Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Narey 02/16/2011

Do you ever realize you've been not noticiing somethign that's been happening for a while. All of a sudden you become aware and realize it's not new...

I'm sitting here, my leg hurts as always. In fact, in the last few days I've had more pins and needles feelings in my foot. Well, as I sit here, I come to realize that my muscles in my leg are .... rippling, twitching, tugging. I don't know the word for it, except that i THINK it's what is known as fasciculations! *thunk my head* in realization. sigh

deleted_user 02/16/2011

Narey--Fasciculations also occur in Myathenia Gravis-- see what I mean about the symptoms being connected?

deleted_user 02/16/2011

Yep. I had them really bad for a few years, then for some reason they're fairly rare now (not complaining). The only good thing about them is they're not painful. I think that's why we don't really notice them at first...the muscle pain simply keeps us from realizing they're there!

deleted_user 02/16/2011

Hi Narey,
I've had them since May; I mentioned them to my doc who put me on
gabapentin...which may as well be sugar pills...they're awful, and it's embarrassing when my leg "jumps" and there's no obvious reason. People think I'm looking for attention.

Corri

deleted_user 02/16/2011

I get this all the time too, i get them all over now, it started in my arm and progressed all over my body. Dont know what the deal is with them, i dont see my Rheumy again until june.

deleted_user 02/16/2011

I do that sometimes too. I don't know why

gkneez 02/16/2011

I tend to get them in my thighs and arms. The come and go. I have not found a cause-effect reason yet. They are just annoying and harmless twitching. I have seen videos of some people on youtube who have major issues. Hope yours are mild like mine.

Narey 02/16/2011

Thank you; yes, it's mild. Not where a limb is spasming or moving, just rippling feelings of the muscles. I've read about it and it seems to point (in my case) to the motor nerve damage or possibly the disc problems I have.

deleted_user 02/17/2011

for YEARSSSSSSSSS I have had this "rippling" in my stomach muscles,,,,,,it's horrible. I feel your pain, and yes, I never connected it until recently.

mtnfibroguy 02/17/2011

I get this in my back muscles many times, tiny ripples that sometimes I don't notice, sometimes I do. I have no control over it.

deleted_user 02/17/2011

Hi Narey,
Isn't it always something??? Geeze Louise!!! But I am here with you Sweetie. Twitching away. Now maybe when I park in the 'disabled' parking spot, people won't ask or mumble "she don't LOOK sick". Grrr
Love and hugs =)
Eva

deleted_user 02/17/2011

Yup me too, but rarely. they happen my upper thighs and sometimes my calves.

deleted_user 02/17/2011

I have "the jerks". Just sitting here minding my own business and my arm will jerk or my shoulder, or my foot....just about anything. My husband jokingly tells me to stop nudging him.

deleted_user 04/29/2011

Has anyone approached their doctor regarding this? If so, what were you told?

My hip surgeon recommended that I take Mirapex for "restless legs"....I'm taking .50mg at bedtime...I don't jerk as much...but still have those darn rippling muscles in my thighs and upper arms. I see a rheumy the end of May. I'm curious to hear his comment.

CORRI

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