Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello everyone. Ive been posting in this forum and others here at DS since last August, but I realized I have never really introduced myself and described my situation. (I will be posting this in both the Fibromyalgia and Lupus support groups.)
Last year was a horrible year for me, I spent 3 months living in a motel, visiting my dad in the hospital day in and day out until they finally just finished him off. During this time, my baby brother collapsed with a stroke and was DXd with brain cancer. After surgery, chemo and radiation, he died anyway just 3 months, start to finish. My closest aunt then died with some mystery illness and I had two cousins around my age, die with stroke and cardiovascular problems. This was all within 6 months. Its also been hard because Im helping to take care of my mother. You can imagine her grief, losing her husband of 55 years, her youngest son, her baby sister and two nieces. Needless to say 2009 could not end fast enough for my family.
Somewhere in the middle of all that turmoil my body went into shock. Whatever, virus or unknown thing that causes Fibromyalgia, Sjogrens, Lupus, CFS etc. came roaring to the surface for me. I had no idea what was happening to my body. All I know is that it felt as if my entire body was being consumed by this thing. I couldnt even deal with my grief because I was in so much pain.
After a couple Emergency Room trips and multiple trips to doctors, I got DXd with all the things I mentioned in the last paragraph. That was back in August/September and I began trying out different pain and treatment plans. Ive had many problems for many years, back pain, wrist pain, foot pain, migraines, etc. and it was just a matter of all the problems coming together back then that got me DXd.
Im doing better these days. Fortunately for me, some of the medications do help me to maintain a normal life. I still feel pretty crummy most days and some pains dont go away and I still get flare ups where my heart seems to squeeze, my breathing is difficult and it feels like my entire body is burning/tingling along every nerve path.
Anyway, it seems like I have kind of gotten to know some of you reading the various posts and including my input when I feel I might have something worthwhile to say. So just letting everyone know who I am and what brought me to DS.
Have a great day!
Last year was a horrible year for me, I spent 3 months living in a motel, visiting my dad in the hospital day in and day out until they finally just finished him off. During this time, my baby brother collapsed with a stroke and was DXd with brain cancer. After surgery, chemo and radiation, he died anyway just 3 months, start to finish. My closest aunt then died with some mystery illness and I had two cousins around my age, die with stroke and cardiovascular problems. This was all within 6 months. Its also been hard because Im helping to take care of my mother. You can imagine her grief, losing her husband of 55 years, her youngest son, her baby sister and two nieces. Needless to say 2009 could not end fast enough for my family.
Somewhere in the middle of all that turmoil my body went into shock. Whatever, virus or unknown thing that causes Fibromyalgia, Sjogrens, Lupus, CFS etc. came roaring to the surface for me. I had no idea what was happening to my body. All I know is that it felt as if my entire body was being consumed by this thing. I couldnt even deal with my grief because I was in so much pain.
After a couple Emergency Room trips and multiple trips to doctors, I got DXd with all the things I mentioned in the last paragraph. That was back in August/September and I began trying out different pain and treatment plans. Ive had many problems for many years, back pain, wrist pain, foot pain, migraines, etc. and it was just a matter of all the problems coming together back then that got me DXd.
Im doing better these days. Fortunately for me, some of the medications do help me to maintain a normal life. I still feel pretty crummy most days and some pains dont go away and I still get flare ups where my heart seems to squeeze, my breathing is difficult and it feels like my entire body is burning/tingling along every nerve path.
Anyway, it seems like I have kind of gotten to know some of you reading the various posts and including my input when I feel I might have something worthwhile to say. So just letting everyone know who I am and what brought me to DS.
Have a great day!
We have met in the lupus forum and hope to continue meeting here as well.
Stay strong.
Mumbi.
That sounded a whole lot better 15 years ago. Some days, I get tired of being one of God's favorite people.
Welcome to the group. All of God's favorites are here.
Hope 2010 turns out to be a good year for everyone.
Sending Hugs and Prayers
Hugs
HUGS from down south :)
I am Sorry for all Your Pain, and Loss..I Understand.
Hugs !
Welcome..and super soft hugs
Sorry about all your families losses and pains of 2009. Prayers for a happier and brighter 2010 for you and your family. In case I never said this before Welcome to the group. Know have seen you on the board before.
Also welcome to the group mandmsmommy. Also sorry to hear about your loss of your mom. Lossing love ones is very hard. Thank you for the bit of humor about the dust on the dresser .
I too can relate to the loss of loved ones have lost many over the years. Lost my first husband when was 24 years old we had 4 sons. Lost my second husband in 2004 we were married 32 years had a son and daughter. Lost my father and one brother a couple months apart. Lost my youngest sister in Jan. and a brother and nephew in July of last year. Many more. I do understand and my heart goes out to you both and all others who have also gone through loss of loved ones.
Cherish the good memories and times that were shared.
Take care gentle hugs
Take care gentle hugs
It does feel good when I do say something that most everyone here would understand the pain and how our lives are changed because of unexplainable illnesses. I also hope my inputs can help others trying to understand what the h*ck is going on with these illnesses.
Anyway, thanks and have a great day!