complete caretaker, she took over when I was down and was a hard taskmaster to my other 3. (I learned later it was not for the best - but at the time what could I do?) Her position never allowed her to accept my second husband either. She hated his guts from word one and tried her best to get rid of him! My second daughter tells me that growing up with an ailing mom made her sympathetic and compassionate. Maybe think of things they can do in your room or with you even if you're in bed. Reading, I think is wonderful. When I couldn't read, I would lie under my washrag and feel them all crowded on the bed (fortunately it was a Cal King, lol) and tell them stories. Make believe and real. As young children I think it brought us all closer together, but just like telling your child no in a grocery or department store, there are times in life when the answer is, no; and there's nothing you can do about it but pray and hold on and hope for the best. Don't know if that's helpful, but that's my story and I'm sticking to it, as they say.

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