Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I figure if I let out some steam I may feel better. First off, I don't know about where you live, but here in Georgia, the weather changes more then most change their underwear. It was chilly a couple days ago, and now it's muggy, humid, rainy and 70 degrees. This does a number on my body as I'm sure most of you have the same problem. I knew my Fibro was acting up yesterday. I was looking for a good night sleep to help it, but that didn't happen.
I usually go to bed around 11 or 12. My boyfriend stays up til 3 or 3:30. I can't get him to go to bed any earlier even though he has to get up at 8. I'm such a light sleeper and I have such a hard time getting to sleep and staying asleep. So, of course when he comes to bed he wakes me up most of the time. Last night was no different. I told him before I went to bed how horrible I felt and to please try to be quiet coming to bed. Well, between him and our cat...I was up by the time his head hit the pillow at 3:30. I'm still up. Not that I haven't tried to go back to sleep, but my legs and whole body hurt when the sheets rub against them. (or anything for that matter) I do take trazadone to sleep, but once I go to sleep once and get woken up, the effects are gone. I even tried taking a soma that usually knocks me out..and it didn't even make me drowsy. So, now I'm up for the day...miserable...in so much pain. I just don't know what to do with myself sometimes. I'm sure you all feel me there.
Also, do ya'll feel like your skin is crawling sometimes, or that you have to move your foot or anything to make it stop? It's almost like withdrawals or the flu...but it's neither. I guess it's the Fibro...I dunno.
I know there's no miracle cure, but letting it out does help. Thanks for listening..and if you have any suggestions..I'm open to anything!
Thanks,
Jessica
I usually go to bed around 11 or 12. My boyfriend stays up til 3 or 3:30. I can't get him to go to bed any earlier even though he has to get up at 8. I'm such a light sleeper and I have such a hard time getting to sleep and staying asleep. So, of course when he comes to bed he wakes me up most of the time. Last night was no different. I told him before I went to bed how horrible I felt and to please try to be quiet coming to bed. Well, between him and our cat...I was up by the time his head hit the pillow at 3:30. I'm still up. Not that I haven't tried to go back to sleep, but my legs and whole body hurt when the sheets rub against them. (or anything for that matter) I do take trazadone to sleep, but once I go to sleep once and get woken up, the effects are gone. I even tried taking a soma that usually knocks me out..and it didn't even make me drowsy. So, now I'm up for the day...miserable...in so much pain. I just don't know what to do with myself sometimes. I'm sure you all feel me there.
Also, do ya'll feel like your skin is crawling sometimes, or that you have to move your foot or anything to make it stop? It's almost like withdrawals or the flu...but it's neither. I guess it's the Fibro...I dunno.
I know there's no miracle cure, but letting it out does help. Thanks for listening..and if you have any suggestions..I'm open to anything!
Thanks,
Jessica
TRISH
Blessings, Star )O(
Jessica
Unfortunately as we all know, FM is tied to sleep. Once we start sleeping every night and get a good rest, then our pain levels start to lower. It's all a vicious cycle.
I hope you can figure out what to do. As far as the creepy, crawlies it may be neurological - I would definitely mention it to your doctor (if you haven't already). Taking the really warm bath helps me with my restlessness. Good luck...hugs jilly
I am a very light sleeper, and despite all the sleeping meds I am on that knock me out, if I get woken up, that's it! I'm up for good! I hate it! No one in the house tries to be quiet, they don't realize that once they wake me up, even if I've only been asleep for an hour, I won't be getting anymore sleep, unless I take the meds again (even tho I've explained this until I'm blue in the face!)
Also, yes to the skin crawling! For me, it feels like a few different things. sometimes it feels like someone ripping my skin off. Sometimes, it feels like I've got bugs with very sticky feet crawling inbetween my skin and muscles, and sometimes, just feels like someone is tryin' to rip my muscles out. Mostly it's in my arms, and yes, I will sit there and wiggle my hands or stretch the arm muscle trying to get it to stop. It's VERY, VERY irritating to say the least and almost exactly like withdrawal. I haven't run into anyone else who experiences this, but now you. I guess it's the fibro. My doc thought it was MS. She said it really sounded like it, and I had other symptoms as well. But the last MRI done a couple of weeks ago, came out negative. Without doing a spinal tap, no way to know for sure tho. Maybe you should talk to your doc to be sure it's not MS?
But either way, I hear ya girl. I wish there was something I could offer you. Have you tried Ambien? Not the CR, but the regular. I think I've just been on it too long to help me much anymore. I need to switch to something that is stronger, but just putting it off.
Good luck hon. I know it's frustrating as all get out!!!
I do remember what a good night sleep is but I don't get them either.After 2-3 hrs I wake up ,waddle off to the potty and go back to sleep,but it is more like daydreaming than deep sleep and wake at the least little sound.I am fortunate that our nearest neighbor is 2 miles away ,but the critters of the night more then make up for any noisy neighbor!!We have 3 dogs and one insist on howling (he's a redbone hound) everytime the wind changes direction.So if the wind itself itself doesn't wake me, he does.
For the restless leg thing , here's what works for me..I rub vick's salve over my legs. I don't know why it works but most of the time it does.It also helps relieve some of the swelling that comes from osteoarthritis in my joints.
Good luck with catching up on your sleep.
Lynda
Seriously though, it is so frustrating when your partners do not seem to care about the sleep we need and how hard it is for some of us to achieve that and maintain it. Hugs, Owlxx
but I just cannot go any earler...and why just lay there...when i do that my RLS kicks into high gear and I have to get up and move around anyway...neverending !!
I wonder if he would like it if you woke him up after he had been asleep for a while. You might try that the next time you are still up and can't get back to sleep. Make him stay up with you until you get back to sleep.
If you can't do that, have a talk with your doctor. My doctor told me I can safely take up to 300mg. of Trazadone if I need it. Any higher would need approval.
Gentle hugs to you.
I have the opposite problem...I have a son that wants to stay up late and a hubby that wants to get up really early for work! It's brutal.
I take a Melatonin for sleep every night. It works wonders for me but doesn't for everyone. It's a natural enzyme produced in your body, so it doesn't interact like some other sleep meds do.
I take Voltoren as an anti-inflammatory. It's probably going to give me an ulcer but it does help a bit.
I also take FibroSense from the health store. It's basically malic acid, celadrin, magnesium and fish oil, all which you can get basically anywhere that sells vitamins.
If you cannot impress upon your husband how important it is NOT to wake you up, then you are going to need to make different arrangements for sleep when you are feeling a flare coming on. We all know how DEEPLY important the quality sleep is with FMS. Can you sleep at a concerned family member's house or a friend. Hey, there is always a clean local hotel to go to check in for a night if you are able to get away for a night and a late morning sleep. Good Luck! Hugs