Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi, I'm new to this group and was wondering how many people are diagnosed at a young age.
I was finally diagnosed with fibromyalgia at the age of 18. It only took my doctor to physically see my muscles spasms on a series of xrays to believe I was truly in pain. Since I was a young child I have had pain. Of course the doctors always said growing pains.
When I stopped growing and the pain stayed they attributed it to stress and depression. I frequently went to the doctor as a child for this pain. They always told my family it was an excuse to get out of school, it was too often to be growing pains, I was just faking it.
My family knew I was not faking my pain. Being up crying all night just to skip school? That would be quite the exaggeration and story to keep up with. Screaming And crying for my dad to take me to the hospital because the pain was so intense. Sometimes heat would help, but more often than not I was stuck with the pain.
I never tried to skip school, I loved going. Frequently I was in the nurses office for not being able to sit still due to the pain. Crying in class because of it, the teacher would sent me to the nurses office to "calm down" and not disrupt the class. My family was called in once a year to talk about my disruptions, but there was nothing that would ease the pain.
As I got older and into the 3rd and 4th grade I was able to fight through and not cry during class. I would wait until the bus came, or if it was a really bad day i would take a quick bathroom break to "scream" the pain away. I still went to the nurses office 3 or 4 times a week. But it was much better than once or twice a day.
The nurses slowly understood I needed 10 minutes to rest and I would be on my way. They became more understanding as the years passed. I'm sure they thought i was either quite good at keeping the ruse going, or truly there was something wrong, something that taking 10 minutes to rest helped. They stopped going to the principle about me, and I started to try to just alternate the class I went during, or tried going during lunch.
The day I was diagnosed I cried with joy that someone believed me. Finally, after all those years I knew what was wrong. I knew I wasn't crazy. And while there are still doctors and people who say fibro is just another name for depression, I have been lucky enough to fine a primary care doctor who believes the diagnosis and wants to help any way he can.
I'm currently 23, and on my second pregnancy in 2 years. The fibro was not as bad the first time around, but this pregnancy I am struggling with the pain. And with the lack of items I can take there isn't much I can do. I try to be active, but am frequently beyond exhausted and in pain. Luckily my daughter takes 2 decently long naps during the day and sleeps through the night, which helps a lot.
That's my story so far. So, when we're you diagnosed? How many years were you in pain before Diagnosis?
And for fun, how many of you are red heads? I have a very low pain tolerance and a very high tolerance to medication. I truly believe it's because I am a redhead as I have no other explanation.
Thanks for reading, I'm excited to join this group and get and give advice.
Sweets
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Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
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This week's highlights include a lot of sports-related programming including the 2026 Patriot Games, the MLB Field of Dreams game, and docuseries about NASCAR and soccer manager José Mourinho... if sports aren't your thing then there's always the streaming premiere of "Michael", the director's cut of an "X-Files" movie, some of the "Real Housewives" take the "Ultimate Girls Trip", more celebs...


I'm not a redhead (unless you count hair dye) per se; my natural hair color basically looked a shade of brown but back before I ever dyed it you could've pulled three hairs from my head and one would've been brown, one would've been blonde, and the third would've been red... so not exactly a redhead but it does show up that way in some photographs (even without dying it). Not really sure if that helps you though....!
Anyway, welcome to the group and good luck with that pregnancy!
My partner is a redhead and pretty much impervious to pain medication. He can take handfuls and it will have no effect on him. This problem is due as I recall to a gene mutation (MC1r) specific to redheads and some brunettes. Many doctors, especially now with the hue and cry about opioids either don't know about it or do and don't care.
I am sorry that this pregnancy has been so rough. Take care.
My daughter is 11 months today! My kids will be 15 months apart, probably a big reason the pain this pregnancy is much worse.
My current OB will not prescribe anything for pain during pregnancy. He keeps reccomending yoga and prenatal massages. He doesn't seem to understand that someone touching my body sends it into even more pain.
He's a great dr in every other aspect. I'm currently switching OB anyways due to him closing his practice. I'm hoping the new OB is a little more considerate to my pain.
I'm only half way through my pregnancy and can already barely move. I don't know how I will get through the remaining weeks without some help.
the pain. It's a blessing that your daughter takes good naps and sleeps during the
night. I know she is a joy for you. I'm not sure how long I have had fibromyalgia but
was diagnosed 20 years ago. Before that doctors kept telling me it was stress because
they couldn't find anything wrong. I don't believe I had this as a child but I do have a
memory of going to bed one night and I was hurting. I thought then that I shouldn't
hurt that way because I was a child. I wonder if I have always been prone to this kind
of illness. Pain and fatigue plague my days and nights now and I think things have
gotten worse over time. Yoga might be a good thing to try since pain meds are out.
Hopefully your new doctor will have better insights and will come up with something
to help you. Take care of yourself and remember you are not alone.